One patient with glioblastoma still alive nine years later
by Elona on Thu Aug 16, 2007 12:00 AM
I cant tell you what i felt when i read your message.
This is my first time in this site and is really good, my dad is diagnosed with NSCLC and the shipment of tarceva is coming tomorrow at no cost to him from Genetech so that was great news.
Reading that you have been with NSCLC for 10 years is good news to me i hope happens to my dad too, he is 69 and i hope lives a long life, even though the doct dont seem to think so, he did good after radiation has shrunk a lot, but he has in on the spine so that worries them, but for now is inactive.
I dont know i keep hoping he will live long time with that.
I wish you the best and keep your spirit up
Thank you to you all and God Bless you all
by MaryeT on Thu Aug 30, 2007 12:00 AM
My 91 year old Mother has been on Tarceva for the past year and is doing extreemly well. Her side effects have been minimal, mostly the skin rash (like measles) followed by dry flakiness. On rare occasions she has mild diarrhea, very, very infrequent nausea and no vomiting iat all. She has had some thinning of her hair, but no outright hair loss. Her quality of life has returned, her tummor markers are back to normal range, and on her CT/PET scans, the tumors are no longer visable. So Tarceva is a real "winner" in our book !!
Last August, Mom was diagnosed w/ cancer that had metastasized to her liver and bone (spine, ribs, etc) and was given little hope for surivval beyound 3 months (if that). Despite two biopsies of the original lesion in her lung, they weren't able to get enough tissue to determine the cell type. She is a survivor (8years) of colorectal cancer. So the picture was mixed re: whether this was a recurrence of her colorectal cancer or primary lung cancer that had spread..
In any case she was begun on Tarceva 100 mg. daily last August and her response has been nothing less than "miraculous." Within the first month her temperature returned to normal. Within the first 6 weeks her bone pain deminished and then left entirely. Her tumor marker began declining about the 3rd month and has returned to normal levels at her last appt. in July. She has regained her strength, energy and appetite (enough to return to her volunteer work and sociall activities).
Genentech was wonderful in assigning her a "care manager" who coordinated her insurance benefits so that our monthly costs are minimal.
So please tell your grandmother, that if she is inclined to give this medication a try, it may prove to be very helpful. I wish you both the very best.
by classical on Thu Sep 06, 2007 12:00 AM
On 3/30/2005 Brendals wrote:My 93-yr-old grandmother is soon to start Tarceva. I have appreciated this message board so much because it's the only place we've been able to get any real information. She is using the postings to have a meaningful discussion with her doctor next week. She's down to 80 lbs and has real misgivings about starting Tarceva due to the associated diarrhea. But the consensus is that she might as well try it. She can always stop. Several postings have mentioned reducing the dose from 150 mg to 100 mg or 50 mg, so she's wondering how the dose is reduced. Her question is: what form does Tarceva come in? Pills? Liquid? Brenda
Tarceva comes as a pill, in 150 or 100 mg as prescribed by your oncologist, whom you or your grandmother should talk to if she wants a reduced amount. The pill itself doesn't seem amenable to splitting, and I wouldn't try it.
On 4/19/2005 Leslie wrote:Sorry. I'm not responding directly, but I haven't figured out how to post a new message. My husband has been on Tarceva for four weeks. He is experiencing nausea and fatigue. We are trying to decide when he should get a scan to see if it is helping. Our thinking is to wait until he is on it for two months. Does anyone have specific information about this? Thanks.
On 4/18/2005 Drmort wrote:My wife will be starting on Tarceva. Medicare doesn't seem to pay for it as it had for her previous chemo drugs. Has anyone had experience with getting Tarceva at a reduced cost?
by joecool1967 on Wed Oct 03, 2007 12:00 AM
by Oceanview on Fri Oct 12, 2007 12:00 AM
by dwighth on Thu Oct 25, 2007 12:00 AM
On 8/16/2007 Elona wrote:Hi,I cant tell you what i felt when i read your message.This is my first time in this site and is really good, my dad is diagnosed with NSCLC and the shipment of tarceva is coming tomorrow at no cost to him from Genetech so that was great news.Reading that you have been with NSCLC for 10 years is good news to me i hope happens to my dad too, he is 69 and i hope lives a long life, even though the doct dont seem to think so, he did good after radiation has shrunk a lot, but he has in on the spine so that worries them, but for now is inactive.I dont know i keep hoping he will live long time with that.I wish you the best and keep your spirit upThank you to you all and God Bless you all
Your message was very inspiring to me. I was diagnosed with stage 3b in January 2007 having had 26 treatments with a trial drug Erbutux, 7 weeks 5 days a week radiation and 3 chemo treatments. With all this you wonder what's next. Currently I'm on Tarceva and dealing with the rash, but if it means life I will tolerate it. My last pet scan on 10/22/07 showed no active cancer and the lung tumor is shrinking. Your having been with NSCLC for 10 years is great news to me and I sure wish you continued success.
by joicie on Sun Nov 11, 2007 12:00 AM
by pat61162 on Fri Feb 08, 2008 12:00 AM
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