Grade 4 Tumor - Any Information Please

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Grade 4 Tumor - Any Information Please

by Cer28 on Tue Apr 12, 2005 12:00 AM

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My father was told this week that he had a grade 4 brain tumor, which has now been operated on and gliadel wafers/beads inserted. It has turned our world upside down and only wish that there was something which could be done. He now has to go for radiation therapy for the next 6 weeks. Does anyone know more about these wafers/beads and life expectancy? he's been told that by having these wafers inserted he could have an extra 8 weeks to live. He's 56 yrs old - what are the chances of him staying well for a year?is there anyone out there who's survived this long, is there anything else that can be done? good luck to all of you who are fighting this devastating cancer x

Grade 4 Brain Tumor

by Carmen on Mon Apr 18, 2005 12:00 AM

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Hello! I noticed your email about your father, and thought I'd answer your questions. My mother, age 62, was diagnosed last July 1 (2004) with the same - glioblastoma multiforme. Her surgeon also implanted the gliadel wafers during surgery. She did 6 weeks of radiation concurrent with oral chemo (Temodar) for 42 days. She now takes the Temodar 5 days every month. We started going to MD Anderson 1 week after her surgery, and were going every two months until January. They told us we could have the MRIs done here (Kansas City, MO) every two months and send them down for their review. It seems that surgery (if the tumor is operable) followed by the 6 weeks radiation and oral chemo is pretty much the standard of care. My mom is just now starting to have some minor speech difficulties (word finding), but otherwise is still doing quite well. The surgeon told us that in 85-90% of patients the tumor recurs within 10 months, so we're trying to stay positive. I would like to recommend a book that has helped us: Surviving Terminal Cancer by Ben Williams. He's still alive and kicking after being diagnosed with glioblastoma in 1995!! Let me know if you have more questions. :) Carmen

Glioblastomas

by Bet19 on Thu Apr 21, 2005 12:00 AM

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My husband (57) was diagnosed with a stage 4 inoperable glio last year 4/27. His tumor was almost 5 cm at the time of diagnoses and he received 6 weeks of radiation and combined chemo (temodar). No growth until November when the tumor grew 2cm. Then the switch was made to BCNU nasty iv chemo which causes your blood platelets to drop alot and he also became neutropenic. He is now on his last BCNU tx because it is starting to kill off blood producing stem cells in the bone marrow. My husband's doctor says there is one more chemo type drug he will try after the next MRI in May. I just read an article about a clinical trial at Wake Forest Baptist University and I will be contacting them. We have two teenagers, one graduating this year and it has been really hard on all of us.

my Father Has a Gbm Tumor

by Redozsn on Fri Apr 22, 2005 12:00 AM

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I am sorry about the diagnosis. My father has a huge seizure last March. Since then he has had 2 surgeries, radiation, temodar and with the second surgery it left his left side immobile. His last MRI, which was a week ago, shows that the tumor is once again growing. We expect that he doesn't have very long left. We were told 9-12 months but he is in his 13th month and aside from the fact that the second surgery left his left side immobile, he has done ok. I hope you have a better outcome. My prayers are with you. My father is 68.
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