High Psa/Gleason

My PSA was 76.4 and Gleason of 9. I was 56 yrs.   My biopsy was 16 punches.  Four were PIN,  7 of the other 12 had tumors up to 15% of volume.  My rectal MRI showed the cancer was outside the prostate, but the doctors did not say how far.  Bone and CT scans did not show any spread to bones or nodes so far.  The Drs said surgery would statistically not be able to get all the cancer so radiation was my best choice.  I started on Casodex for 4 months and hormones for 2 years after the radiation.  I also had 12 infusions of Avastin which was from a study group I got in. 

My PSA is now 0.01, but I am on the hormones for 18 more months. 

Does anyone know of anyone with these high scores that survived any length of time until the PSA started up and the cancer returned?   Or any other info that might be useful.

When I found out that I had prostate cancer 2 years ago I was devastated and searching for hope. My father and 2 uncles had died from PC and I thought that there was nothing I could do.  I talked to several PC survivors but none of them had it as bad as mine so it was hard to relate to their situation. Friends told me to talk to Larry because when he was diagnosed his psa was over 100 and he had gleason 9 and although he had surgery it was already in his system.  The doctors told him he had 6 months to live. Well when I first talked to Larry he had been dealing with it for 8 years and as I write to you it has been 10 years.

So there is hope. He has done hormones, radiation, chemo and a strict diet with vitamin supplements. He has been able to maintain his psa around 2.5.  I thought if he can do it so can I. You can too.  Good luck and God Bless you.