Alone On Christmas And Worried

Ok, I have been reading everyone else's posts and I have to be honest and say that a lot of them are scaring the crap out of me! I am in the military and although I am very proud to be in the military, I do not believe that we really get the best medical care. The docs are usually cold towards us and not very informative. I have CIII which in my opinion is very serious! But they do not make it out to be anything. I am seeing other posts with women that have CIII (severe displasia) and their docs are recommending a hysterectomy! I am 22 years old and I would really rather die than have one! Everything that I have done in my life up to now has been built around me having a family one day! Military, college, getting engaged... everything! I have had such minimal partners and long term relationships.... IDK how this could happen! Right now I am in Korea and my last doctor couldnt even speak English! How are you supposed to get any questions answered when he cant speak English??? Any help would be greatly appreciated!

Questions:

1) What were your doctors recommendations for severe displasia?

2) Should I have children sooner (as far as my health goes)?

3) I had LEEP done a week ago... how effective is it?

4) I have a smelly odor (discharge) from LEEP, is this normal?

CIII = CIN III

Severe Dysplasia

 I could not think of what it was called!

Thanks!

<3 C 

Dear Worried-

Like you, I had severe dysplasia in my early 20's.  I had a "mini" LEEP.  I followed up religously with colpos and paps..I am now 43, had 3 kids without trouble and have NEVER had an abnormal pap since.

A hyst is not necessary-seek many other opinions!!!!

Just a word of support.  Agree that you need other opinions if anyone has even mentioned hysterectomy for CINIII at your age. 

As long as the LEEP and the scraping above that (if done), called an ECC, were clear at "the margins" (the edges of where they cut the area out) the LEEP is very effective.  That is not to say that you may not have dysplasia come back at some point, but it will likely save a hysterectomy and it not a threat to your life. If you have something worse on the final pathology report (not likely at your age, but possible), then you really need to seek another opinion....but again, it is usually possible to avoid hysterectomy.

Discharge is normal after a LEEP, for weeks if not a month or so.  As long as you don't have increasing pain or fevers you should be OK.  If you have these symptoms or if the discharge is foul and getting worse, then go in to make sure you don't have an infection.

Hang in there...get all the pathology information from the LEEP and seek another opinion when you get a chance.

Dr V

www.gyncancerdoctor.com

Hi,]

I know that these boards can scare you and they can also help very much. All I can do is tell you my story and not at all to worry you but to help you ask the correct ? and get the proper test and treatment if needed. I had a pap in Aug 2007. This pap came back severely abnormal (that is what they told me on the phone) I had to go in and get my results and a referral to an oncologist/GYN. I found out that day that my actual results came back "Favor Neoplasia not to dis include HGSIL with squamous cells possible Cin111" I was referred to the doctor and as soon as the doctor came in I started to cry. The doctor informed that they were going to perform a colposcopy and that the results I was given was just a pre-cancerous condition and does not mean I have cancer. The doctor did the colp and stated that everything looked good and she saw no areas that looked worrisome, that made me feel a little calmer while waiting for the results which came back one week later to the day. The doctor called and said that I needed to come in my results came back and I was now diagnosed with "adenocarcinoma in situ" I would need to come in for a leep and an endometrial biopsy ( this scared me to death since I had read post on the biopsy and some of the women had such trouble with pain and bleeding afterwards) I went in and was told that I was going to have an endometrial biopsy but that I was being referred to another doctor, an Oncologist/GYN/Surgeon and the appointment would be scheduled for after my results came back from the endo biopsy which they were going to do and then pass the results over to the doctor. They also made the appointment for me (everyone was so nice too me) I also found out the day of my endo biopsy that my new diagnosis was also a pre-cancerous condition. The next day I was told by my case worker that I was actually diagnosed with "Adenocarcinoma in situ encapsulated". I had an appointment on 11/20/07 with the newest doctor I was referred too thinking I was going to have a leep.  The doctor is wonderful I would refer him to anyone dealing with "C" diagnosis which I still had not gotten yet although from the very first moment my pap came back abnormal I knew I had cancer (and not a pre-cancer). The doctor did an exam and looked over all my past results of the many different test performed. ( I started crying ) He said he was sorry he didn't think he was scary enough to make someone cry:). He drew me a sketch sort like a family tree showing where I was on the Cancer pre-cancer scale of things.  The doctor left then came back in about 15 minutes later saying he had scheduled me for surgery to perform a cold cone biopsy the very next day WHAT? ironically that was also my son's 17th b-day. I asked why not a leep? He said that he could tell I had been through so much and he wanted to get  more conclusive results. I was so scared, I had never had surgery before and with all the stuff in the news about Kanya's mom, and the movie trailers for that movie "Awake" I was literally a wreck. I had my cold cone everything was fine. Oh my endo biopsy came back normal so I had some good news. One week later on the day my doctor was to leave for 12 days on vacation I get a call from him saying the results from the cold cone came back and I do have cancer (not pre-cancer) My new diagnosis is "Invasive Cervical Cancer staged at 1A2 I am scheduled for a hysterectomy with removal of the lymph nodes and the ovaries, a washing and check of the margins on 1/7/08. There are so many precancerous conditions and many dysplasia's cure them selfs and never turn into cancer (I guess I drew the short stick;) There are many options and test for you before you have to make a decision of a hysterectomy.  There is another website that I have found to be helpful and have spent many nights on looking for answers and reading post by others about cancer and now I am consumed with finding info on pre-op eek.. it is called hystersister. This website and that one have been so very helpful to me I would not be where I am now without them. Good luck and I wish you the best. Just ask millions of ? and find what ever comfort and support you need! I cried so much before I finally got my "C" diagnosis and now that I have my surgery coming I am getting scared again, not about the surgery but the afters IE... pain, comfort, complications, learning to pee again all sorts of things. I hope I helped a bit I know this was long but I know how much reading others stories has helped me and so I just want to do the same for others going through being told they had a bad pap.