Small study showed high accuracy but hurdles remain, two experts said
by Cmms1950 on Wed Nov 14, 2007 12:00 AM
Regarding my watery eyes, saw my oncologist yesterday for check up (got the all clear again - yeah!!). Anyway, found out the RAI probably blocked a tear duct. Seeing an opthamologist tomorrow to take care of it. Finally, an answer! Not looking forward to the procedure, but at least no more drippy eyes!
by gary_o on Wed Nov 14, 2007 12:00 AM
by Margie32 on Wed Nov 14, 2007 12:00 AM
by Cmms1950 on Thu Nov 15, 2007 12:00 AM
Thanks, Margie, for your encouraging emails. I go today to the eye doc, and hopefully, get my eye taken care of!
Are you still having trouble with your salivary glands? Mine don't hurt as bad or often as they did, but once in a while, they become sensitive and hurt, when I'm eating.
by Beachmom on Thu Nov 15, 2007 12:00 AM
I had posted on another board about this...
I had tearing issues start up about 6 months out after 22mci of RAI. Along with complete salivary gland dysfunction, dry mouth...
I went to my local eye doctor for 3 months about the tearing and blockage....they did two procedures where a long syringe is inserted down the duct and they try and "flush" it out.....great results....lasted maybe 3 days......grr....
Many of the visits were becoming more about the infections that were setting in because the duct was so blocked. I had 3 rounds of Zpacks in one winter and it would clear them up only to have another round....
I found early on that one way to "clear" the duct is to use my finger and gently roll it upwards along the side of my nose closest to the corner of my eye and it sort of "expresses" the clear gunk out. This is neccesary quite a few times a day to help with the tearing. When that "gunk" goes from clear to milky/yellow/or greenish....infection.....
After that winter and so much trouble I was referred to a specialist. He told me he thought the whole thing was allergy related ( I have no allergies to speak of) and that it is also a common problem with young women along the East coast....WHAT?!?!? FYI.....before RAI......no eye problems......grr...
Sooo....I followed his advice and went through with a surgery to put a tube into the duct to try and fix the problem.
Here is what I heard BEFORE surgery:
" simply procedure, out patient, that will have minimal recovery and a few weeks later we take the tube out and it will have formed the duct open again and the tears will drain"
Here is what REALLY HAPPENED to me...
It was major surgery, I was completely put under in MUSC, and was wheeled out to my car with husband before I was coherent enough to have heard any instructions or anything. Came home and was bleeding out of my nose and mouth for 2 days. Horrid sinus type pain that even prescr. pain meds wasn't helping. Called nurses down there. They said all that was "to be expected"!! Also when I questioned the tube rubbing on my eye and very irritating she said..."it will eventually not bother you like that....after a few weeks the eye gets used to it".....WHAT?!? When I asked about how long the tube would be there.....she said at least 2 months.....hmmm......not what he had said.
Long story short....it was 4 months later, still tearing around the tube, and then even getting the gunk coming out around the tube that I had had it!
I asked the doc to get it out ASAP! He was NOT happy but he was also telling me I needed 2 more months with the thing in and I think because he wasn't seeing the results he was used to at all....
Did I ask if he felt I was a different situation because it might be RAI related? YES
Did he say it might be related? ABSOLUTELY NOT......yeah......
The point of all this....seriously consider the surgery before rushing in....here we are in winter again, the colder and dryer air really making my eyes tear up a storm, the gunk is still coming out and I await yet another infection since it is back to that time of year......
Anyone feel that the RAI mutates cells that are then not behaving the same and that it affecting cells that change more rapidly like mucusy tissue (salivary, submandibulay, etc) causing the problems?
Boy, can you tell I have a lot of feelings on these issues.....???
by Beachmom on Fri Nov 16, 2007 12:00 AM
Just came back to see if you saw my message and noticed a typo! I had 200mci of RAI NOT 22mci like it reads.....geesh.......
I wish this board had an option to edit messages?
I always think of other things to say...or see a typo.....
Oh well....I am new in these parts... :~)
by LauraS on Fri Nov 23, 2007 12:00 AM
FINALLY! OMG, I can't tell you how happy I am to find this post. I am a year out from RAI - but over the last 3 months, my right eye has started to run like a faucet. The eye doc said "my tear duct could be stuck open". Big help, not so much. My only option is to go see a specialist and maybe he can perform surgery to fix it. I don't think I want to now that I read your post. I've not had your infections, just annoying comments like "don't cry, it'll be okay". GRRRRR.
Also, I'm totally with you on the change in salivary glands. I can't eat dry type of foods any more because I just don't produce enough saliva to swallow them down. Incredibly annoying to me, because I never know when I have to excuse myself to the bathroom to spit out the mouthful of cement in my mouth. This struck immediately after RAI, and I'm still figuring out what I can and can't have.
Good luck with your eyes - I wish you a no-infection New Year.
When you track a discussion, you will get notified by e-mail if anyone else posts a new message on this discussion. Are you sure you want to track this discussion?
If you stop tracking this discussion, you will no longer get notified by e-mail if anyone else posts a new message on this discussion. Are you sure you want to stop tracking this discussion?
We care about your feedback. Let us know how we can improve your CancerCompass experience.