Side Effects - Arimidex

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Side Effects - Arimidex

by Goodattitude on Tue Dec 11, 2007 12:00 AM

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Last time I wrote, I was doing really well on the Arimidex.  Boy how things have changed now.  My cholesterol went sky high - into a danger zone, they had to place me on a cholesterol medicine, which then made my cholesterol drop almost 100 points in 5 weeks!  I've had a vaginal discharge all along.  I could deal with that if that's all it was, but now my shoulder joints are actually throbbing.  They seem to bother me more at night.  Pain killers don't even work - I take 1,000 mg of Execedrin twice a day which does give me relief.  Now for the past week, I feel extremely emotional and could cry at the drop of a hat.  I'm beginning to get a little discouraged.  Any suggestions, anyone?

 

RE: Side Effects - Arimidex

by Moondancer on Sat Dec 15, 2007 12:00 AM

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On 12/11/2007 Goodattitude wrote:

Last time I wrote, I was doing really well on the Arimidex.  Boy how things have changed now.  My cholesterol went sky high - into a danger zone, they had to place me on a cholesterol medicine, which then made my cholesterol drop almost 100 points in 5 weeks!  I've had a vaginal discharge all along.  I could deal with that if that's all it was, but now my shoulder joints are actually throbbing.  They seem to bother me more at night.  Pain killers don't even work - I take 1,000 mg of Execedrin twice a day which does give me relief.  Now for the past week, I feel extremely emotional and could cry at the drop of a hat.  I'm beginning to get a little discouraged.  Any suggestions, anyone?

 


My cancer was a 2cm ductal invasive carcinoma, negative lymph nodes (24 taken) ER+, Progesterone negative, moderate grade tumor...had a modified radical mastectomy.  I took Arimidex 4 months, and in that time my cholesterol went sky high, my joints ached so bad I could cry, I fell several times because when I stood up my feet hurt so bad I dropped to the floor, my blood sugar elevated, my blood pressure elevated.. my fingers "triggered. "  Then they  started me  on  cholesterol med, pain med, blood pressure med, and blood sugar med.( Even though my pre-cancer workup show none of those problems?)  Then they switched me to Aromasin and things continued to worsen.   After 5 more months, I quit ALL the meds, began a program of walking, changed my diet, and within three months I was back to normal.  I am convinced that those meds (aromatase inhibitors) poison some people.  I had never been on any med before my cancer, and had always been healthy.  I am 60.  Quitting the meds may be the stupidest decision I ever made, but after 10 months of misery, I decided that I ould take quality over quantity.  I never felt that my complaints were taken seriously, and my one question was, after years on these meds, would the problems go away?  and I NEVER got an answer!!!!!  I will suggest to you that you try Neurontin or Lyrica for the pain, as it did help!  I had taken it before for a back injury, it works well and is non habit forming...I take it as needed for the underarm neuropathy from removing the nodes.) Good luck to you!  Give the stuff a good try, and then make your decision!!!!

RE: Side Effects - Arimidex

by Goodattitude on Sat Dec 15, 2007 12:00 AM

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Thank you for answering me.  I went back to my oncologist and told her that I was feeling depressed, which is very unusual for me.  I also told her about my shoulder pain.  She changed my meds to Tamoxifen.  I do know that this also has some possible serious side effects.  I'll give it a try like I did the Arimidex, but if I start having additional side effects, I'm off of them and taking my chances.  Like you, I was never sick a day in my life and was not one for medicines.  I feel that they are determining my life now and it doesn't make me happy.  My bloodwork is normal, got a clean mammo.  I changed my diet drastically before I started Chemo and I've stuck with the veggies, no red meat plan for the past 16 months.

Thank you so much for taking the time to answer me.

 

 

RE: Side Effects - Arimidex

by Goodattitude on Sat Dec 22, 2007 12:00 AM

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Well, I went to the doctors again.  My oncologist switched me to Tamoxifen.  The depressed feelings have not gone away yet, but to boot I woke up this morning at 330A, with the dry heaves for a few hours.  I'm really discouraged about these ill feelings.  All I seem to want to do is lay on the couch.  I've made the decision to stop the Tamoxifen and the Zocor because what I've read about the side effects, both of these can cause depression and nauseau.  I've been through Chemo and radiation.  It's time for me to feel good for a change and I want to take charge of my own body and not be chemically altered all the time.

Thanks for the support and the advice. 

 

 

 

RE: Side Effects - Arimidex

by Kimarie on Fri Dec 28, 2007 12:00 AM

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On 12/22/2007 Goodattitude wrote:

Well, I went to the doctors again.  My oncologist switched me to Tamoxifen.  The depressed feelings have not gone away yet, but to boot I woke up this morning at 330A, with the dry heaves for a few hours.  I'm really discouraged about these ill feelings.  All I seem to want to do is lay on the couch.  I've made the decision to stop the Tamoxifen and the Zocor because what I've read about the side effects, both of these can cause depression and nauseau.  I've been through Chemo and radiation.  It's time for me to feel good for a change and I want to take charge of my own body and not be chemically altered all the time.

Thanks for the support and the advice. 

 

 

 


Hey Good attitude, I did the tamoxifin for a year, couple months on the femara, then switched back to tamoxifin.  My Doctors said that if I did not take some kind of estrogen blocker than my chemo was for nothing.   They work hand in hand to keep cancer from coming back.  God Bless us All.  I too suffer from depression.  I started hurting myself, to displace the pain I felt emotionally.  I now take xanax when I get like that.  It helps alot.  I can cut them in half, stops the full blown depression or anger or crying jags.  Dont have to take them but about every 6 weeks.

Hang in there, Kimarie

RE: Side Effects - Arimidex

by Annie_v on Fri Dec 28, 2007 12:00 AM

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I started on Arimidex after chemo and radiation, and in about 3 weeks,
I developed blood clots in my juggular vein and right arm. I can no
longer take hormone-suppresive meds, so I feel a little like a sitting
duck. I had estrogen-receptive cancer, and was supposed to be on
Arimidex for 5 years. I had a surgeon remove my ovaries to help lessen
some of the estrogen production. My cancer was very large, over 5-cm,
and I was only 34 when diagnosed. My Oncologist will not even speak
with me when I try to discuss having my other breast removed, he just
shuts down the conversation. It is very upsetting since it is my body,
and the other breast feels like a ticking time bomb to me. 

RE: Side Effects - Arimidex

by Goodattitude on Fri Dec 28, 2007 12:00 AM

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My goodness!  this is exactly what I mean.  People do have the right to take charge of their own bodies and made decisions for themselves, even if they may be wrong but for an MD to not even discuss it is ridiculous.

At first I gave my oncologist a bit of a difficult time because I had heard all the horror stories about chemo etc but after weighing eveything in my mind I did decide to have chemo. I felt that this gave me the choice to fight the cancer.  I had a partial masectomy, chemo for 4-1/2 months, radiation for 4 mos.  I think that this is enough.  It's time for me to feel myself once again.  Depleting all the estrogen in my body left me listless and depressed.  I didn't want that for myself.

Best wishes to everyone.  Keeping writing to each other.

 

 

RE: Side Effects - Arimidex

by Annie_v on Fri Dec 28, 2007 12:00 AM

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I know what you mean about feeling better. After all the treatment,
I felt as though I lost some of myself (beside my breast). I wanted to
feel better physically, so I could feel better mentally.  The
chemo put me in full-blown menopause, which was horrible. After the
treatment, I had my ovaries removed, and went right back in menopause
(a bit difficult when you are only 35).  I do thank god for each
day; I am so grateful I am still here enjoying life.

Happy New Year to everyone! 

RE: Side Effects - Arimidex

by joanhenry on Tue Jan 01, 2008 12:00 AM

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This is a great forum!! Here's my story: I was diagnosed in March of 2006, had a lumpectomy in April and radiation treatments in the summer of 2006. My cancer was stage one, so I have always felt "like a weenie" when I read the letters from 37 year old women with metastatic cancers. I have been taking arimidex faithfully for 18 months now. I have always been healthy and exercised religiously - I really didn't notice too many side effects ( no hot flashes so far )at the start of hormonal treatment, but the achy muscles and joints are beginning to really slow me down. Early on with the arimidex, my bp also went up, so my doc put me on a stronger medicine. (my oncologist told me that was not a side effect of the medicine) - I am 62 and was previously able to do pretty strenuous exercises and work around the house extensively, but in the last 3-4 months, my quality of life has decreased dramatically. A good nights sleep is to be treasured and usually only comes after taking a nice hydrocodone tablet which I received after a little shoulder surgery this past summer (which may have not been necessary had I been aware of the side effects of arimidex). I miss jogging and step aerobics - yoga classes are even difficult to complete. I manage to jog very slowly for about 2 miles several times a week - lifting weights has become hard for me and I just don't feel like much activity at all. After taking a trip, I am exhausted - eating out and not drinking enough green tea (my newest dietary addition) ?? I don't know. I also have recently read that vitamin D3 is supposed to help mitigate the joint and muscle pain of women on aromatase inhibitors. I live in South Texas and perhaps one problem in the winter time is that I don't get the sun exposure that I get in the summer. Well, I, too, am going to see my oncologist next week and will certainly make my discomforts known. I tend to be the compliant, non-complaining patient, but not this time!!

RE: Side Effects - Arimidex

by donnalynn on Wed Jan 09, 2008 12:00 AM

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I am also becoming a little discouraged after being on the Aimidex for almost a year.  I was doing okay, some joint and bone pain, but I could deal with it. But now I am struggling. Lots of bone and joint pain, depression, not sleeping at night, etc. Is this going to continue to get worse?  I have no energy, feel like I am 80 years old. I go to work and all I can think about is getting home and going to bed. Do any of you have tingling and numbness in your arms or legs.  This only happens when I am lying down and it is hard to sleep.  Called my doctor and asked about this and was told that it could not be a side effect of Arimidex, but it makes me wonder.

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