Colon Cancer Stage IV Outlook

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Colon Cancer Stage IV Outlook

by Soupmom on Wed Dec 19, 2007 12:00 AM

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My husband is 70 years old and was just operated on for colon cancer. What we thought was Level I going into surgery turned out to be Level IV after surgery. The tumor had perforated his colon and sent out seeds to the perotinial sacg. Nothing on the liver or kidneys.He has been advised that he will be given Avastin in FolFox6 over 6 months at every 2 weeks. Even with this they are giving  us 18-24 months. Does anybody have any experience with this?

RE: Colon Cancer Stage IV Outlook

by Mindybobo on Wed Dec 19, 2007 12:00 AM

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Hi, first of all im sorry about your husband.  Every patient is different.  My dad had stage 4 that was in his abdomon and lungs.  He lived 18 months.  Buts thats because he got complications from the cancer.  His lungs filled with fluid.  Some stage 4 people on colon cancer message boards have lived for years.  He will have to have chemo for the rest of his life to try to keep it stable.  Sometimes they get chemo and the cancer still grows and they run out of options.  But like I said I know a person that has it in his liver and has been on chemo for 3 years and is still here.  Good luck.  Mindy

RE: Colon Cancer Stage IV Outlook

by Roman22 on Wed Dec 19, 2007 12:00 AM

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Hi, every one is different ie: general health, other conditions etc, but here is my perspective.I have stage IV.
I had a colon resection Nov 06 then it was discovered I had mets to the liver that they initially said they could not operate on.
I have had some great results with Avastin.
After 13 Folfiri, 9 with Avastin, almost everything was gone and the surgeon did a liver resection (65% removed) to remove the ghost areas.
My oncologist said he never saw such results before Avastin.
Now even though there is No Evidence of Disease I am having another 12 rounds of Folfox4 adjuvant chemo to get rid of any microscopic seeds. I also take a ton of supplements.Now to your 18-24months question.These are old statistics that didn't include the new drugs such as Avastin,Erbitux etc.which have only become available over the last 5 years. There are members of my support group (all stage IV ) who have been fighting for 7-8 years and they are still not out of options. If one drug stops working you move on to the next and some have been been disease free for over 5 years.I don't want to over inflate expectations but there is reason for hope !

Good luck !

Roman 

RE: Colon Cancer Stage IV Outlook

by Dquixote1217 on Thu Dec 20, 2007 12:00 AM

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I am not a doctor nor am I a medical professional, but I am a person who has researched and written extensively about what is available outside mainstream medicine.

What your husband's doctors have said is that the best they can offer is 18-24 months.  If it were me, I would refuse to accept that verdict and be looking elsewhere for the possibility of longterm survival that mainstream medicine has admitted that they are unable to provide.  I know that nature can and has provided it to many who were told there was no hope.

Even if you are determined to have the chemo, which I would forgo entirely given what the doctors have said, nature can also greatly enhance the results of the chemo and perhaps the chances of long term survival in spite of what the doctors have said (although quite frankly, those chance are better with no chemo at all, due to the damage chemo inflicts on the immune system and other major organs).

My suggestions is that you take a look at the articles at:

http://www.tbyil.com.articles.htm

Particularly these articles:

* Modern Medicine versus Nature in Treating Cancer

* A Natural Anti Cancer Protocol

* The entire Oleander Series of Articles

Oleander, despite being a highly poisonous plant in raw form, can be made into an extrememely effective cancer fighter with the poisons removed - you can even do so yourself at home about as easily as making a large pot of beans, however, it is available as a patented medicine that can be imported for use inside the US (in the US it has passed FDA phase I trials), and as a dietary supplement which consists of 80% oleander extract and 20% Sutherlandia Frutescans (known as "The South Africa Cancer Bush").

Oleander fights cancer in many ways. In studies on oleander, many of which were also led by MD Anderson researcher Dr. Robert Newman, oleander extracts have been shown to 1) inhibit angiogenesis, the process where cancer produces blood vessels and spreads, 2) inhibit the NF-kB factor in cancer cells, which is the process that cells use to protect themselves when they come under attack, 3) induce apoptosis, or normal cell death, in cancer cells, and 4) greatly stimulate immune activity.

A recent study by Dr. Newman which is due to be published soon in a peer reviewed journal has also found that oleander also induces autophagy, a natural body mechanism which encapsulates cells and signals for them to be cannibalized and destroyed.

In Euopean studies in 1986-87. oleander extract was found to have six times the immune stimulating activities of the most powerful patented immune stimulators known to man.

When used with either chemo or radiation, oleander has been shown to greatly increase long term survival and it also has the benefit of either eliminating or greatly allieviating all known side effects, including hair loss (with the exception of hair loss when the chemo of choice is Cisplatin).

It is worth noting that, although oleander often greatly enhances chemo and radiation, it is normally even more successful when used without them, and I feel certain that is because it does not have to fight both the cancer and the damge from the chemo or radiaton.

A second consideration might be also using Inositol/IP6 which eliminates tumors and cancer cells in very short order in many people. Here in the community I live in a noted supplement maker was asked to carry it by a woman who moved here and used it successfully against leukemia.  The local postman then used it successfully and began spreading the news and in the past two years it has helped so many that it has developed a kind of cult following.  One of the local farmers used it on his goat and in only a few weeks a tumor on the goat's neck the size of a softball was gone.

Another consideration is Bromelain.  There is also an article listed on the page I indicated about Bromelain, which speeds healing from all kinds of injuries and surgeries.  It is a natural extract of the pineapple plant.

While non mainstream supplements can achieve wonders (and I note that one responsdent here who has exceeded expectations mentioned that he took a bunch of supplements), the best way to use them is by incorporating them into an oveall healthy anti-cancer protocol which includes a healthy diet of mostly raw vegetables and some raw fruits, juiced vegetables and a few fruits, with nuts and tubors, some sprouted grains, a minimum amount, if any, of lean meat (oily cold water fish are best), and no dairy products except perhaps for yogurt or cottage cheese if used along with flaxseed as in the famous Joanna Budwig anti-cancer diet.

Mainstream medicine is wonderful at treating broken and injured body parts and very good at diagnosing problems as well.  Sadly, they continue to rely far too much on surgery, chemo and radiation when it comes to treating cancer and I firmly believe that someday history will look back on such methods as the dark ages of the medical treatment of cancer.

Finally, if you are skeptical of what I have said I understand entirely.  When I first began researching alternatives to mainstream medicine I pretty much had the mindset that real medicine came only in the form of prescribed drugs and that natural and alternative medicines were a poor substitute.  I found out that just the opposite was true.

To me, the good news is that mainstream medicine has said that your husband does have many months left - and that give nature plenty of time to help him.  All to often, people turn to nature as a last resort when their organs and immune systems have been ravaged by harsh chemo and/or radiation and the cancer has spread to the point that they have only days or weeks.  Even then, nature sometimes pulls them through but the odds are much, much better when nature has time to work.

Though no one can promise 100% results and be honest, almost everyone who has followed recommendations such as you see here is alive and well today and either cancer free or with their tumors shrinking or stabilized, and that includes my own 85 year old uncle whom mainstream medicine had also given up on, but he decided to not accept their verdict and today he is cancer free and playing golf and enjoying life every day.

May the same blessing be bestowed on your husband as well.

 

RE: Colon Cancer Stage IV Outlook

by Chrisobrn on Thu Dec 20, 2007 12:00 AM

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I'm also so sorry-my mom has this type of stage 4 colon cancer.  The real "problem" is the peritoneal spread of the disease. These small "seeds" only somewhat respond to chemo, then apparently it is only a matter of time before they out-smart the chemo and spread again.  This is VERY different than someone with spread to the liver only-

Google "peritoneal carcinomatosis" for more info.  That being said, my mom was diagnosed a year ago, finished 8 rounds of FOLFOX with Avastin and currently shows no evidence of active disease.  Her Onc has told her to expect a 2-3 year life span despite successful treatment early on.

The chemo was quite rough on her..literally bedridden for one week out of every two during treatment.  She's now having her port removed because it also has caused her nothing but grief. (always clotted, gets caught on her bra strap, etc)  She is doing maintenance of monthly Avastin only for a bit to see how that goes.

Best of luck in your journey-

Christine

RE: Colon Cancer Stage IV Outlook

by Marcia2960 on Thu Dec 20, 2007 12:00 AM

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My husband has stage iv cancer that was a recurrence and found in March of this year.  He had a small spot on his peritoneal layer and two spots on his liver.  He went on folfiri and avastin for 6 months, had radio frequency abalation to zap the remaining small spots after the chemo and right now is on Xeloda (chemo pills) as a maintenance drug.  He is doing great, no signs of the cancer for now and his doctors are very positive.  The first cancer hospital we went to gave him the same prognosis - 2 years.  We were unhappy with the care and found a private oncologist.  He is so optimistic and caring.  Finding the right doctor is half the battle.  I read the colon cancer message boards on WebMD everyday.  A great group of people there.  There is one woman who posts about her Mom all the time.  She is in her 80's and a 9 year stage iv colon cancer survivor.  Stay positive!  While stage iv never goes away, people can live a long time with it, especially with all the new treatments out there.

My thoughts and prayers are with you and your husband.

Marcia

RE: Colon Cancer Stage IV Outlook

by Lorid on Thu Dec 20, 2007 12:00 AM

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On 12/19/2007 Soupmom wrote:

My husband is 70 years old and was just operated on for colon cancer. What we thought was Level I going into surgery turned out to be Level IV after surgery. The tumor had perforated his colon and sent out seeds to the perotinial sacg. Nothing on the liver or kidneys.He has been advised that he will be given Avastin in FolFox6 over 6 months at every 2 weeks. Even with this they are giving  us 18-24 months. Does anybody have any experience with this?

First, I am so sorry that you & and your husband are going through all of this.  My husband was 43 when he was diagnosed in June 2005 with what we thought was Stage III colorectal cancer.  After going through 6 weeks of radiation and 5FU chemo treatments, it was discovered during the colon resection that his cancer had spread to the liver -- but it was only a tiny microscopic spot.  My husband also underwent 6 months of Folfox/Avastain with 5FU treatments.  His only trouble during the treatments was fatigue & extreme sensitivity to cold (complicated by the fact that he was going through the treatments from October through March.  He had a liver resection in April 2006 and another tiny microscopic spot was found in another section of his liver -- so he had a resection of his left lateral lobe (which was the site of the original spot, which had then disappeared) and a wedge resection of the upper right lobe, where the new spot was found.  He had his colostomy reversed in August 2006, went through 2 rounds of Folfuri/Erbitux which his dr then stopped, because it proved to be too much for him to handle.  In March 2007, another small spot was found in his liver and in April 2007 an HAI pump was implanted which delivered chemo directly to his liver -- he had that removed in September 2007 and his currently cancer free.  This will be the first holiday in 2 years that we are not dealing with cancer in any way shape or form.  He will undergo his next round of tests/bloodwork at the end of January 2008.  There is always hope.  I think the doctors tend to give a more grim outlook and would rather be pleasantly surprised when the patient proves them wrong.  My husband was told that once the disease metasisizes, there is only a 25% chance of survival to 5 years -- but we do not discuss that (nor have we ever told our chldren that) -- he is feeling the best he has since this whole thing began and he is eating better and going to back to the gym.

There is always hope -- I will keep you in my thoughts & prayers over this holiday season.

Lori

RE: Colon Cancer Stage IV Outlook

by Kareny on Thu Dec 20, 2007 12:00 AM

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Sorry to hear about your husband  ......  My husband { Johna } got diagnosed with stage 3 in 2001.....Which had penetrated though the wall & also into the lymph nodes........ Had surgery & 6 months of 5FU..... Got a blood clot blocking both legs.... Was put on Fragim for 4 months..... Plus got a hernia from the surgery.....

Was fine until March 2005.....  Stage 4..... Metastasised to the liver, lungs & now his neck { 2007} ...... Had a port-a-cath put in March 15 2005......

Was put on CPT-11 & 5FU from March 16 2005 until May 26 2005..... It wasn't working.....

Was put on Oxaliplatin & 5FU from June 20 2005 until Oct. 4 2005 when he had a very serious reaction..... Stopped breathing for 3 minutes & had no pulse..... Plus turned blue..... He was rushed to the ER....He stayed in hospital over night....

The Oxaliplatin worked great...... He was off chemo & had no drugs from Oct. 4 2005 until Sept. 2006..... When the cancer started to grow again.....

Went to Buffalo for Erbitux & CPT-11 from Oct. 10 2006 until Jan. 29 2007.... The cancer kept growing

Now he's in a clinical trial { VEGF-TRAP .... Avastin cousin }......  since Feb 2007..... He's now taking Morphine which he was just taking Tylenol 3's at the started this trial.....

My husband wants to go back on Oxaliplatin when the VEGF stops working.....

Everyone is different & reacts differently to each treatment.....  Avastin is a great new drug.....

We Wish You , Your Family & Husband All The Best

                                         Kareny & Johna

My husband was given two years to life too.....

 

RE: Colon Cancer Stage IV Outlook

by Lifes2short on Thu Dec 20, 2007 12:00 AM

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It was wrong of your doctors to give you such a short life expectancy. I have had stage IV colon cancer for two years and I'm still doing very well. Theres a chance that the Folfox could wipe out the cancer, at least for a while. It's good news that there's nothing showing up in the liver or lungs yet. He still has a chance to beat this thing. Even if it does spread, people are living longer and longer as the medications improve. Prepare for the worst, but hope for the best. There's always hope.

RE: Colon Cancer Stage IV Outlook

by in_Search_of_Answers on Thu Dec 20, 2007 12:00 AM

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At age 33, my husband was diagnosed with Stage IV colon cancer.  His had already spread significantly to the liver.  At that time, his doctors estimated he had 3 to 6 months to live.  I wasn't willing to accept that, particularly at his age, so we searched until we found another oncologist we felt confortable with and one we felt was going to fight as hard as we were.

Although my husband received a different type of chemotherapy (5FU and Lukevorin) in the beginning, and then subsequent clinical trials, he far outlived the prognosis originally given him.  I lost my husband to this horrible disease, but it was two years later - not three months - which makes a huge difference, especially when you have small children.

No one but God knows what our future holds.

My heart goes out to you and your husband.  I wouldn't wish this on anyone!

Also, this isn't related to colon cancer, but it does relate to the point I'm trying to make.  My father was diagnosed with pancreatic cancer on May 31st.  His original set of doctors told us my father was not a surgical candidate because of his age and his prognosis was not good.  We heard about a surgeon in a neighboring city who we consulted and who was willing to perform a whipple procedure on my father (even given his age of 81).  Today, my father is considered cancer free!  Don't always assume that the first opinion you get is correct!

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