Need Help

Hello my name is Leona, I was diagnosed with MS in 2004.  Ok I saw the results and I am 99% on believing that is what it is.

Timeline:

January 2005 began copaxone, did not read the fine print.

April 2005  solumedrol infusion (3days)

September 2006 solumedrol infusion (3 days)

December 2006 stopped Copaxone

February 2007 began Avonex infusion only lasted 3 shots, allergic reaction

April 2007  solumedrol infusion (3 days)

August off of Neurontin, now things go nuts. 

ok, up to date, this is where things get strange.   I noticed back in 2005 about November that my left lymph node was a little larger then my right.  Figured I was getting a cold or something.  No pain.  I was also on Neurontin so that numbed any pain. 

From April 2007 I have been in the Neuros office twice, my PCP 3 times, an ears nose and throat once, and a dentist once, a new PCP once, emergency room once.

My chief complaint is this: My mouth and throat.

PCP 1 states everything is ok, and that the inflamation is most likely casued by so many drugs introduced into my person in such a short time. 

Neuro:  in my records as of 4-5-2007 states cervical lymphadenopathy, tonsils are absent.

I went in 4-8-2007 for a 3 day solumedrol infusion.  This is when it all began.  My tongue began burning, and then the in and out of Dr.s offices I went.  I know I am being very confusing.  

I have complained about it constant, then began researching the side effects to the drugs I have been on, woooow.    Copaxone: side effect lymphadenopathy, lymphoma, and more.  Avonex:  Lymphadenopathy, lymphoma and more.  Solumedrol: mouth sores, and more. 

I now get sores on the back of my throat, I get sharp pains going downward in my throat and a dull pain.  Never once has a CT scan been done, and its now November 2007, and its still here.

One Dr. told me that I was over reacting and to go home and live life.  He gave me an anti anxiety pill.   

 I am tired of being ignored, and yes I am scared of the unknown, what if it is cancer.  They tell me oh its just lingual tonsil tissue, I have no tonsils.

How do I convince my Dr. that it is in my best interest to have this scanned and checked into.  I know what I feel and I know what I see, and this is not ok.

Help please.

Leona

 

 

On 10/30/2007 LeeBird wrote:

Hello my name is Leona, I was diagnosed with MS in 2004.  Ok I saw the results and I am 99% on believing that is what it is.

Timeline:

January 2005 began copaxone, did not read the fine print.

April 2005  solumedrol infusion (3days)

September 2006 solumedrol infusion (3 days)

December 2006 stopped Copaxone

February 2007 began Avonex infusion only lasted 3 shots, allergic reaction

April 2007  solumedrol infusion (3 days)

August off of Neurontin, now things go nuts. 

ok, up to date, this is where things get strange.   I noticed back in 2005 about November that my left lymph node was a little larger then my right.  Figured I was getting a cold or something.  No pain.  I was also on Neurontin so that numbed any pain. 

From April 2007 I have been in the Neuros office twice, my PCP 3 times, an ears nose and throat once, and a dentist once, a new PCP once, emergency room once.

My chief complaint is this: My mouth and throat.

PCP 1 states everything is ok, and that the inflamation is most likely casued by so many drugs introduced into my person in such a short time. 

Neuro:  in my records as of 4-5-2007 states cervical lymphadenopathy, tonsils are absent.

I went in 4-8-2007 for a 3 day solumedrol infusion.  This is when it all began.  My tongue began burning, and then the in and out of Dr.s offices I went.  I know I am being very confusing.  

I have complained about it constant, then began researching the side effects to the drugs I have been on, woooow.    Copaxone: side effect lymphadenopathy, lymphoma, and more.  Avonex:  Lymphadenopathy, lymphoma and more.  Solumedrol: mouth sores, and more. 

I now get sores on the back of my throat, I get sharp pains going downward in my throat and a dull pain.  Never once has a CT scan been done, and its now November 2007, and its still here.

One Dr. told me that I was over reacting and to go home and live life.  He gave me an anti anxiety pill.   

 I am tired of being ignored, and yes I am scared of the unknown, what if it is cancer.  They tell me oh its just lingual tonsil tissue, I have no tonsils.

How do I convince my Dr. that it is in my best interest to have this scanned and checked into.  I know what I feel and I know what I see, and this is not ok.

Help please.

Leona

 

Leona, I would seek another physician and get another opinion. 

If need be, you will need to fire the current ones you have.  You have to go w/your gut feeling, even if you may be "over-reacting".  More than one physician has been wrong. If it is cancer, you have no time to lose.  If not, you win.  Have you tried detoxing your system?  to do a safe one, you need to seek a holistic practitioner. so that you flush in sequence.  not a simple thing to do well but the outcome can make all the difference to your health.  good luck.

 

Hello,

 I too will recommend that you get a second opinion.  I am on a quest now to start tours because allot of doctors are mis-diagnosing patience.  My brother just passed away of a tough type of cancer and he was mis-diagnosed for 8 months.  My mother had breast cancer in 2004 and once she finished her chemo and radiation the doctor never ran any test to make sure that all of her cancer was gone.  He has never done a ct, mri, bone scan nothing but a simply chest xray and blood work and once a year her mammogram.  Well 4 weeks ago she found out by another group of doctors that her cancer is now in her left breast and has spreaded throughout her body via of her bones.  The doctor that said to just go on and live life how can you do that when he is not putting you at ease or running the proper test.  These doctors now days act as if they are the ones paying for the test.  

 Whatever you do don't go to the CTCA which are the cancer treatment centers of America.  Please get a second and maybe a third opinion.  Your life depends on it.  Don't just listen to one doctor. 

 

Be blessed and I hope that all is well....

 

Debra 

 

 

curious about your ctca comment

whats that about?

I am also curious about not going to the CTCA centers - I thought they were the best. I had bi lateral brast surgery two years ago and like the other person the only thing my oncologist is doing is every 6 months blood work - he says that will tell everything I need to know -- I am also not taking any meds - I did for one month and stopped due to the side effects. I am now drinking V8 Fusion - eating a lot of blueberries, broccoli, brussel sprouts, green tea, and taking suplements from my vitamin company that are supposed to be terrific anti toxins and all the other things that are supposed to be amti toxins for cancer and hoping for the best. I am allergic to so many meds I am afraid to take any and if they have 50 side effects I will get all 100 of them. My cancer was estrogen positive so I am also taking an estrogen blocker capsule , (not a prescription) that I buy at Mother's organic food store. So far no side effects from them. Any other suggestions? Toni R

You need to change doctors immediately. Also listen to your own gut feelings -- your body is the best diagnostic there is and it lets you know when something is wrong - that is why we have pain - it is a warning signal- along with other signals - soem doctors are just burned out and you need to do more research and get other opinions. I have a wonderful primary care doctor, (internist) but she has been proven wrong three times. Thank goodness she sent me to a specialist and what she diagnosed turned to be incorrect, but at least she sent me to get another opinion, which I would have done anyway as I did not believe what she said was wrong. Years ago, I was told by my gyn that I needed a hysterectomy and he would do it as soon as he got back from vacation in two weeks -- while he was gone I was checked by two other gyns and both said "no way" that was over 45 years ago and I still have not needed the operation. Toni R

Toni,

Definitely, please see a more aggressive and empathetic doctor. My wife's oncologist is still following up with breast cancer survivors after six and seven years - monthly. She gives them Aredia (if memory serves) monthly, because it's been shown to decrease breast cancer recurrence by 35%. As much as it's dreadful, survivors require serious follow-up, pretty much forever. Blood tests aren't enough.

Jack

Sorry, Toni. Meant to reply to LeeBird.
Jack

I know someone who went into remission in Colorado Springs at Health Quarters Ministries. Rita