Have any of you been in this situation? And if so what was your specialists protocol/recommendation?
Multiple scondary carcinoid tumours discovered in liver - "probably" inoperable, depending on site of primary.
Octreotide (Sandostatin) imaging can't detect primary source.
Endoscopy to be scheduled + more imaging using different isotope (MIGB?) in hopes a primary source will be located.
The specialist has recommended waiting for further testing to find primary before doing anything at all. Tumours in liver are beginning to grow more rapidly.
I've noticed some on here in similar situations but still taking something to slow growth of liver mets......My guess is the sandostatin may not be a good choice because of cancers non-uptake at imaging????
Any thoughts anyone....I'm going crazy with the lack of action.
Thnx in advance for your time.