Essential Thrombocytosis

I was so happy to receive a reply from my earlier message. Most of the messages that I've read here deal with the platelet numbers, but very little on the symptoms that are attached to E.T. I felt great two months ago when my elevated platelet numbers were spotted at my annual physical. I can't believe how fast my health went down from there! I have had aching ribs, but especially I have had pain in my fingers, toes, and back of my legs. Along this stage I was simply taking the baby aspirin. My pain became so strong--weakness and dizziness in just walking down a hallway--that I'm now on hydrea. It's been six days since I've started on this drug. I do begin to see some improvements in my pain. My doctor has said I can take Tylenol when needed for the pain. My platelets elevated quickly--about 100,000 every week, leading to that "million mark". Most interesting to me personally is that my sister was diagnosed with myeloma about the same time that I was diagnosed with E.T. So many similarities (bone marrow biopsy, ...) Thank you for all responses.

Hi,i'm ildi from hungary.

I was diagnostized with et. 1.5 year ago.I have jak 2 mutation.

I'm was on hidrea but from august i'm on interferon,because we are planning to have a baby.

Interferon has got terrible side-effects:(

Is there any researches about et. in your country???

 

 

by 

ildi

 

On 10/26/2007 Larsie wrote:

I was so happy to receive a reply from my earlier message. Most of the messages that I've read here deal with the platelet numbers, but very little on the symptoms that are attached to E.T. I felt great two months ago when my elevated platelet numbers were spotted at my annual physical. I can't believe how fast my health went down from there! I have had aching ribs, but especially I have had pain in my fingers, toes, and back of my legs. Along this stage I was simply taking the baby aspirin. My pain became so strong--weakness and dizziness in just walking down a hallway--that I'm now on hydrea. It's been six days since I've started on this drug. I do begin to see some improvements in my pain. My doctor has said I can take Tylenol when needed for the pain. My platelets elevated quickly--about 100,000 every week, leading to that "million mark". Most interesting to me personally is that my sister was diagnosed with myeloma about the same time that I was diagnosed with E.T. So many similarities (bone marrow biopsy, ...) Thank you for all responses.

I too was diagnosed after a routine physical. I had been feeling achy (soreness in joints - particularly fingers and elbows) and decided to get a check-up. The doctor called me two days later and referred me to a hem/onc. My platelets were 1.8 mill. He put me on hydrea (2 tabs daily). After 1 week, they increased by 100,000. I am now on 3 capsules per day. I take them in the early eve. so I don't really notice any side effects. This is all so new and scary....I have been doing some research and would love to share information...

I am in the United States and I have been research different drugs and their side effects and Interferon Alpha has not effects on the fetus so what you are doing is the best.  Best of luck.