I sent the following message to
--Message edited by CancerCompass staff. For personal protection, email address removed. Consider private reply. Please review CancerCompass Member Guidelines at http://www.cancercompass.com/common/guidelines.html--
on Dec 20th. Did I get the email address wrong? I've been worried that I haven't heard back from you! You can email me directly at
--Message edited by CancerCompass staff. For personal protection, email address removed. Consider private reply. Please review CancerCompass Member Guidelines at http://www.cancercompass.com/common/guidelines.html--
. This note just really tells what happened to me and what course I'm taking. It sounds like you're making some progress with your treatment. I'm getting ready to leave right now, so will respond to your latest message later. Glad you got back to me!
I just previewed this reply and it has all the "jibberish" after my reply message and the copy of the message I sent you on the 20th. And I can't seem to fix it. So just scroll down until you get to the first message I sent. Sorry about that!
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Hi Gary & Sun!
It was so nice to hear
from someone with this same illness. Although I feel so badly that Sun
has had to go through so much more than I have. I just started having
abdominal pains especially after eating in mid October. I went to my
primary dr Oct 30 who thought it was gall stones. He sent me for an
ultrasound that same afternoon which showed a stricture at the end of
the bile of duct. He also did blood tests which showed elevated liver
enzymes. I had had my yearly physical Sept 19 and my liver enzymes were
perfect. That next morning I had an MRI which showed the stricture
again, but no gall stones or tumors. That weekend I became jaundiced.
On Nov 5 I had a ERCP. That dr said he saw nothing suspicious and
thought it was papillary stenosis. He put a stent in the bile duct, and
in two days I had no jaundice. He also took scrapings from inside the
bile duct, but said he expected them to be normal. That next day when
pathology came back, the GI dr called to say that the scrapings showed
malignant cells. What a shock all this was. I have to say that I had
gone to my primary dr for 20 years so we had a personal relationship.
He acted so quickly and referred me to one of the best GI drs in Columbus.
That dr then referred me to the top gastrointestinal surgeon in
Columbus who had performed 42 whipple procedures last year. I talked to
my primary dr about the surgeon (after all, you're putting your life in
his hands) and he said that he would be the surgeon that he would take
his wife to if the same thing would happen to her. My first appt with
the surgeon was Nov 15th and my surgery was the 20th. He said the
surgery went "text book" perfect and only took 3 1/2 hours. I did so
well in recovery that I didn't even have to go to ICU. I had liquids 6
days after surgery and solids in 8 days. I was discharged on the 9th
day. I've only had two bouts of vomiting. Once in the hospital and once
my first night home. I'm eating well, although smaller amounts than I
used to. The nauseous feeling I've had I compare to that sick feeling I
experienced early on in my pregnancies, although that is getting better
all the time. I still have some pain getting up and down, but nothing
severe. I know I am very fortunate. I've lost about 9 pounds since my
surgery which I think is pretty good. Compared to Sun, I feel like I've
really cheated the odds. I am older (60), and I weighed 160 going into
surgery. I think the difference might be the drs that I've had. I would
definitely see another surgeon if I were you. I also have to tell you
that the worst experience I've had is when they took the drainage tubes
out of my abdomen. Mine were in 3 weeks and 2 days and that was
probably the worst pain I've ever felt when they took them out. If I
ever had to have that done again, I would definitely want to be
sedated. The best advice I can give is a positive attitude. I'm lucky
to have a huge support group of family and friends that have helped
tremendously. Two of my best friends have recently gone thru cancer
treatment and they're the ones that I can really rely on since they've
been through this. We just had our 6th grandchild born Dec 9, which was
my first outing since surgery. Even though it's not always easy to find
something to laugh about, try. I mean ampullary cancer! C'mon! Who in
the world gets ampullary cancer! My friends say that they would expect
me to do something weird! Sun, hang in there. I'm so sorry that you're
having to deal with so much more than I did. But you just take each day
at a time, and if you nap just 5 minutes less than you did yesterday,
that's improvement. If you can eat one bite more, that's improvement.
And if you can sit up just 5 minutes more, that's improvement. Count
your blessings. Laugh at something stupid. Take a phone call when you
don't feel like talking to anyone. You must have a wonderful husband
for getting on this message board for you. Don't feel guilty for
relying on him. Use his strength. Be open to visiting another dr. I am
here to listen to you when you feel like writing. I have a feeling we
can help each other. And my name is Nancy Chapman! London is my hometown that we moved back to five years ago. It's a small town about 25 miles west of Columbus, Ohio. I have 3 grown and married children. Our son lives in Westerville, a suburb of Columbus and about 45 minutes away. Our oldest daughter lives in Dayton, also about 45 minutes away. And our other daughter lives just outside of London,
about 15 minutes away. We actually babysit her 6 month baby! My husband
is the one who does all the work, I just sit and hold him occasionally,
but what a joy it is just to do that. There's nothing like a baby to
make you smile. My husband, Mike, and I have been married 36 years. He
actually just retired October 31st! I don't know how we would have
handled all of this if he would have still been working. I count each
day as a blessing and a gift. So keep taking baby steps, and we're both
going to lick this. I look forward to hearing from you.
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