On 12/29/2007 Bucksnorts wrote:
hello and bless your mums heart, I also had bad constipation problems with thalidimide, the one thing I found to do is to NOT use any type of fiber , this seemed to only increase the size of the stool.Senokot-s,taken as directed on the bottle helped, also the glycern cone shaped suppositorys helped in lubrication. In my case the problem lasted as long as I was taking the thlid.The major problem seemed to be getting the stool ,to start.this is where the lube helped. Now I still had to strain and push,until the natural function of the body took over, cramping and fluid stool would preceed the total passing of what ever was in the colon. Now I also drank large amounts fruit juice, and dont ask me why, but the ones with the highest amounts of acid seemed to helped the most. Dot get me wrong, this was a long process,{when the passing finally occured}.and somewhat painfull. It seemed to occure in three day stages, I generally knew what was going to happen on the fourth day and actually planned for that day to be used as such I hope this helps e-mail me at any time ,sincerely jack barry
Thanx Jack,
What a sweet message from you. I appreciate it. As you will read Mum has decided to go off thalidamide. Most patients go off it due to constipation.
Thal has way too many side effects for my liking. What quality of life do you have with side effects like these. Not much going by my mum. Sleeps during day, constipation, numbness has her tablet at 7.30 and becomes drowsy so going out at night s not an option. weakness etc etc.
We will have a chat to doc and might consider chemo tabs or velcade???
Thanx again and happy new year..
Melanie xo