HIFU complications

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HIFU complications

by timur on Sun Jan 06, 2008 12:00 AM

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I am thinking to have a HIFU treatment, some data indicates that there is 20% probability to have urination problems after treatment. 20% seems to me a big. During the procedure doctor completly ablated a prostate and prostate uretra. So uretra has to be restored some how for 2-3 weeks?Potential problems here for old person?

 Anybody have expirience with HIFU post complications? What kind of ? 

How you approach this being in an other country, away from doctor who performs the treatment?

When one left Canada or Mexica after treatment and come home to US, How American urologist, without proper training with HIFU, would be able to treat those complications?  Take responsibility ? Those things are really bother me, and probably others.  Any soughts or expirience ?

 

Thanks a lot for your time and responses,

Timur

RE: HIFU complications

by Johnw100 on Wed Jan 09, 2008 12:00 AM

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I believe HIFU treatment is something more familiar in USA recently, so it should now be easier to at least find a local doctor familiar with it to consult when you return. The HIFU consultants should recommend a local doctor for you before hand.

The 20% figure you mentioned is probably a figure for possible  short term side effects. I have heard that short term side effects can sometimes be more acute than is the case with surgery.

Youl could look at the yananow site under mentors experiences for detailed stories from many men who have used various treatments, including HIFU.

 

RE: HIFU complications

by timur on Wed Jan 09, 2008 12:00 AM

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On 1/9/2008 Johnw100 wrote:

I believe HIFU treatment is something more familiar in USA recently, so it should now be easier to at least find a local doctor familiar with it to consult when you return. The HIFU consultants should recommend a local doctor for you before hand.

The 20% figure you mentioned is probably a figure for possible  short term side effects. I have heard that short term side effects can sometimes be more acute than is the case with surgery.

Youl could look at the yananow site under mentors experiences for detailed stories from many men who have used various treatments, including HIFU.

 


Hi Johnw100,

 thnk you for response. I have tried to look at yananow.com any personal stories for an hour.. no luck.  Could you please navigate me to " mentor expirience" ? Step by step if possible.

 

Thanks alot,

Timur

RE: HIFU complications

by Johnw100 on Thu Jan 10, 2008 12:00 AM

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It is .net

Go to www.yananow.net

Then to: If returning visitor please enter here

Then to: mentors experiences

Then go down down down through the various treatment stories until you come to hifu

The site has lots of information and first hand stories from men about all treatment options they have used.

 

 

RE: HIFU complications

by Vtmax on Thu Jan 10, 2008 12:00 AM

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Hi, I had hifu June 28 in toronto and as for complications... none really, had to have a catheter for 12 days, a god-awful experience, still experience minor incontinence nothing unmanageable tho. Have been able to have sex again after 3 1/2 mos. with assistance of course. All in all I feel good, the recovery curve is faster than other treatments. My local uro. has been cooperative and supportive, after all it is your decision and my feeling is that all the treatments are experimental and the charts and figures can be manipulated anyway. I'll tell you more if want.   max

RE: HIFU complications

by doughifu on Sat Jan 19, 2008 12:00 AM

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Hi, Had HIFU at Maple Leaf Clinic in Toronto in May 2006. I took the catheter out after 7 days, and though for about 30 days I found myself urinating more and having feeling like I was never "empty", have had ZERO complications. In fact, I chose HIFU because of the myriad of complications I realized were way more prevalent with the other procedures. Have 2 friend who had surgery- both have incontinence and impotency problems- Had sex 2 weeks after the procedure! Took no pain killers and don't use viagra. Am 56 yrs old, in gym every day, and quite frankly don't even think about my past "problem". If quality of life is big deal, then I can think of no other procedure than HIFU. Hope this helps Doug

RE: HIFU complications

by purpleeternal on Tue Jan 22, 2008 12:00 AM

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On 1/6/2008 timur wrote:

I am thinking to have a HIFU treatment, some data indicates that there is 20% probability to have urination problems after treatment. 20% seems to me a big. During the procedure doctor completly ablated a prostate and prostate uretra. So uretra has to be restored some how for 2-3 weeks?Potential problems here for old person?

 Anybody have expirience with HIFU post complications? What kind of ? 

How you approach this being in an other country, away from doctor who performs the treatment?

When one left Canada or Mexica after treatment and come home to US, How American urologist, without proper training with HIFU, would be able to treat those complications?  Take responsibility ? Those things are really bother me, and probably others.  Any soughts or expirience ?

 

Thanks a lot for your time and responses,

Timur


My husband had the HIFU treatment done in Cancun  with Dr. Suarez. Things have gone fairly well so far, he does have some problem with ED.

He had the procedure done on 11/04 ,so he has not gone the three mths to get his psa retested.

We did have some problem with his uroligist not wanting to treat him after he said he would. We think he was not happy because we had robotic surgery scheduled and chose to go with HIFU and cancelled. Ended up having to go to the emergency room to get his catheter out cause this Dr. kept putting him off. Anyway so far urinary function is much better than before the treatment and we are hoping for the best.

RE: HIFU complications

by Chicago on Sun Jan 27, 2008 12:00 AM

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Hi,

My friend had just went through the HIFU procedure in December 2007.  He had it done with Dr. Uchida in Japan.  It was a great experience.  He is 57 yrs old and had a PSA of 4.3 with a gleason score of 3+3(6). He had the HIFU plus Turp procedure.  The staff at the hospital were wonderful and was always helpful and accomodating.  We didn't have the procedure done at the main hospital because it was booked but had it at a private hospital-FUJI KOSEI.  He was in the hospital for about 4 days and then released.  After the first day or so, he was able to move around but with some pain and a catheter. He left Japan and headed back to the US with a catheter in for 2 weeks.  When it was removed, he had no problems urinating.  It's been 5 weeks since the procedure and has been doing well.  The only thing he feels is a little pain still.  He got his PSA results this week(after 5 weeks) and it went from a 4.3 PSA to 0.45.  What a great result!  We will keep monitoring the PSA every 2 months.

I hope this helped.  Please email me with any other concerns and questions that I may help you with.  We are very happy with the results from the HIFU procedure. 

 

RE: HIFU complications

by PostHIFU on Sun Nov 16, 2008 12:00 AM

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My father had a similar treatment which is a combination of Turp and HIFU. a week ago in Istanbul, Turkey by Prof. Kural. He was at T1 with a confined case and he is 76. Post recovery is significantly impressive from the perspective of patient's regaining strength to go about his usual daily activities.

His hospital stay was 3 days and the catheter was removed prior to his release from the hospital. THe medical team and hospital staff were efficient and supportive.   

We will have to wait for 4 weeks before getting a new PSA count.

So far, our experience is limited to regaining strength to go about as independently as possible which is good. There is some pain in the urinary tract which we are trying to manage with oral pain killers.

On 1/27/2008 Chicago wrote:

Hi,

My friend had just went through the HIFU procedure in December 2007.  He had it done with Dr. Uchida in Japan.  It was a great experience.  He is 57 yrs old and had a PSA of 4.3 with a gleason score of 3+3(6). He had the HIFU plus Turp procedure.  The staff at the hospital were wonderful and was always helpful and accomodating.  We didn't have the procedure done at the main hospital because it was booked but had it at a private hospital-FUJI KOSEI.  He was in the hospital for about 4 days and then released.  After the first day or so, he was able to move around but with some pain and a catheter. He left Japan and headed back to the US with a catheter in for 2 weeks.  When it was removed, he had no problems urinating.  It's been 5 weeks since the procedure and has been doing well.  The only thing he feels is a little pain still.  He got his PSA results this week(after 5 weeks) and it went from a 4.3 PSA to 0.45.  What a great result!  We will keep monitoring the PSA every 2 months.

I hope this helped.  Please email me with any other concerns and questions that I may help you with.  We are very happy with the results from the HIFU procedure. 

 


 

RE: HIFU complications

by Jgelman on Mon Jan 10, 2011 04:59 AM

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I am a Reconstructive Urologist and specialize in male urethral-penile disorders.  A high percentage of my practice is devoted to urethral stricture disease (I do not do prostate cancer surgery).   I have seen some very severe complications of HIFU.  When I look at the HIFU promotional websites, I see statements indicating how it "harmlessly" "targets" the cancer with "pinpoint accuracy" "without damage to the surrounding tissues".   I do not see the success stories, and certainly patients are treated because they have cancer and believe the risks of not treating the cancer outweigh the risks of treatment.  However, you should know that HIFU can be associated with significant damage to the surrounding tissues.  I have seen patients who have developed severe recurrent strictures including a total urethral obliteration extending from the bladder to the urethra beyond the sphincter.  When these complications occur, there is a serious impact to the patient's quality of life.

 

Just this past month, I saw a patient with terrible recurrent stricture disease  after HIFU and was contacted by another patient who underwent multiple procedures to treat the urethral blockage and needs to insert a catheter in his urethra to empty his bladder.

Should you wish to see specific X-ray images outlining the damage that can be caused, you can find this information at"

http://www.centerforreconstructiveurology.org/prostatecancer

I hope posting a link is not a problem.  I have no personal interest in any particular cancer treatment options and have no relationship with any companies or industry.  Again, I am not trying to suggest that HIFU should not be considered as I do not see the patients with excellent results.  I just want you to be aware that severe complications CAN happen and that suggesting otherwise is perhaps a biased viewpoint.

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