One patient with glioblastoma still alive nine years later
by BubbaW on Sun Nov 11, 2007 12:00 AM
by tacamodon on Sun Nov 11, 2007 12:00 AM
by Shemay on Mon Nov 12, 2007 12:00 AM
On 11/11/2007 BubbaW wrote:My husband's doctor & Mayo have been unable to diagnose his illness, and now are going to removed his extremely enlarged spleen, telling us that he may have lymphoma. I am confused because I am not seeing this as a symptom of lymphoma anywhere. Is there anyone out there who has lymphoma, that is not affecting any of the other lymph glands except the spleen? Is this possible? They have ruled out T-cell granular lymphocytic leukemia, and the doctor says he doesn't think that Felty's syndrome would cause the spleen to be this enlarged and the white cell count to be down to 800. I'm just wondering if anyone out there has seen this diagnosed as lymphona? Thanks so much for any information. We are just so confused.
by Follicularm on Wed Mar 26, 2008 12:00 AM
Shemay, I am interested in hearing what success you have had in alternative treatments.
On 11/12/2007 Shemay wrote:I think you will find this website very informative. It has helped me understand my condition and how to deal with it since my diagnosis in 2004 with marginal zone lymphoma.http://www.lymphomation.org/type-mz.htm Please feel free to contact me if you are interested in the success I have had using only alternative treatments.Blessings Shemay On 11/11/2007 BubbaW wrote:My husband's doctor & Mayo have been unable to diagnose his illness, and now are going to removed his extremely enlarged spleen, telling us that he may have lymphoma. I am confused because I am not seeing this as a symptom of lymphoma anywhere. Is there anyone out there who has lymphoma, that is not affecting any of the other lymph glands except the spleen? Is this possible? They have ruled out T-cell granular lymphocytic leukemia, and the doctor says he doesn't think that Felty's syndrome would cause the spleen to be this enlarged and the white cell count to be down to 800. I'm just wondering if anyone out there has seen this diagnosed as lymphona? Thanks so much for any information. We are just so confused.
by lorainel on Mon Feb 23, 2009 12:00 AM
On 11/11/2007 tacamodon wrote:Yes, my husband has Mantle cell lymphoma, diagnosed this past labor day weekend. His enlarged spleen is what took us to the hospital, no other lymph gland was involved at the time. Our white cell counts are huge, multiplying by 15-18,000 daily. We are at Mayo also.Blessings to you as you search.tacamodon
I just received same type of diagnosis. Would you tell me what kind of treatment your husband received, how long it took, and how is he now? Thank you very much to help me. Lorainel
by kholmes on Sat Aug 14, 2010 04:13 PM
My brother is 28 years old. For the past two months he was been going back in forth to doctors trying to get a diagnosis. He originally went into the ER with an enlarged lymph node on his neck (the size of a baseball). It was so large they thought he had been hit hard by something. A CAT scan showed enlarged nodes throughout his neck. They found none in his lungs and sent him home with a doctor’s appointment. He was then given every blood test known to man (his blood work and white cell count came back good). He finally went into have a biopsy with a surgeon he looked at my brother and said I am 99% sure you do not have lymphoma, you have mono (my brother has enlarged lymph nodes in his groin and arm pits as well. My family breathed a sigh of relief, but something did not seem right. Matt's symptoms include fatigue and some night sweats. His personal doctor pushed for another test. The PET scan came back with nodes covering his abdomen. She called last week to tell him he has cancer. We are waiting for oncology to determine the next step. But, both of his biopsies have come back inconclusive. The next step is to remove a couple of nodes. I am of course devastated and have thought it was lymphoma from the start; the weird part was his age...however...he works on a dock and has been exposed to benzene. I can not eat or sleep and I am trying to remain positive, but because his spleen is involved I am afraid he as a rare lymphoma (hard to treat) like mantle lymphoma. Any advice?
by debraba on Sun Aug 22, 2010 07:51 AM
My husband is also in the process of being diagnosed. We also went to the ER because of an enlarged spleen. We were fist told it was b-cell lymphoma, a slow growing type that was stage III, then a week later it was possibly CLL. Bone marrow aspiration and biopsy were done, but it was not conclusive. His spleen is still about 4 times as large as it should be and continues to be painful. Splenectomy was recommended. Case taken to a review board; seems they are still undecided and still recommend splenectomy. How did they come to the diagnosis your husband got?
by justrachel on Sat Jan 15, 2011 06:02 PM
How large was the spleen? I went to the ER 12/14 with shoulder pain, abdomen pain... fullness... They said this:
The liver is enlarged. It measures 27 cm in length the spleen is enlarged and measures 19.2 cm in length. It demonstrates several abnormal low attenuation areas, the largest in the anterior spleen measuring 4.8 cm. It also demonstrates a lobulated contour. Contrast is seen within the kidneys from prior IV contrast administration. Patchy bibasal atelectasis is noted. Mass effect on the upper pole the left kidney by the spleen is demonstrated. Aorta shows no evidence of aneurysm. There is increased number of abnormal nodes in the abdomen at the root of mesentery in the periaortic and aortocaval regions no free fluid or free and perineal air is seen. Impression #1 hepatomegaly 2. Splenomegaly with abnormal low attenuation areas within the spleen and mass effect on the upper pole left kidney. 3. Abnormal mesenteric and retroperitoneal adenopathy with increased numbers of small lymph nodes present.
We have no insurance, they just sent me home with the CD... told me I needed to see my primary ASAP, within 3 days.... I have stayed home... Husband is between contracts and for now I am managing my pain... I think it might be something bad... do my results match up with any history you'all have? I have an appt on the 20th... my doctor said he would lower is private pay rate to see me... I just wonder what your particular results were so I can understand if I should be this worried...
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