What happens after radiation?

10 Posts | Page(s): 1 

What happens after radiation?

by Be_Positive on Thu Nov 29, 2007 12:00 AM

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Dad (age 77) was dx 9/2007 with GBM 4.

His radiation is due to end on Dec 4. He has been pretty healthy and energetic until about 2/3 of the way thru the radiation. 

Will his energy level increase? or am I being too optomistic.

I am an eternal optomist, looking for some feel good thoughts.  Let me hear you out there!

 

RE: What happens after radiation?

by lablady on Thu Nov 29, 2007 12:00 AM

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It is ok to be optimistic but with brain tumours you have to be realistic.

My hubby, as I stated in your other post, was dx July this year.We were told by the neurosurgeon that we may get 2-10 years after hubby agreed to treatment the radioligist comes along and tells us he has 14 months. Of course they always say this is averages everyone responds differently.Well here we are 5 months later my husband is almost dead luckily we have put things in order because if we had left things any later it would have been to late. He has lost his ability to think rationally and just talks jibberish, he also has hallucinations and anything he was to sign now would probably not be legal.

 Two months post-radiation he has regained some energy but prior to this was sleeping 16-20 hours a day. We have lost a lot of valuable time I hope it is not the same with your father.

RE: What happens after radiation?

by johnnyd on Thu Nov 29, 2007 12:00 AM

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On 11/29/2007 Be Positive wrote:

Dad (age 77) was dx 9/2007 with GBM 4.

His radiation is due to end on Dec 4. He has been pretty healthy and energetic until about 2/3 of the way thru the radiation. 

Will his energy level increase? or am I being too optomistic.

I am an eternal optomist, looking for some feel good thoughts.  Let me hear you out there!

 


RE: What happens after radiation?

by Houston_Wife on Thu Nov 29, 2007 12:00 AM

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I was 61 when I was operated on and they could only take 70% of the tumor.  I did not have any problems with the radiation and the surgeon told me I would have 3-5 months.  I turn 62 in 4 days and will have my first anniversary Feb 13, 08.  I have problems with Chemo sapping my strength for 2-3 days after treatment.  I take 350 mg 5 days out 28.  I just thank God every night for the day I just had.  Give it a chance, rest is important and if you can get him to eat it will help.

God Bless!

John Manteris

RE: What happens after radiation?

by hotanna30 on Thu Nov 29, 2007 12:00 AM

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On 11/29/2007 Be Positive wrote:

Dad (age 77) was dx 9/2007 with GBM 4.

His radiation is due to end on Dec 4. He has been pretty healthy and energetic until about 2/3 of the way thru the radiation. 

Will his energy level increase? or am I being too optomistic.

I am an eternal optomist, looking for some feel good thoughts.  Let me hear you out there!

 


I was 33 when I found out I had a brain tumor.  My son was 6 weeks old when I had my surgery.  I previously had 2 more children.  I had a olygodendroglioma on the right side of my frontal head.  It was a 1/2 when they removed it.  Later that year my doctor in October ask me if I am having headaches again, I said "no."  Before x-mas came my headaches came back, me & my dad went to Mayo Clinic & saw 2 doctors. One said have the surgery and one said don't do it.  I am normally a size 4, steroids where the only thing that helped me.  I was a size 14.  When we got back I had my 2nd surgery at University of Chicago.  Exactly 13 months later.  I had the radiation, i was suppose to have 36 but on my 30th treatment, I received a fever of 105*, I was immiatly brought to the hospial where I stayed for 4 days.  iI lost my hair during my radiation, not during surgery.  My doctor told me that that was the best surgery ever.  Meaning that my 1st surgery stunk!! That's how I took IT. My memory is fine for things that happened a long time ago, but my memory now is not that good.  I must thank God that I survived my crisis, I didn't know what would of happened to my children.  I see my onocologist 1st every 3 mons. and now every 6 mons.  Have patients w/your father because it is not that easy to go through.  Thank you so much, Anna Marchi

RE: What happens after radiation?

by hotanna30 on Thu Nov 29, 2007 12:00 AM

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On 11/29/2007 Houston Wife wrote:

I was 61 when I was operated on and they could only take 70% of the tumor.  I did not have any problems with the radiation and the surgeon told me I would have 3-5 months.  I turn 62 in 4 days and will have my first anniversary Feb 13, 08.  I have problems with Chemo sapping my strength for 2-3 days after treatment.  I take 350 mg 5 days out 28.  I just thank God every night for the day I just had.  Give it a chance, rest is important and if you can get him to eat it will help.

God Bless!

John Manteris


Dear John,

I had a brain tumor when I was 33 yrs old.  My son was 6 weeks old.  I already have 2 other children.  The tumor I had was an olygodendroglimoma, the 1st surgery it was a 1/2 the 2nd surgery it was a 4.  I had to live for my children, and my complete family.. The day I had my 1st surgery my whole family was absolutly histerical, they where crying sooo horribly.  I came throught it!! But exactly 13 months later I had another surgery, but not with the same surgeon I had it at University of Chicago. Me and my family drove to Mayo clinic and talked to 2 doctors.  One said do nothing and one said do whatever your onocologist says.  I am usually a size 4, I was a size 14, the only thing that would help me was streroids.  I thank God everyday that this surgery helped me, I could not leave my children alone w/ just my husband.  Thank God for you and your help, I will pray for you John.  Thank you, Anna Marchi

RE: What happens after radiation?

by Brandoncg on Thu Nov 29, 2007 12:00 AM

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My wife (32 yrs) had the full 6 week IMRT radiation therapy and mostly it really just zapped her energy levels, to the point where she could not work and slept most of the day and night. Once they were finished, about a month after, I would say her energy levels were back around 60%. By 2 months, about 80%. Recently they adjusted down her Keppra (which was very very high) and she is showing much more clarity and energy, apx 90%. She works and has no noticeable deficits. If it wasn't for lots of healing complications and fluid collection issues, I think she would be near 100% energy again. This is all on top of her surgery in Feb, etc. Of course her complications kept her from starting her 5/23 Temodar therapy for months, which also helped her rebound from radiation faster (or so I believe) which she is now doing, and during those weeks she is more tired. My wife firmly believes there is no more tumor, and once she is completely healed, she should be much more herself again. She has a very positive attitude and that works to her advantage I believe.

RE: What happens after radiation?

by tranquillity on Thu Nov 29, 2007 12:00 AM

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Brandon...

Sounds like your wife is doing well and her energy level sounds great!  Her good surgery result, radiation and Temodar are all great and yes your energy level does have it's ups and downs.  But, also equally her great attituded will make all the difference in the world.

Tell your wife to keep her spirit and goals high.

And, how are you doing as her caregiver?  Take care of yourself, she needs you well.

Brandon, take care.

You both are in my prayers.

Tranquillity (Diane) - 7/2005 GBM patient 

 

RE: What happens after radiation?

by bpanc on Thu Nov 29, 2007 12:00 AM

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Yes, I think your Dad's energy level should increase slowly after he finishes radiation.   In our experience, radiation is really tough on people.  You do have to realize that your Dad's age may be against him somewhat.  Generally with this disease, the younger the patient, the better they tolerate the treatment and overall have better outcomes.  There are always exceptions to every rule, though! 

My husband is 66 and has been battling GBM IV (inoperable) since April.

Good luck to you and your family.

Barb

RE: What happens after radiation?

by Be_Positive on Fri Nov 30, 2007 12:00 AM

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Thank You! Everybody for your replies.  I truly believe that there is more good information floating around this website than anywhere else I have found in this whole process.  Just knowing that you all have had experiences that mirror mine as a caregiver and dad's as a patient gives me great comfort.

Some people ask me how I can carry on with so much going on with my parents.  My reply (and I think this is the key) is always "I can only control one thing for certain "My attitude"

God bless you all and thanks for being there!

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