Advice

Hello:

 I have been having symptoms very similar to the ones associated with Bile Duct Cancer, but am unsure about what to think:

1.  I have itching, jaundice, have experienced swelling in my legs, loss of appetite (sick whenever I eat almost anything), and really dark urine.  

Based on what you folks know, would you say I have bile duct cancer?  If I do have bile duct cancer, I don't want to put my family through what sounds like 95% failure in treatment.  I don't consider the 5% change I would live sufficient justification for the pain caused to them.  I guess I know where I'm going if I pass on.  I go in for a CT scan on Monday - just curious as to your thoughts on whether I have bile duct cancer - please don't commend on my willingness to receive treatment - in that I am firm.  

Thanks very much. 

On 11/30/2007 mbent wrote:

Hello:

 I have been having symptoms very similar to the ones associated with Bile Duct Cancer, but am unsure about what to think:

1.  I have itching, jaundice, have experienced swelling in my legs, loss of appetite (sick whenever I eat almost anything), and really dark urine.  

Based on what you folks know, would you say I have bile duct cancer?  If I do have bile duct cancer, I don't want to put my family through what sounds like 95% failure in treatment.  I don't consider the 5% change I would live sufficient justification for the pain caused to them.  I guess I know where I'm going if I pass on.  I go in for a CT scan on Monday - just curious as to your thoughts on whether I have bile duct cancer - please don't commend on my willingness to receive treatment - in that I am firm.  

Thanks very much. 

Hi,

Your message sounds so lonely to me. If this is about bileduct cancer, you should not go alone through this. Please keep in mind that there are people around you who love you and they want to share this with you. Not because they have to, but because they want to.

My, through all his live so healthy and sportive, young looking husband (we both are 61) has been diagnosed with this cancer in May. Surgery was tried, but broken off. The liver and the gallways are too badly infected to perform surgery and there was a metastase. From the beginning of this awful discovery we very openly spoke to family and friends. And got so many warm and loving reactions. When Peter came home from the hospital the doctors told us we had a couple of weeks, at the most 3 months. Peter very soon started LIVING again. Went back to his work, plays squash and we are seeing lots of friends and have family gatherings. Six months (!) have passed now. Yes, he is very slowly going down. But the quality of these six months we had have been extremely high and even happy. (Peter refused chemo because that would only stretch his lifetime for a few weeks, but would have caused loss of quality of life.)

I very much hope that your jaundice has another cause than this cancer. But if not, I wish for you that you and the people around you can handle this as my Peter does. You know, we can still laugh about things and we are having such special and wonderful days too.

Will you please let me know how you are doing in the time to come? And also wat the outcome of the investigation of today is?

I wish you all the strength you can find, but also still a lot of happy days to come.

Kind regards,

Iris (the Netherlands)

On 11/30/2007 mbent wrote:

Hello:

 I have been having symptoms very similar to the ones associated with Bile Duct Cancer, but am unsure about what to think:

1.  I have itching, jaundice, have experienced swelling in my legs, loss of appetite (sick whenever I eat almost anything), and really dark urine.  

Based on what you folks know, would you say I have bile duct cancer?  If I do have bile duct cancer, I don't want to put my family through what sounds like 95% failure in treatment.  I don't consider the 5% change I would live sufficient justification for the pain caused to them.  I guess I know where I'm going if I pass on.  I go in for a CT scan on Monday - just curious as to your thoughts on whether I have bile duct cancer - please don't commend on my willingness to receive treatment - in that I am firm.  

Thanks very much. 

Hello,

It looks like you had a CTscan on December 3rd...hope they gave you the results...you can be almost sure if it is Bile Duct Cancer they will advise you ASAP. 

But you have a good chance it's not Bile Duct Cancer.  I'm surprised you went right for the most serious situation...unless you've been advised by a doctor already.

You just may have a blockage in the common bile duct and if the blockage is below the cystic duct it could be a gall stone...this can be resolved pretty fast.

Don't think the worst, ask your doctor if an endoscopic procedure is planned.

Good luck

Leonard

Wow, you certainly need someone to help you.  Don't draw you own conclusions.  My friend had all the very same symptoms.  He had a blocked duct.  Terribly sick, and green,  the doctors did a ercp scope.  The letters may be wrong.   Check this out soon.  

On 11/30/2007 mbent wrote:

Hello:

 I have been having symptoms very similar to the ones associated with Bile Duct Cancer, but am unsure about what to think:

1.  I have itching, jaundice, have experienced swelling in my legs, loss of appetite (sick whenever I eat almost anything), and really dark urine.  

Based on what you folks know, would you say I have bile duct cancer?  If I do have bile duct cancer, I don't want to put my family through what sounds like 95% failure in treatment.  I don't consider the 5% change I would live sufficient justification for the pain caused to them.  I guess I know where I'm going if I pass on.  I go in for a CT scan on Monday - just curious as to your thoughts on whether I have bile duct cancer - please don't commend on my willingness to receive treatment - in that I am firm.  

Thanks very much. 

Hello,

I had the same symptoms for about a month in early 1998 before diagnosis and biopsy confirming cancer (in my case) and am still around now in 2008. I hope your diagnostic CT scan finds it is not cancer. I gave some details about my case earlier today in other messages, in case you are interested. Annettejb.

.

my dad is 68 years old and had the whipple operation...bile duct cancer.  it has been two years.  Give yourself a little push please..

Someone who cares

sylvie