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What Are Really The Survivor Time Limits

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Subject: What Are Really The Survivor Time Limits
Date: 03/28/2005
My husband was diagnosed with a solitary plasmacytoma in 2003. After undergoing radiation treatment things were going pretty well until January of 2005 when, after being examined for chronic back pain, new tumors were discovered in his spine. He is now undergoing thalidomide therapy which will be followed by intensive chemo and stem cell transplants. I feel that because of all the clinical information he reads on the internet he has already determined that he only has a couple of years left. I can't help but believe that this thought is causing him extreme anziety and not helping his treatment or eventual recovery from it. I am trying to be positive about the time he has and the ways in which to fight this cancer, but realize that I also have to be realistic about certain prognoses and ultimate eventualities, but I and my husband could use some positive feedback about multiple myeloma and remission durations. Mere
Subject: Re: What Are Really The Survivor Time Limits
Date: 03/29/2005
My father is the same way. Our whole family is confused about the survival rate...one site says less than 5 years, others don't say much at all. My dad is also taking thalidomine. He's currently going through radiation. Since he came out of the hospital two weeks ago, he's had severe back pain.
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William K.
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Subject: Survival Rate
Date: 06/23/2005
Hi,
June of 2003 my husband was diagnosed with mm. Our onc. said it was more than twice as bad as any case he had seen or heard of. My husband was given two to three days to live. Our two year visit the Dr. said "All I do is put numbers in a computer and it spits out a survival rate, But that computer doesn't know you. I have no crystal ball. you may just outlive the rest of us. I would definately be thinking 5 to 20 years."
My husband loss the use of his kidneys and is doing peritoneal dyalisis. He loves this and will never go back to clinical dialysis. We have a nephrologist who has been studying mm and kidney failure for 25 years and believes pd dialysis is responsible for my husbands health. He has not rached remission but we are optimistic.Willy also takes dexamethazone.
For the first year and a half my husband was skin and bones and we spent a good deal of our life at the emergency room and ICU. Right now he is working on remodeling our home and is also putting his motorcycle together. He says he no longer thinks about having cancer.I have read that in the next 5 to 10 years they will treat mm like diabetes. (still terminal but maintained.)Also they are experimenting with a dialisis machine that you wear on your belt and it works 24 hours a day.
Be positive you never know. And hope that technoledgy comes up with more answers. I which all the best. It's a hard, hard road
Subject: Get Off The Medicine
Date: 12/01/2005
i promise it is what killed my father he was in reminision for 15 years
focus on imunity prenvention
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