One patient with glioblastoma still alive nine years later
by Mel5787 on Thu Jun 02, 2011 01:10 PM
I am 50 yrs old and had a total gastrectomy in 2009. I had stage IV stomach cancer. It had gone to my liver.
In the beginning, it is going to be trial and error. Unfortunately, I don't think it can be any other way.
After almost two years now, I am doing great. I am still cancer free and I gained 5lbs! I had lost close to 80 lbs but after a year I started to maintain the weight and now I have finally gained some back.
My best advice is to follow the diet that is given for gastric bypass surgeries. That is what I did. Alot of protein and small meals every two hours. Chew well.
Some things still get stuck for me. Chicken... spaghetti and bread. Milk products make my insides gassy and bloated if I eat too much of them. Sugar is a no-no in large quantities.. but I can tolerate it now.. just not a lot at once. She cant eat and drink at the same time. That was my hardest thing. Your insides look at food and drink the same.. so she should eat and then drink a few hours later.
Low-sugar Carnation instant breakfast is good too. It has all the vitamins and nutrients in it like Ensure or Boost but is a lot cheaper. If the milk bothers her, try soy-based milk.
In the beginning, I would watch the clock and eat or drink something every two hours. See if that helps her.
Some foods make me gassy.. specially if I eat too fast. You really have to eat slowly. I do get acid reflux but very rarely.
Trial and error.. I wish there was a cut and dry list but I think that everyone is different.
I have tons of energy now. I went back to work full time in Feb 2010 and haven't looked back.
My Dr's told me that after a year, the weight loss would slow down and that I would start maintaining and they were right.
I am here if you have any other questions.
Prayers sent your way!
by AnDrEaT521 on Tue Nov 22, 2011 12:57 AM
Hi there, im 21years of age i had my whole stomach removed in march 2011 (20 years old) due to cancer genetics, your step mums food consumption will improve over time if shes always determind to eat and have small snacks through out the day, i get a B12 shot every 3months and take multivitamin pills, im sure by now she would have noticed what foods ahe can hold down or give her dumping syndrome, weight varies with how much the person eats and has the right neutriants i went into hospital weighing 52kgs i now weigh between 42 - 44kgs your weight flacuates alot, and you get alot of gas :L as i see from the date you posted it though hopefully she is all recovered and healthy :)
by LabGuy on Thu Nov 24, 2011 12:23 AM
When first diadnosed in Ja. 2007 I was told I was stage IV. I had a mass at my gastro-esophageal junction with mets to severl lymph node.
I had about 1/2 my stomach removed and a section of espophagaus removed in May. 2007. Pathology staged me pT3 pNi pMX.
They decided to do radiation because I was pretty healthy after my first rounds of chemo and sugery. The idea was to kill any cancer cells that had metasticized or had been spread around during the surgery. I had five weeks of five angle, IMRT raditation allong with 3000 of Xeloda every day.
by KassyS on Sat Jun 09, 2012 10:10 PM
On Nov 22, 2011 12:57 AM AnDrEaT521 wrote: Hi there, im 21years of age i had my whole stomach removed in march 2011 (20 years old) due to cancer genetics, your step mums food consumption will improve over time if shes always determind to eat and have small snacks through out the day, i get a B12 shot every 3months and take multivitamin pills, im sure by now she would have noticed what foods ahe can hold down or give her dumping syndrome, weight varies with how much the person eats and has the right neutriants i went into hospital weighing 52kgs i now weigh between 42 - 44kgs your weight flacuates alot, and you get alot of gas :L as i see from the date you posted it though hopefully she is all recovered and healthy :)
On Nov 22, 2011 12:57 AM AnDrEaT521 wrote:
Hi, How is your eating now? Are you one of those that can eat almost anything? Do you get frequent pains in your abdomen. May I ask how many persons in your family had their stomachs removed?
by bubbleox on Sat Oct 13, 2012 03:01 AM
for all people who have trouble with weight i may suggest to try twocal hn it is supposwd to be equal to a meal and desert it is 237 ml and I take it 60 ml at a time 4 times a day it seems to have stoped the weight loss at this time bob.
by RubyJohnson on Thu Dec 20, 2012 02:03 PM
Its been exactly a year since my total stomach removal. The year long road was rough. I had chemo and radiation, plus had to work too during the treatments. Eating is still a challenge for me. I've lost around 80 pounds or so. I've seen the nutritionist. I've lost so much weight due to the fact that I wasnt eating enough protein. I've gained 5 pounds so far, which is a good sign. I've just increased my protein intake. I've ordered the powder protein, but have not used it yet. Trying to gain the normal eating way. I'm due for another CAT scan the first of the year. I pray that its all clear. The first couple of months, the diarahea and vomiting from the chemo and radiation treatments. But after the treatments, you can pretty much feel normal. Vitamins are a staple for life. B12 and multi every day. My stomach will not let me over eat. It will purge on its own if you eat too much. Not a good feeling. Start with small portions and it will gradually increase in time. If you need to drink with your meals, just sip a little at a time, no gulping. Those dumping syndromes are no fun. Eat frequently, about 4 to 6 small meals aday. Fruit, jello, yogurt, nuts, anything you want to eat during the inbetween big meals. Those can be your snacks. I've even eaten icepops. I've cut out sugars from cakes. Go natural sugars. Sugars can cause diarehea. Hope this helps.
by faklar on Sun Jan 27, 2013 01:53 PM
I'm really very happy to hear how well you're doing. I sent your post to my daughter to cheer her up a little bit. Her dad (my ex husband) is suffering from same conditions you had. In may 2012 he had a total gastrectomy. Now unfortunately it spread to diaphragm, liver and intestines. He was continously throwing up recently so he was hospitalized and they started to feed him through IV. He had another surgery just 10 days ago, they worked on intestines but after the surgery he's still vomitting. Now doctors are planning to put stent on esophagus.
What we're told about this cancer is if it spreads to liver it's irreversible. So your case really inspired us. We really want to hear more from you. How are you doing now? We hope all the best for you and everybody here.
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