One patient with glioblastoma still alive nine years later
by dorisdaughter on Fri Jan 18, 2008 12:00 AM
by tifiebean on Fri Jan 18, 2008 12:00 AM
On 1/18/2008 dorisdaughter wrote:My mother has recently been diagnosed with recurrent lung cancer. She was originally diagnosed in 2004 with small cell lung cancer which responded successfully to chemoradiation therapy. Now, she has been diagnosed with NSCLC, stage IIIB, and we have begun treatment with Tarceva as a first line. Has anyone else out there had experience with Tarceva as a front line therapy? Also, how quickly should she begin to see symptoms such as the rash? She has been taking for exactly one week now and of course we are on pins and needles. By the way, Doris is almost 84 years old and still works every single day. What a trooper.Thank you for your response.
My father has stage IV lung cancer and has been on Tarceva as first line therapy for about 4 months. We are really lucky as he has been responding really well to treatment. His primary tumor has shrunk by about 50% so far and he lives a totally normal life. There are certain characteristics such as female, non-smoker, EGFR mutation, and Adenocardinoma for which Tarceva is particularly effective. He developed the rash after about 3 days on treatment but this is very different for everyone. In fact, some people don't develop a rash at all and it's working for them. Best of luck!
by Rosalind on Fri Jan 18, 2008 12:00 AM
My mother was on Tarceva as a first line of treatment-- part of a study for Dana Farber. Unfortunately, it did not work for her. She never got the rash, which seems to be an indicator that Tarceva is working. Good luck to you and your mother. Roz
by Chessie on Fri Jan 18, 2008 12:00 AM
Doris certainly is a a trooper! How wonderful. I am being treated by Tarceva 150 as first line for NSCLC stage IV. I have been on it almost 15 months. The tumor in my left lung is no longer active. The primary tumor in the right lung has shrunk 57%. It was about 7-10 days before I got the rash and side effects. Tarceva is a great drug. Everyone is different in the response time. But don't give up. Give it a chance to work. You didn't say what dose she was on. The higher the dose, the more apt to get the side effects quickly. I've had to drop my dose to 100, then up to 125, and go back to the 150 due to the side effects. But I am also still working and doing everything I've always done. I'm 60. So hang in there. Doris sounds like she's got the drive to do it and beat it again. God Bless you both. Nancy
by 500smwhr on Sun Jan 20, 2008 12:00 AM
by dorisdaughter on Mon Jan 21, 2008 12:00 AM
by Nancy3 on Wed Jan 23, 2008 12:00 AM
by Sterling on Fri Jan 25, 2008 12:00 AM
My father has been on Tarceva for the past 2 years now and thankfully doing very well. I remember he had some stomach problems at the beginning. All that went away after his system got used to the medicaton.I think he had a little redness after a couple weeks on the medicine. The redness comes and goes and to tell you the truth I can barely notice it. He tells me he has come to think of the Tarceva as a vitamin pill. His attitude is great and he is trying to view the lung cancer like a chronic condition. He received his diagnosis 3 years ago, he was told he was in late stage and it was inoperable. At present his latest scan showed his cancer is stable . For anyone out there just trying Tarceva try to work through the side effects, it really is an amazing drug.
by michellelee on Sun Nov 30, 2008 12:00 AM
by minlu001 on Sun Jan 02, 2011 06:09 AM
How is your father doing now? My brother has stage IV lung cancer with bone mets. He just had Tarceva for a month. We don't know if this will work wonders. He does seem to respond to the drug right now.
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