Distraught

hi my mum has been dianosed with bile duct cancer stage 3,doctors here in the uk we here welive have said its inoperable we the family are besides ourselves,we no surgery is the only way. has any one with stage 3 cancer had surgery. she is due to have kimo and radiation in few weeks i ve head it does not respond very well,has any one also @stage 3 had kimo and radiation and it helped shrink it. im desperate for help from a loveing  daughter

 

On 10/27/2007 distraught wrote:

hi my mum has been dianosed with bile duct cancer stage 3,doctors here in the uk we here welive have said its inoperable we the family are besides ourselves,we no surgery is the only way. has any one with stage 3 cancer had surgery. she is due to have kimo and radiation in few weeks i ve head it does not respond very well,has any one also @stage 3 had kimo and radiation and it helped shrink it. im desperate for help from a loveing  daughter

Hello, I read you message and I am very sorry to hear about your mother.  Stage 3 is serious... My wife in 2003 was diagnosed with stage 2B, which meant the cancer spread to nearby lymph nodes.  She had surgery at UCSF Medical Center in San Francisco, you are correct with regarding  Chemo Therapy and Radiation Therapy, in most cases it does not solve the problem...this type of cancer need surgery to remove it from the body.

Stage 3 is much more serious...it can mean the cancer is effecting the main blood vessels that take blood to and from the liver, or it has spread into the samll or large bowel, the stomach or the abdomial wall, Lymph nodes in the abdomen may also be affected.  This can be very serious.

As far as the Chemo and Raditaion, if it helps emotionally go for it, but I wouldn't give your mom any false hopes.  It sounds like you know how the siutation.

God Bless you and your mom, I know how hard it is and the heart break that goes along with Cancer.  Take care of yourself, your health is very import also.

Leonard 

 

 

thankyou for the reply,we have an appointment in manchester thursday 2nd opion, i was hopeing he would operate,ive heard of a jeromone canady at upmc mckeesport hospital in america who saved awoman called cindy of  bileduct cancer, doctors also told her she had 8 months approx.. to live,she went for another opion[had a few opions]and he said he would operate.i ve got to get her help before its to late,do you no of any effective treatment or surgeons.thankyou for replying i carnt give up i promised her.

i forgot to mention i do hope your wife is ok,thank goodness she had the op, makes all the difference.

 

On 10/29/2007 distraught-bile duct canc wrote:

thankyou for the reply,we have an appointment in manchester thursday 2nd opion, i was hopeing he would operate,ive heard of a jeromone canady at upmc mckeesport hospital in america who saved awoman called cindy of  bileduct cancer, doctors also told her she had 8 months approx.. to live,she went for another opion[had a few opions]and he said he would operate.i ve got to get her help before its to late,do you no of any effective treatment or surgeons.thankyou for replying i carnt give up i promised her.

Good Morning,

It's around 8:30am here in California. Yes I also heard of Doctor Canady and his approach to solving this type of cancer.  As I mentioned in my previous email, my wife had surgery at UCSF Medical Center in San Francisco in 2003 and is doing pretty well.  Through surgery the cancer is gone, but it does come with complications. Besides the surgery to remove the tumor in her Hepatic ducts, she needed a procedure called a Roux-en-Y-Loop...this procedure is done so the bile can flow from the liver through the small intestine.  The problem is, my wife is prone to bile infections and needs to visit the hospital to receive IV antibiotics. But that's no big deal when you consider the alternative.

Sorry for rambling...you asked about a surgeon's name.  Yes I have a very good and respected surgeons name.  At UCSF Medical Center in San Francisco it's Doctor Ryutaro Hirose at 415-353-1061.

As far as treatments go and knowing what I know now...surgery seems to be the most effective against this type of cancer. The tumor board ruled out Chemo and Radiation, they advised us, sugery was the only option to remove this cancer from her body.

Good luck...I hoped this helped a little...Leonard 

 

  

hi lenoard,hope your both well,i recieved a phonecall this am from the private hospital we visited such lovely people there compared to our hospital close to us.we had a 2nd opion the doctor says it looks like the cancer is in 2 parts the bile duct and the gall bladder but he says hes not sure if the gall bladder is inflamation,so she is booked to have an m.r.i scan on monday we should no if they can do surgery by thursday, i m in shock as our state hospital aent mum home to die with 8 months now this ca specialist says so far so goog just got wait and see whats on m.r.i. scan.i wish a got a 2nd oppion before,he did say her last c.t.scan was 6 weeks ago.so i will no on thurs  .keep u updated take care.. 

Hello, I just received your message and I'm pleased to hear the second opinion may solve some of the problems. Thank you for your concerns about my wife...yes she is doing better, just have to live with the occasional bile infections.

I understand the doctor that gave the second opinion is indicating the cancer is in 2 parts of the bile duct and possibily the gallbladder. I see he also is indicating that the gallbladder my be inflamation only, that's very possible. Did he happen to say where the 2 parts are in the bile duct. I'm assuming if it's a Klatskin Tumor the 2 areas he is mentioning is the Hepatic Y. These are the 2 bile ducts that lead into the common bile duct system. This is where my wife's tumor was located (right at the Y). When they did surgery they remover 2/3 of the Liver, the Hepatic Ducts, the Common Bile, the Gallbaldder as well as the Cystic Ductis.

The MRI should show all areas of concern. This sounds promising...hope for surgery, without it, the situation can me difficult. Are they planning do a biopsy or has that been done already.

I understand you're feeling regarding the first hospital method of handling this serious matter. My wife was told it would be very difficult to find a surgeon that would tackle this surgery....she was given 6 weeks to live, that was in July 2003.

Things sound like they are starting to look up, I'm very happy for you and your mom. I will keep you in my prayers...look forward to hearing some good news...Remenber, you are important also...eat well and get rest...you're no good to your mom if you let yourself get run down. Talk to you later, Leonard

hi i just was reading your email and thought i would write to you my husband is 39 years old and was diagonosed with bile duct cancer on february 14, 2007 and has been a long journey he has had 2 surgerys thus far and right now he is doing chemo he has had his uo and downs and we are just trusting in the lord and he truly is working in our situation i am so sorry for what you are going through. this has been the longest trial for us but his 2 nd surgery 14 hours long but they got everything they could see including in the lymph nodes and alot of tumors and they said there are just micoscopic cells so they decided to give him chemo and they will continue to stop anything else from growing they said they will take more ct scans and pet scans and if they see nothing else growing then they will stop. well i will be praying for your mom i hope you and your family can reach out to the lord cause he will listen all we have to do is ask please let me know if there is any questions that maybe i can answer for you i would be glad to god bless you and your family. lily

 

On 11/13/2007 mistyblu97 wrote:

hi i just was reading your email and thought i would write to you my husband is 39 years old and was diagonosed with bile duct cancer on february 14, 2007 and has been a long journey he has had 2 surgerys thus far and right now he is doing chemo he has had his uo and downs and we are just trusting in the lord and he truly is working in our situation i am so sorry for what you are going through. this has been the longest trial for us but his 2 nd surgery 14 hours long but they got everything they could see including in the lymph nodes and alot of tumors and they said there are just micoscopic cells so they decided to give him chemo and they will continue to stop anything else from growing they said they will take more ct scans and pet scans and if they see nothing else growing then they will stop. well i will be praying for your mom i hope you and your family can reach out to the lord cause he will listen all we have to do is ask please let me know if there is any questions that maybe i can answer for you i would be glad to god bless you and your family. lily

hi lilly,u wrote

me a lovely message months ago re my mum,i emotionally havent been up to reading the stories and replyin as find them helpfull but upsetting,my mums in our local hospital back in nov they looked at the scans and said they look promising,which was the best feeling ive ever felt, when mum went down to theatre they opened her up and fond her very inflamed and could not remove the tumor due to it been near the portal vein.she gained her energy took a few months and we all discussed a trial "gemcitabine and cistaplatin" a few weeks before starting the trials my mum had an infection,stent replaced,now shes contracted c-diff and ct scans showed a few absesses near her liver,her morel is extremlely low shes struggling to digest her food properly, and keeps sayin she doesnt want to die, im trying my hardest to get her some help by getting her swallowing assesed ,i keep asking the nurses but i feel like they want my mum out the system,i dont no what to do but try hold the tears untill i turn the corridor of the hospital,how is your husband,hope hes well.sory for the delay i do come back to the site periodically.best wishes zie [uk]

 

On 11/2/2007 Solutions wrote:

Hello, I just received your message and I'm pleased to hear the second opinion may solve some of the problems. Thank you for your concerns about my wife...yes she is doing better, just have to live with the occasional bile infections.

I understand the doctor that gave the second opinion is indicating the cancer is in 2 parts of the bile duct and possibily the gallbladder. I see he also is indicating that the gallbladder my be inflamation only, that's very possible. Did he happen to say where the 2 parts are in the bile duct. I'm assuming if it's a Klatskin Tumor the 2 areas he is mentioning is the Hepatic Y. These are the 2 bile ducts that lead into the common bile duct system. This is where my wife's tumor was located (right at the Y). When they did surgery they remover 2/3 of the Liver, the Hepatic Ducts, the Common Bile, the Gallbaldder as well as the Cystic Ductis.

The MRI should show all areas of concern. This sounds promising...hope for surgery, without it, the situation can me difficult. Are they planning do a biopsy or has that been done already.

I understand you're feeling regarding the first hospital method of handling this serious matter. My wife was told it would be very difficult to find a surgeon that would tackle this surgery....she was given 6 weeks to live, that was in July 2003.

Things sound like they are starting to look up, I'm very happy for you and your mom. I will keep you in my prayers...look forward to hearing some good news...Remenber, you are important also...eat well and get rest...you're no good to your mom if you let yourself get run down. Talk to you later, Leonard

hi leonard, we exchanged messages in november about my mum having a 2nd opion,do u remember? sory for the delay, i find it hard to visit the site,helpfull but im emotionally week.to cut a long story short,my mum couldnot have the surgery as the tumor was to close to the portal vein.she gained her strengh back up only to be knocked down again by an absess,infections,now she has contacted cdiff,and is very weak hardly eating and her morel is extremley low.i thankyou for your helpfull e mails i do apologise for not replying sooner, how is your wife you were the first person to e mail me on the site i think thats why i occasionally think about how you are both doing.best wishes zie uk