I was diagnosed with ET a couple of months ago. I am 36 yo and they found out I had this because at the beginning of the year I had my thyroid removed (totally unrelated) and since then they've had to test my blood frequently. Even before my surgery my platelets were elevated and my Drs were slightly concerned but since then they have gone up and up and when they reached over a million I had to have my bone marrow biopsied. My Dr told me I had ET and had to start taking hydrea. I am curious by nature and did alot of research on the drug and am very concerned about starting that at this point in my life since I have a long time (hopefully) to deal with this disease. On a side note, I have never had children and have not quite given up hope. I know what the drug does to unborn children and I feel that it would be somewhat irresponsible for me to start this treatment when I know in my heart I would want to get pregnant. At this point my Dr is thinking I am being unreasonable but also said I would probably do ok with just an asperin a day until I am a little bit older and treatment will become necessary. I don't know if I am in denial but because I have had no symptoms I am more afraid of the treatment than I am of the disease. This is definitely not cut and dry and because I am having to make choices about my health I feel like I need some support from people that really understand!!! Please help me make, what could be, the most important decision of my life.
As it appears that people don't keep up with this message board to often, pls feel free to just email me so we could chat more 1 on 1.
My address is
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I would appreciate all the help I can get.
Thank you for reading!!