Multiple Myeloma

multiple myeloma. peiod thats it. game over, end of story.  My brother was diagnosed with M/M 6 weeks ago.In our experience this is what I have seen first hand. We have to define the outlines. first definition of hospital: this is a large building containing doctors. Their goal is to extract as much money from the paitents and families as possible which is instructed by the drug companies (who control the doctors and the hospitals) these compassionless spineless coldhearted animals (actually animals would not do this to eachother) are not care givers or interested in anyones life (or death) they have only one goal. We are fully covered by insurance which makes us a candidate for "long term care" or until the cash flow is stopped ! Our great country and its health care system is set up this way because of the BIG players in control and it is more lucrative . believe me M/M is a death sentence and yes there are "survivors" and this is what they want you to believe so you lay down and submit to the white cloaked gods. I truely believe cancer and many other diseases have a cure !! but where can the big box health care generate the funds to pay the saleries for the hench men who hand down the sentence!! Thank god for the lawyers who keep these bastards in line.

Wow!   Isn't that the truth?  There must be cures for many cancers, but cancer is the biggest money-making curse in medicine.  I believe that 98 percent of the doctors care only about money.  Unfortunately, I have not met the other 2 percent.  Having been passed from doctor to doctor for 3 years, I was finally diagnosed with Multiple Myeloma and am still not being given any treatment.  The corrupt doctors are calling it Smoldering Myeloma, but my kidneys have been failing  for at least 3 years.  The whole medical field is becoming more corrupt and will do anything for money.  We people who have HMO's are really treated less than human.  From what I have read on this site, most patients have bad reactions to the drugs anyhow, so the ones who go into remission must be the lucky ones.  Best wishes to your brother, and I hope that he gets better treatment. 

I am so sorry to hear you are going through this.  Not that it is going to make you feel any better, but there have been articles about doctors who are being fired and accused of belonging to 'pharmacomafia'.  I too believe there are cures for cancers, but of course, it would not pay off to cure everyone.  I can suggest you hang in there, do what you can and be assertive.  Let them know you are not going to let your brother go that easily.  Fight for his life as much as you can.  Know you are not alone in this cruel game, and we are each doing what we can.  The cruel reality of the world we live in is far too reaching....

If you have smoldering myeloma then I would highly recommend using alternative means to keep it under control or reverse it. Products such as curcumin, resvertrol, quercetin, zyflamend, and proteolytic enzymes are highly effective against low-level myeloma. There are also a few homeopathic remedies (e.g. carsinosinum) that can also be used. Don't wait for the medical system to treat it at such an early stage .

Regards,

Craig Persel 

 

On 12/8/2007 zazu1234 wrote:

multiple myeloma. peiod thats it. game over, end of story.  My brother was diagnosed with M/M 6 weeks ago.In our experience this is what I have seen first hand. We have to define the outlines. first definition of hospital: this is a large building containing doctors. Their goal is to extract as much money from the paitents and families as possible which is instructed by the drug companies (who control the doctors and the hospitals) these compassionless spineless coldhearted animals (actually animals would not do this to eachother) are not care givers or interested in anyones life (or death) they have only one goal. We are fully covered by insurance which makes us a candidate for "long term care" or until the cash flow is stopped ! Our great country and its health care system is set up this way because of the BIG players in control and it is more lucrative . believe me M/M is a death sentence and yes there are "survivors" and this is what they want you to believe so you lay down and submit to the white cloaked gods. I truely believe cancer and many other diseases have a cure !! but where can the big box health care generate the funds to pay the saleries for the hench men who hand down the sentence!! Thank god for the lawyers who keep these bastards in line.

Good Evening Zazu;

Allow me to be candid with you.

After reading your post I believe you to be quite angry. And understandably so! But be angry at the desease. I sure am! How dare it take me away from my wife and children.

"multiple myeloma. period thats it. game over, end of story."

 When your brother looks into your eyes he needs to see strength and support! If the above quote sums up your feelings towards him then I can only say shame on you!

 "believe me M/M is a death sentence"

How dare you come on to this board and remind all of the patients or their caregivers that they're going to die. Most of us have already been told so. We don't need need or care to be reminded by you! I've got less than two years, want to switch places?

What you need to do is become as educated and informed as possible. When you go with your brother to the Drs. question them. And don't leave until they answer your questions. If they don't like it or you're not comfortable with their answers, find another Dr. The least you're willing to accept is the most they're going to offer! I also firmly believe that meds themselves are not the cure all we are meant to believe. We must suppliment the medicines with diet and changes in our lifestyles. Again, get educated. A poster here (photog) is a valuable resource, but many others are able to educate through personal experience. Watch the movie "The Secret." Attitude changes can not possibly hurt in his recovery.

"Thank God for the lawyers who keep these bastards in line."

If you honestly believe this then you have never been through the legal system. Lawyers are the biggest whores to ever breath air. Don't think so, serve on jury duty. You'll come away with a different point of view.

I wish your brother all the strength in this next period of his life,

Kevin

Hello Kevin I did not realize that my post would make anyone remember that they had a serious disease. If I offended you then I am truly sorry !! This was not my intention. I am very upset because I cant comprehend someone going to the doctor 7 weeks ago because of something not related to a disease called Multiple myeloma. We are referred to a doctor at Danbury hospital We arrive on time and sit behind a large dark paneled desk. The doctor nonchalantly says "you have Multiple myeloma....what the hell is that ?? before this we did not know what an Oncologist was !! They seemed to move him along like cattle. All he said to me while my face was flush from any color and tears streaming down my face was " this is treatable and I promise i will not let him die"I then took him home and we both cried some more. Now every time we go we hear something different and it becomes VERY frustrating. I could not even begin to imagine what you ,him or anyone else with M/M feels. But I love him and would give any part of my body to help him.. It is so difficult for me and my family to watch the progression of his disease. I know now what M/M is and in our case It came through like a tornado with no warning!! Today I am taking him to Yale and maybe they can answer some questions in an honest and frank way. You see Kevin I NEVER meant to be insensitive to ANYONE here nor would I ever directly attempt to disrespect anyones feelings and if i did do this than i sincerely apologize as i am angry upset ,confused petrified,worried,and all the emotions associated with the unknown. please except my deepest apologies and I wish you and anyone fighting cancer the very best !  Ron

Hard to believe messages like yours can bring me to tears 7and 1/2 years after losing my father to MM.  I feel for you, because I've felt like you.  You are angry, and you are right, but you need to put that anger aside for now for your brother's sake.  Although it may appear hopeless, you can't give up.  There are breakthroughs happening all the time, and I truly believe it is forums such as these that will eventually find the cures we are looking for.  Although I lost my father, my cousin who was diagnosed last spring with CML, a deadly form of leukemia, and was given only 3-6 months at diagnosis, was put on a new therapy and has gone into total remission.  While I don't know if he is cured, it has bought him quality time that we never thought he would see. 

The system is corrupt, but there are still stellar individuals who are trying to do their best and you have to search them out and try to get your brother better treatment.  (This forum is an excellent place to look for recommended doctors and therapies, but the internet as a whole has a lot more information now than it did 7 years ago).  While my father was in hospital, (in Canada), if we ever complained or questioned the treatment he was receiving, we were told to complain to our politicians.  I couldn't help but feel they were deliberately not doing everything they could so that we would lobby on their behalf.   I'm convinced the system can work in Canada, but there is a powerful group working to destroy it and unfortunately it is the drug companies and some in the medical profession who are deliberately undermining it.  I watched Michael Moore's Sicko this weekend and it only made me more convinced they are actively trying to convince us that universal medical care is not possible.  It would, if we didn't have to pay through the teeth for drug patent protection that we already paid the drug companies through our tax dollars to research.    Seems like many in the medical profession took the hypocrite oath, not the hippocratic oath.  Call me a conspiracy theorist, I don't care, if there's smoke, there is usually a fire.  (And following on that thought, yes, they should be treating smouldering MM - how can "THEY" possibly justify saying that with every other cancer early treatment is essential, and then allow MM to progress before doing anything??).

I promised my father that I would keep looking for both the cause of and a cure for MM, even though I do not have a medical degree or any special skills.  That is why I am here, today, still searching, reading what other patients and caregivers have to say about their experiences to see if there are any common experiences that might provide a key.  You never know and I can't give up hope.

Your message brought back many of the emotions I felt at the time of my Dad's illness, and I have found that remembering how I felt about his treatment or lack of, only makes the promise that much more important.  We need to share what we know, and I wouldn't be surprised if we end up discovering that ultimately no drugs are required and that is why the cure has not yet been found.   

 

I had a nagging back ache that wouldn't get better. I was as healthy as a horse. My family doctor took an x-ray and then a cat scan. He called me himself, not his aide or nurse, but called himself. I knew this had to be bad. He says that something is not right. He thinks there is some kind of bone disease on my pelvic bone and my spine. I asked if it could be cancer. He said it was a possilbility. He sent us to an oncologist. You could have knocked me over with a hummingbird feather when he said you have multiple myeloma. He says there is no cure, but we can control it and learn to live with it like high blood pressure or diabetes. I asked what was the prognosis for living. He said 18 months to 4 years. My wife went to pieces. One of the nurses took us to a back room  and tries to console us, especially my wife. She even prayed with us. This was a little over a year ago. We felt completely out of place there that first day. Everyone was too damn happy! We were devestated! Now after one year, WE are among those too damn happy people! So I am saddened that everyone doesn't have the oncology clinic that we have here in Tyler, Texas. Go find yourselves another clinic to go to! Believe me there are professional people out there who care! They hurt when you hurt. They cry when they lose a patient. We are not promised anything in this world. We take life one day at a time. I am at 63% remission. Looking forward to 100%. I will pray for you and your brother. Remember God loves you and so do we. Poppy

Ron;

Consider the hatchet buried!

Now let's get back to the business at hand: Educating ourselves so that we can challange these Drs. by asking intelligent questions so they are forced to do some homework and therefore may find a cause and subsequently a cure for this horrific desease!

All these above comments reminds me of a joke I heard along time ago. "What do they call the guy who graduates LAST in his medical class?"

DOCTOR!

There's good and bad in ALL professions. But the more we keep dwelling on the medical staff the less time we have to devote to our own education. And time is something we all are getting short on.

Stay positive. For you own and your brother's sake.

Kevin

Thank you Kevin and i have a question for you or anyone who can help. My brother has M/M stage three with chromosome 13 involved. this is a very difficult situation. the doctors have put him on thalidomide and dex. shouldnt they be more aggressive and go for the high dose chemotherapy? or maybe  revlamid with radiation therapy? I am not sure if you know the ramifications of chromosome 13  and what is happening.  His body is coded to self destruct ! after researching this condition his M/M is on a mission and it seams to continue through thalidomide therapy therefore reducing his chance to become strong enough for the bone marrow transplant. Now i am no doctor but why (and i am sure they have their reasons) why dont they attempt a more radical  approach. but the clock is ticking and he is pretty strong now !!  I am very worried they know something they do not wish to share.Is there somewhere a doctor or hospital who would maybe take the chance and not worry that we may sue them? or is that not an issue and they just do not know ! If they know enough to say he has months why wait till he withers away.  We will try Yale on Thursday  but is Sloan Kettering a better shot? It is all happening too fast and time is of the essence !!!!!!!!  Thank you  Ron