Torisel And Swelling Lips

Hi, my Mom has had three treatments of Torisel for metastatic renal cell cancer (Stage IV).  She has tolerated this well, but for the last couple of days her lips have been very swollen.  She is the first patient to have this treatment locally so I am trying to find out if this is a symptom that other patients have experienced.  If anyone out there has experienced this, what did you do (if anything) for this symptom besides benadryl?  And, with this symptom, did this require a change in dosage of the Torisel?

Any information would be so appreciated.  Thanks.

On 11/17/2007 gabbyla wrote:

Hi, my Mom has had three treatments of Torisel for metastatic renal cell cancer (Stage IV).  She has tolerated this well, but for the last couple of days her lips have been very swollen.  She is the first patient to have this treatment locally so I am trying to find out if this is a symptom that other patients have experienced.  If anyone out there has experienced this, what did you do (if anything) for this symptom besides benadryl?  And, with this symptom, did this require a change in dosage of the Torisel?

Any information would be so appreciated.  Thanks.

Hi there my husband hasstage 4 rcc andhas done 5cycles of sutent--had to stop for 3 months because it weakened his heart--he tried Nexavar another new chemo pill for rcc and he had an allergic reaction so he has gone back to sutent --25mg and is in his last week of the 2nd cycle--torisel is his next option--we are part of a group of rcc survivors and fighters who have a daily newletter put together by a beautiful lady called Mary and it has helped us to dialogue with many others who are taking these nes drugs and she has i think 3  or 4 people who are on torisel--it is so new and they may be able to help you  understand  and help you deal with it I don't think they let me give the email address here but you can email me privately and i will give it to you --we have hope with rcc a year ago or so there was nothing so we are hopeful and positive hope this helps and may god bless--Peace, Sue