Anyone Have Experience With Lymphoma Of The Nasal With Bone Destruction

I have a rare form of lymphoma in the nasal area call NK t-cell.  It's unique to asians and hispanic origins. It was diagnosed when I developed a sinus infection that didn't get better.  I was treated with radiation first which got me into remission and I'm just finishing up the chemo which is done as a precaution to ensure they get all of the cancer.  Stem cell transplant remains an option to me.

From what I have read and what my dr's at cornell presbyterian have told me, nasal lymphomas should be treated with radiation  first. Ask your dr's about this and see what they have to say.

On 4/2/2008 raphster wrote:

I have a rare form of lymphoma in the nasal area call NK t-cell.  It's unique to asians and hispanic origins. It was diagnosed when I developed a sinus infection that didn't get better.  I was treated with radiation first which got me into remission and I'm just finishing up the chemo which is done as a precaution to ensure they get all of the cancer.  Stem cell transplant remains an option to me.

From what I have read and what my dr's at cornell presbyterian have told me, nasal lymphomas should be treated with radiation  first. Ask your dr's about this and see what they have to say.

 

Hi Raphster!

I am sorry to hear that you have been diagnosed with NK-T Cell lymphoma.  I have done some reading on this cancer prior to my father being diagnosed.

He has follicular lymphom which had transformed into a more agressive B Cell cancer.  He does have a worrysome amount in his Ethmoid Sinus.  His disease is quite a bit different.  I did enquire if he had any T Cells.  There were none.  Follicular lymphoma is a very slow growing cancer.  Many nodes are affected.  The treatment R-CHOP is 80% effective on the transformed cells, which my father had.  The follicular is incurable.  We are expecting after 6 treatments, to possibly face radiation on the more aggressive cells.

Take care Raphster.  I appreciate your response and concern.  We learn a lot from each other here.

Hi Raphster,

I saw your response to nasal cancer.  My 28 year old son was also diagnosed w/ NK T-cell in the nasal area.  He is not Asian and so we are told this is rare.  Can you tell us what type of Chemo they have used to treat yours?  We have been given 3 options and do not know what to do. Any info is appreciated.  Still a Mom

sorry for the late response, I lost track of this site.

I got reguar chop therapy, which was administered to me once every 3 weeks. 

Please let me know if you have any questions, I'll try my best to answer.

Raphael