Glioblastoma Multiforme Grade 4

This is my first time ever taking part in this kind of on line community.

That must be because i feel isolated and alientaed as what my husband has been diagnosed with is fairly un common in the world that i inhabit, but here it is like tumors galore!

My husband is a 48 yr old previously fit and well man with no history of illness at all. We have a toddler who is not yet 2 yrs old. I am a doctor ( psychiatrist)

On 2/11/07 he presented with a seizure. Our lives have never been the same since.

He has a grade 4 GBM and has been given 12-18 months to live.

He has commenced the chemo/radio therapy. It will be for 6 wks and then some time after they will scan himto see if he has responded.

His tumour is in the left parieto/occipito region, close to speech/memory and peripheral vision. They did not remove any of it and he is simply having treatment to delay the inevitable.

We have been away for 9 days to france ( travel insurance almost impossible to get but managed at last minute) but really can anyone tell me what they have learnt through hind sight - is this going to hospital to buy extra time worth it?

should we not instaed accept his destiny and go and spend his last days where he wants to, doing what he likes? not feeling tired/sick and expectant and hopeful in a situation where really there is no hope?

We have only had 6 wks to get used to this, can anyone hold my hand in this and give me some real information?

He seems fine apart from some short term memory problems and word finding difficulties. We dont know whether it is the tumor or the shock. i expect it will be the former.

Just how can on'e life go from normal to dying in the space of the time it takes to have a fit?

How long was the grade 4 tumor there for?

Tahira

On 12/14/2007 Teffy wrote:

This is my first time ever taking part in this kind of on line community.

That must be because i feel isolated and alientaed as what my husband has been diagnosed with is fairly un common in the world that i inhabit, but here it is like tumors galore!

 

My husband is a 48 yr old previously fit and well man with no history of illness at all. We have a toddler who is not yet 2 yrs old. I am a doctor ( psychiatrist)

 

On 2/11/07 he presented with a seizure. Our lives have never been the same since.

He has a grade 4 GBM and has been given 12-18 months to live.

He has commenced the chemo/radio therapy. It will be for 6 wks and then some time after they will scan himto see if he has responded.

His tumour is in the left parieto/occipito region, close to speech/memory and peripheral vision. They did not remove any of it and he is simply having treatment to delay the inevitable.

 

We have been away for 9 days to france ( travel insurance almost impossible to get but managed at last minute) but really can anyone tell me what they have learnt through hind sight - is this going to hospital to buy extra time worth it?

should we not instaed accept his destiny and go and spend his last days where he wants to, doing what he likes? not feeling tired/sick and expectant and hopeful in a situation where really there is no hope?

We have only had 6 wks to get used to this, can anyone hold my hand in this and give me some real information?

 

He seems fine apart from some short term memory problems and word finding difficulties. We dont know whether it is the tumor or the shock. i expect it will be the former.

Just how can on'e life go from normal to dying in the space of the time it takes to have a fit?

How long was the grade 4 tumor there for?

 

Tahira

I just found your message on accident.  You are at the correct website but at the wrong spot for posting.  You need to go to the cancer message board and click on brain.  You will find wonderful people there to help you.  I also became very educated very fast.  I am sad to say my husband was dx on 12/22/05 and died on 10/15/07.  he was a very young man 37 and we also have 2 young children 1 6 year old & 9 year old.

Gllioblastoma is a horrible horrible disease.  There are no easy answers on what to do.  My husband could not have surgery, and he fought the disease as long as he could, and I often wonder if we would have just enjoyed what time we had what if.  Well I am not sure that would have worked either because he had such terrible headaches he would cry and wish he was dead.

Then again, what if your husband gets the miracle and he can fight it.  Some people have done very well.  I really think you would find a greater response in the brain section of this website.  They are very helpful.

Where are you from?  Remember it is all in your husbands attitude and what tyoe of doctor you have.  Please email me anytime. 

I wish I could really help you.  I will keep you and your family in my prayers.  Theresa