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PLEASE NEED HELP!! It may only be days!

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Subject: RE: PLEASE NEED HELP!! It may only be days!
Date: 02/05/2008
I was so sorry to here about your sister-in law.  My dad was diagnosis in Feb of 07.  He had surgery to remove the tumor  and was told he was in remission.  Well in October he was told that the cancer has returned(Small spots).  He was placed on Nexavar and seemed to be doing well.  He had radiation on Jan 17,2008 (SIRT90).  The radiologist told us everything looks great and the spots should shrink even more.  Well last week he began suffering form stomach pains. we called the oncologist all week and NO ONE CALLED US BACK!!!!! well we rushed him to the hospital on Saturday(Mount SINAI).  After 12 hours in the ER they admitted him and told us they were going to drain the liver because his bile duct is blocked from a tumor.  On Monday we were told that they were not going to drain the liver and he was given "the speech"  about enjoying the remainder of his days.  They were going to try to keep him comfortable.  What is so upsetting is the oncologist still hasn't called us back and sent one of his assoicates to speak to him.  WHAT HAPPENED TO COMPASSION!!!!!  my heart is aching because my Dad is my best friend and a wonderful father. grandfather, and husband.  I will never be able to forget his face when they told him there was nothing they can do.  Why did they have him do the radiation two weeks age and give us false hope.  Has anyone experienced the jaundice.  He is not in pain and actually is functioning.  He is heart broken.  Thank you for listening.
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Subject: RE: PLEASE NEED HELP!! It may only be days!
Date: 02/05/2008

My deepest condolences. I really feel for you. I know how hard it is and can be after 12 years from losing my Stepdad to brain cancer. Cancer, no matter what type or stage is awful. Memories continue, the grief slowly fades. Our love dones are alive in our minds, hearts, our children, family, and friends.

Doctors really need to learn compassion and at the same time, have courage. I know it must not be easy to look a patient in the face , all the while they want encouraging news, and tell them they are not going to beat their disease. But, they are put in that position and need to understand that sometimes false hope is more damaging that the truth, Because ultimatley, it becomes QUALITY of life vs. QUANTITY of life. My Biologial Dad is facing that decision right now. He often waivers how he feels, and he has every right to, but in the end the Doctor said that his Hodgkin's Lymphoma is not curable. I couldn't bear to lose my Dad, BUT I also know from the past that only our loved ones know how they feel and what they privately suffer. I know I want my dad to live forever, but I also know that I don't want him to suffer. It is so hard...for everyone involved.

Subject: RE: PLEASE NEED HELP!! It may only be days!
Date: 02/05/2008
Thank yoi for the encouraging words. 
Subject: RE: PLEASE NEED HELP!! It may only be days!
Date: 02/05/2008

my dad has liver cancer too. the doctors have said that all they can do for us now is keep him comfortable. things are hard and to top it all me and my mother are always fighting. all i want to do is spend time with him and show him how much i love him but sometimes we're both too depressed and sometimes he is in too much pain. pain management is tricky, watch out for it. try to get painkillers that arent too drowsy.

we're going to tijuana tomorrow to try some alternative treatments. a part  of me really wants to do that but another pat of me is angry that my parents want to go, angry at the clinic because it all might be a scam so that a few people can earn a quick buck. hoping and being let down again seems infinitely harder than accepting and loving and spending time together.

but how can i be angry at my dad for wanting to live? for wanting to explore all bases?

these kind of situations are horrifically hard and all my best wishes go out to you.

if you would like any information on alternative treatments/alternative treatment centres please let me know.

Also maybe your dad shold look into milk thistle supplements?

Subject: RE: PLEASE NEED HELP!! It may only be days!
Date: 02/05/2008
I wish you all the best. for all its hard moments these situations have their infinitely special moments too. and our bodies may fail us but we are not our bdies. we are infinite. i know that my dad is not going to end with his body. just because i wont be able to touch him does not mean he is not going to be with me forever,
Subject: RE: PLEASE NEED HELP!! It may only be days!
Date: 02/05/2008
I am sorry to hear about your Dad,  It is by far the hardest thing on a daughter,  My mom is still in denial and wants him to act like his old self.  He has great days and some horrible days.  He hasn;t started on the pain meds because he says he can handle the pain.  I know it is all a matter of time before he can't take the pain.  What hurts the most is to see him so depressed because we always just laughed and he always enjoyed life to the fullest.  My prayers ares are with you and your family.  My sister in law is looking into the supplements.  Thanks
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