Concerns

I am 42, had my tubes tied in March 07. I was having terrible left hip pain since July 07 which brought me to the ortho in Oct 07. He had me do a pelvic MRI which found cycts and fluid on my left ovary and also adenomyosis. He sent me to the gyn for TVUS, well dr did exam first, only felt my left ovary and I had no pain and thought it was just ligaments. Results of TVUS, cysts on left ovary, adenomyosis, complex cyst on right ovary with fluid. This prompted him to do a CA125, it came out at 57, he sent me to the gyn/onc who did a vaginal/rectal exam and said it didn't "feel" like cancer, but he couldn't rule it out. My options, another TVUS which I had sceduled anyway for the next day and a follow up CA125, or I could do a biopsy or hysterectomy since I do have adenomyosis and don't want any more kids, he will do it laporscopically. I still haven't received the official results of that TVUS though it was done on Dec 19th. The prelim showed my right ovary changed shape and size, got bigger and has a septated cyst. That's all I know so far, oh, and there are still two cysts on left ovary. Official report should be done Monday. I have my follow up CA125 on Tues and my preop that day too where they will test me for everything. I have had the symptoms of OVCA since about Thanksgiving, bloating, constipation, gas, nausea, and severe pains..have some weird spotting between periods not every day though, but it has been more than 5 times, clumpy pink stuff. I am scheduled for the hysterectomy on Jan 16th..decided I didn't want to take any chances and didn't want biopsy then hysterectomy since I need it to get rid of the adenomyosis pain. Also found out from reading historical records that from 94-96 I had PID not caused by an STD, but nobody did anything. Also have a history of painful ovarian cysts. I am very concerned and stressed that it will be cancer, I lost my husband 8 months ago and have two children...the stress is hard. Anyone have these symptoms and have OVCA or not? The change in my ovary and the septation concern me too. Thanks for your help.

 

On 1/5/2008 NYPrincess wrote:

I am 42, had my tubes tied in March 07. I was having terrible left hip pain since July 07 which brought me to the ortho in Oct 07. He had me do a pelvic MRI which found cycts and fluid on my left ovary and also adenomyosis. He sent me to the gyn for TVUS, well dr did exam first, only felt my left ovary and I had no pain and thought it was just ligaments. Results of TVUS, cysts on left ovary, adenomyosis, complex cyst on right ovary with fluid. This prompted him to do a CA125, it came out at 57, he sent me to the gyn/onc who did a vaginal/rectal exam and said it didn't "feel" like cancer, but he couldn't rule it out. My options, another TVUS which I had sceduled anyway for the next day and a follow up CA125, or I could do a biopsy or hysterectomy since I do have adenomyosis and don't want any more kids, he will do it laporscopically. I still haven't received the official results of that TVUS though it was done on Dec 19th. The prelim showed my right ovary changed shape and size, got bigger and has a septated cyst. That's all I know so far, oh, and there are still two cysts on left ovary. Official report should be done Monday. I have my follow up CA125 on Tues and my preop that day too where they will test me for everything. I have had the symptoms of OVCA since about Thanksgiving, bloating, constipation, gas, nausea, and severe pains..have some weird spotting between periods not every day though, but it has been more than 5 times, clumpy pink stuff. I am scheduled for the hysterectomy on Jan 16th..decided I didn't want to take any chances and didn't want biopsy then hysterectomy since I need it to get rid of the adenomyosis pain. Also found out from reading historical records that from 94-96 I had PID not caused by an STD, but nobody did anything. Also have a history of painful ovarian cysts. I am very concerned and stressed that it will be cancer, I lost my husband 8 months ago and have two children...the stress is hard. Anyone have these symptoms and have OVCA or not? The change in my ovary and the septation concern me too. Thanks for your help.

I am so sorry to hear your worries,  please try not to worry, there are so many symptoms of OV and all the stress you have been under it is easy to understand your concerns.Have faith in your doctors and think positive. Your in my prayers.

I'm a 3 year survival of Ovarian cancer stage 3c.  Doctors kept telling me that I had a "partial bowel obstruction" caused by abhesion from having c-sections.  This went on for 15 years.  It wasn't until I had a cyst on my ovary that was 18cm.  I felt like I was pregnant!!  But the doctors didn't think it was cancer.  I had one doctor tell me that I couldn't have cancer because I was overweight.  Another doctor told me that I had a better chance of getting hit by lightning that to get cancer. 

When the doctors drain the cyst they found 6 malignant tumors.  I was 47 years old.

I'm not trying to scare you this is not my intent.  But I can't pat you on the head and tell you that everything will be ok.  Learn as much as you can about ovca.

Please let me know how the surgery cames out.  I do pray that it's not ovca. But know that you are not alone.

 

A so called cyst on my right ovary that ruptured was how my GCT Ovarian Cancer was discovered.  Don't take any chances.  If your ovareis are irregular and you are experiencing the syptoms of OC find out now what is going on.  I had surgery in June and went in for a normal hysterectomy for that so called cyst and found out when I came out of surgery that I had cancer and it was the rare type that grows inside the ovary.  It could not be determined from the ulta sounds that this was my prolbem.  It was only found when my surgery was done.  It has been a long process of healing but I am almost finished now.  One round of treatment and it will be over for me.  I have already been given the good news that I am cancer free.  I wish you the best of luck and hopefully your problems will turn out to be nothing.  I don't mean to scare you but you should also know that sometimes these things don't turn out so simple.  Ask lots of questions and get the answers.  Good luck!!!!