Sutent Scans

sorry about the delay,results from my scans came back late, and i was so busy with new baby . the results were positive regarding sutent, my tumours have all decreased in size, and the tremors have also decreasd in frequency but i still have tremors in my hands, as my sarcoma is rare in ireland every step is new but exciting as every day is full of promise but also intrigue as you wake up in good form or bad form but always be positive, colm

This is great news! What is your rare form of cancer? My brother has ehe. We have heard of Sutant. And as a treatment for ehe. All my best to you. Angie

Hi angie

Its great to hear from you,my cancer is called ALVEOLAR SOFT PART SARCOMA, I have found sutent to be of great benefit the only real side effects are extra fatigue,I hope your brother gets well soon and always looks on the bright side, i am going to read up on his type of cancer.he will be in our prayers  COLM

So sorry to here about your brother.Our prayers will be with him . My boyfriends brother found out he has it to. But i would like to know the whole name of what it is called . He tells us that it is called ehe .If you know the name please let me know. I live in Tennessee and the doctors at vanderbilt said it has only been 19 cases of it and his is number 20 they don't really know how to treat it. he has it in his spline,kidney and liver.They are looking to take out the one kidney and spline and try to get all of it in his liver that they can. They haven't made up there minds yet. please let me know if you know anything about it thanks. Trisha

Sorry Tricia, I JUST saw this. I'd like to help. It's called: Epithelioid hemangioendothelioma Happy to email with you directly! Let me know how to reach you. -Angie