Pecoma Cancer - Help Required

Hi,

I have a friend who have just been diagnosed with PEComa cancer last year. It's a very rare cancer according to the doctors here in Singapore. Can some kind soul please help?

Hi,

I was diagnosed with PEComa in May 2006 and I'm still around. I was initially diagnosed with Uterine Leiomyosarcoma after a hysterectomy to remove a large fibroid.

How can I help? 

Hi, I was diagnosed with a pecoma in march.  Everyone has different ideas about what I should do.  Can you give me any tips?

Thanks

Hi,

When I was first diagnosed there wasn't much in the way of printed material so over the past two years I've collected several of the articles.  I live in California and I've seen two of the most prominent sarcoma doctors on the West Coast.

My primary site required a hysterectomy but from what I've read, this type of sarcoma can occur anywhere.    My pathoogy report indicated that I had two of the three worrisome elements in staging my tumor.  Because of this my doctors decided to follow my radiation treatment with chemotherapy,  It wasn's as scary as I thought it was going to be.  I have a wonderful support structure both at home and at work.       

What type of info are you looking for?