Myelofibrosis

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RE: familial links etc..

by dalt1 on Sun Jun 10, 2012 09:54 AM

Quote | Reply

On Jun 10, 2012 7:20 AM AllGoodWays wrote:

Hi,

Is this fatigue as well? On Friday I completely messed up my teaching schedule. It was half term and I expected only those who said they were coming. I rearranged my schedule to include others. So two normal time students appeared which conflicted now with some extra lessons I had agreed to. At one point I had three sets of parents and children in the room at the same time, and was expecting another student (who fortunately got lost and was half an hour late).

I mentioned that I thought I either needed to hide or to grovel. I decided to grovel and. amazingly somehow only one 12 year old student had to take a holiday. Curiously she didn't look too miserable about it!!?

Oh well, I had two days off after that and arranged A Nightingale Sang in Berkeley Square for String Quartet.

Meanwhile, back to business. Has anyone seen this Mercola article and interview about Dr. Burzynski and his amazing success with incurable cancer? It seems some lobbying is needed to allow him to use his methods!

http://articles.mercola.com/sites/articles/archive/2011/05/2 1/drs-stanislaw-and-gregory-burzynski-on-cancer.aspx"" target="_blank" rel="nofollow">http://articles.mercola.com/sites/articles/archive/2011/05/2 target="_blank" rel="nofollow">http://articles.mercola.com/sites/articles/archive/2011/05/2

Best wishes,

Roger

Any drug or natural cure that the Giant US Pharmas don't control, threatens their livelyhood. This includes vitamin c, Selenium and apricot kernals, etc., etc. It was interesting to note Mercola's comment:

'Amazingly, this legal fight dragged on for 14 years! It's hard to imagine anyone making it through such an ordeal. Most people don't. As for the cost, Dr. Burzynski describes it as "tremendous." After factoring in the actual legal expenses and the lost revenue, the tally comes to about $3 million.

In addition, the FDA and Federal government allegedly spent about $60 million on the litigation alone—just to appropriate his patents for a pharmaceutical company! The pharmaceutical company in question eventually went bankrupt after Dr. Burzynski won the case. According to Dr. Burzynski, the full story will be detailed in an upcoming documentary."

I look forward to the upcoming full story. However, it isn't just the FDA and the Giant Pharmas that are guilty, the medical establishment also suffer from a 'Emu Effect' (head in the sand). This NZ 60 minutes article will enlighten those who don't seem to think that natural cures will cure their MF and just blunder on with toxic drugs - 

RE: blood smears and what they mean

by runningmermaid on Sun Jun 10, 2012 02:08 PM

Quote | Reply

Hi John 

I love Cedar Key and Atsenie Otie. When I lived in GNV, it was only a 45 minute drive to take my kayak over to circumnavigate Atsenie Otie (and then stop to walk around, it is so beautiful there). Then off for she-crab chowder at Frog's. ~drool~ 

I'm so sorry to hear that your visit to Cedar Key ended with a tick bite and more so to hear that you've become ill as a result. Take care John. 

Becca

how to keep up

by runningmermaid on Sun Jun 10, 2012 02:10 PM

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Roger

I neglected to tell you that you can mark the box that says 'track conversation' and click the box at the bottom that says 'notify me when someone replies to this discussion and the forum will send you an email when someone posts a reply. It is the only way I keep up, though now and again - I still miss responses. 

Becca

RE: familial links etc..

by rockytimer on Sun Jun 10, 2012 02:15 PM

Quote | Reply

On Jun 10, 2012 9:54 AM dalt1 wrote:

On Jun 10, 2012 7:20 AM AllGoodWays wrote:

Hi,

Is this fatigue as well? On Friday I completely messed up my teaching schedule. It was half term and I expected only those who said they were coming. I rearranged my schedule to include others. So two normal time students appeared which conflicted now with some extra lessons I had agreed to. At one point I had three sets of parents and children in the room at the same time, and was expecting another student (who fortunately got lost and was half an hour late).

I mentioned that I thought I either needed to hide or to grovel. I decided to grovel and. amazingly somehow only one 12 year old student had to take a holiday. Curiously she didn't look too miserable about it!!?

Oh well, I had two days off after that and arranged A Nightingale Sang in Berkeley Square for String Quartet.

Meanwhile, back to business. Has anyone seen this Mercola article and interview about Dr. Burzynski and his amazing success with incurable cancer? It seems some lobbying is needed to allow him to use his methods!

http://articles.mercola.com/sites/articles/archive/2011/05/2 "" target="_blank" rel="nofollow">http://articles.mercola.com/sites/articles/archive/2011/05/2 target="_blank" rel="nofollow">http://articles.mercola.com/sites/articles/archive/2011/05/2 "" target="_blank" rel="nofollow">http://articles.mercola.com/sites/articles/archive/2011/05/2 "" target="_blank" rel="nofollow">http://articles.mercola.com/sites/articles/archive/2011/05/2 target="_blank" rel="nofollow">http://articles.mercola.com/sites/articles/archive/2011/05/2 target="_blank" rel="nofollow">http://articles.mercola.com/sites/articles/archive/2011/05/2 "" target="_blank" rel="nofollow">http://articles.mercola.com/sites/articles/archive/2011/05/2 target="_blank" rel="nofollow">http://articles.mercola.com/sites/articles/archive/2011/05/2 "" target="_blank" rel="nofollow">http://articles.mercola.com/sites/articles/archive/2011/05/2 "" target="_blank" rel="nofollow">http://articles.mercola.com/sites/articles/archive/2011/05/2 target="_blank" rel="nofollow">http://articles.mercola.com/sites/articles/archive/2011/05/2 "" target="_blank" rel="nofollow">http://articles.mercola.com/sites/articles/archive/2011/05/2 "" target="_blank" rel="nofollow">http://articles.mercola.com/sites/articles/archive/2011/05/2 target="_blank" rel="nofollow">http://articles.mercola.com/sites/articles/archive/2011/05/2 target="_blank" rel="nofollow">http://articles.mercola.com/sites/articles/archive/2011/05/2 "" target="_blank" rel="nofollow">http://articles.mercola.com/sites/articles/archive/2011/05/2 target="_blank" rel="nofollow">http://articles.mercola.com/sites/articles/archive/2011/05/2 target="_blank" rel="nofollow">http://articles.mercola.com/sites/articles/archive/2011/05/2 "" target="_blank" rel="nofollow">http://articles.mercola.com/sites/articles/archive/2011/05/2 target="_blank" rel="nofollow">http://articles.mercola.com/sites/articles/archive/2011/05/2 "" target="_blank" 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Best wishes,

Roger

Any drug or natural cure that the Giant US Pharmas don't control, threatens their livelyhood. This includes vitamin c, Selenium and apricot kernals, etc., etc. It was interesting to note Mercola's comment:

'Amazingly, this legal fight dragged on for 14 years! It's hard to imagine anyone making it through such an ordeal. Most people don't. As for the cost, Dr. Burzynski describes it as "tremendous." After factoring in the actual legal expenses and the lost revenue, the tally comes to about $3 million.

In addition, the FDA and Federal government allegedly spent about $60 million on the litigation alone—just to appropriate his patents for a pharmaceutical company! The pharmaceutical company in question eventually went bankrupt after Dr. Burzynski won the case. According to Dr. Burzynski, the full story will be detailed in an upcoming documentary."

I look forward to the upcoming full story. However, it isn't just the FDA and the Giant Pharmas that are guilty, the medical establishment also suffer from a 'Emu Effect' (head in the sand). This NZ 60 minutes article will enlighten those who don't seem to think that natural cures will cure their MF and just blunder on with toxic drugs - 

Dalt1,  thank you for the link to the video on the vitamin c treatment example from NZ.   I hope everyone watches it.  John

ps There is already a documentary out on Dr. Burzynsk.   I've seen it,  I think on Netflix.

RE: blood smears and what they mean

by rockytimer on Sun Jun 10, 2012 02:32 PM

Quote | Reply

On Jun 10, 2012 2:08 PM runningmermaid wrote:

Hi John 

I love Cedar Key and Atsenie Otie. When I lived in GNV, it was only a 45 minute drive to take my kayak over to circumnavigate Atsenie Otie (and then stop to walk around, it is so beautiful there). Then off for she-crab chowder at Frog's. ~drool~ 

I'm so sorry to hear that your visit to Cedar Key ended with a tick bite and more so to hear that you've become ill as a result. Take care John. 

Becca

Wow,  I also have done the kayak run out to and around Atsenie Otie,  and explored the old ruins on the island.   Did you know Ticonderoga pencils used to have cedar wood from a mill on that island?  Had to run back to the Gulf and dive in to get away from the mosquitos though,  they were as thick as a cloud.   Frogs is still there,  but I think it has been renamed. Have you ever been to Shell Mound,  on the road to Fowlers Bluff?  That is now my favorite kayak launch site,  and also has an incredible hiking trail.

Thanks for your concern.   I am MUCH recovered.  Now can't wait to get OFF tetracyclene.   John 

RE: blood smears and what they mean

by runningmermaid on Sun Jun 10, 2012 03:20 PM

Quote | Reply

YES! I have friends who are rangers in park service and told me the story about the pencil mill!! That island has such a neat history (if anyone else lives close enough to go there - and you have NOT yet been - you need to go to Cedar Key and go visit Atsenia Otie).  I also enjoyed the story about how the people floated their houses back to the mainland following the hurricane and many of the same homes can be found in Cedar Key right along the shoreline. I find that amazing. 

The mosquitos on Atsenia Otie CAN carry a person off!  

Have you ever had the opportunity to make it out to Seahorse Key (which is now a rookery and part of the Cedar Key National Wildlife Refuge) http://www.biology.ufl.edu/shkml/about/about.htm

VERY long, hard paddle and they are not often open to the public, but it is quite interesting to visit when they are - they also ferry people over - which is by far the easiest option. I've almost gotten lost in the fog on the way over on more than one occassion trying to paddle the distance. 

I have been ALL over that place - so Shell Mound was another favorite place! Great there too, but one has to keep an eye on the tide chart!

I've through paddled the Suwannee River from Fargo GA to the town of Suwannee several times, but my first trip was all the way to Cedar Key. I stopped at Fowler's Bluff and hung out listening to stories of when one of the treasure hunting people brought gear in, built coffer dams and pulled up pirate treasure just outside the bar there on the river. 

Paddling ANYwhere on the Suwannee is so incredibly beautiful. Have you ever dropped in the Suwannee at White Springs and paddled downstream to Spirit of the Suwannee? The water tumbles over a set of series of small shoals downstream of White Springs, meanders through the woods a short distance and suddenly high limestone bluffs appear. They alternate left bank, right bank. It is such a wonderful spot to camp. I would camp on the sandy shore, at night, I would paddle to the limestone wall and place tea lights into the nooks and light them. At night, there would be sounds of owls calling to one another, the water running, and my candle light dancing upon the Suwannee River. When the music festival is happening in White Springs - it is hard to get a camp site but the music can be heard off and on as one paddles down stream and if lucky enough to find one in amongst the limestone bluffs. Then make camp, light some candles and sette in to listen to folk and river music by candle light. What could be better?

And 

Becca

RE: familial links etc..

by runningmermaid on Sun Jun 10, 2012 03:47 PM

Quote | Reply

On Jun 10, 2012 7:20 AM AllGoodWays wrote:

Hi,

Is this fatigue as well? On Friday I completely messed up my teaching schedule. It was half term and I expected only those who said they were coming. I rearranged my schedule to include others. So two normal time students appeared which conflicted now with some extra lessons I had agreed to. At one point I had three sets of parents and children in the room at the same time, and was expecting another student (who fortunately got lost and was half an hour late).

I mentioned that I thought I either needed to hide or to grovel. I decided to grovel and. amazingly somehow only one 12 year old student had to take a holiday. Curiously she didn't look too miserable about it!!?

Oh well, I had two days off after that and arranged A Nightingale Sang in Berkeley Square for String Quartet.

Meanwhile, back to business. Has anyone seen this Mercola article and interview about Dr. Burzynski and his amazing success with incurable cancer? It seems some lobbying is needed to allow him to use his methods!

http://articles.mercola.com/sites/articles/archive/2011/05/2 1/drs-stanislaw-and-gregory-burzynski-on-cancer.aspx"" target="_blank" rel="nofollow">http://articles.mercola.com/sites/articles/archive/2011/05/2 target="_blank" rel="nofollow">http://articles.mercola.com/sites/articles/archive/2011/05/2

Best wishes,

Roger

Hi Roger

Oh my what a schedule! It's amazing how wells groveling works instead of heartfelt apologies. Too funny about the student needing to take holiday! ha! 

I can't wait to get home to see if your CD arrived.   

Becca

RE: how to keep up

by AllGoodWays on Sun Jun 10, 2012 04:28 PM

Quote | Reply

Becca,

Thanks, I had got that far, but I am imagining there is information being posted of which I have no knowledge but which could be valuable. Also some of the articles which I find and see as being valuable I would like to spread further. I have accessed the research page on Cancer Compass just today and copied some out in case it will be useful.

However, I am still puzzling - of course - over the relationship between myelofibrosis and cancer. There appear to be any number of alternative cancer cure claims, many of which I am sure are genuine.

Meanwhile, I am still working on several fronts:

cause... e.g. radiation... so I gave in and bought a Q-Link - or chemical polution... I downloaded a book from HSI (Health Sciences Institute) which talks about many of these and gives solutions, but I haven't had time to read it all yet/ or just use vinegar to clean everything);

Continuing cause? One may only be able to guess if the cause is still happening of course, but one might as well presume so;

Inherent weaknesseswhich may predispose one to such effects e.g. improve Immunity System with such foods as spirulina and nourishing foods related to metabolic typing, organic lots of raw foods - possibly even juice fasting.

Andsolutionsto each of these. e.g. get rid of heavy metals using for example chlorella.

Then there are completehealth actionslike body organ cleansing (I have found several sites about this) andregimessuch as Gerson which may do the job for you.

Any thoughts?

Roger

RE: familial links etc..

by AllGoodWays on Sun Jun 10, 2012 05:01 PM

Quote | Reply

I cerainly did watch the video of the amazing cure of both swine flu and leukemia using high dose vitamin C on:

http://www.3knews.co.nz/Living-Proof/tabid/371/articleID/171

I am just looking online to see how I can purchase some - it is being annoyingly slow...

Roger

RE: familial links etc..

by AllGoodWays on Sun Jun 10, 2012 05:03 PM

Quote | Reply

Becca,

I couldn't post it before Wednesday last because of the Jubilee holiday.

But it is in the post. Hope you enjoy it.

Best wishes,

Roger

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