One patient with glioblastoma still alive nine years later
by RobinDee on Fri Jan 18, 2008 12:00 AM
My Dad's appetite isn't so great but he's hungry and says he wants to eat but he says a lot of the food tastes bad (and this is stuff he's liked before, not that we've suddenly become terrible cooks). He has even said a few times the food tastes metallic. Any one know why this may be? And/or anyone know what might taste good? He likes his ensure's and if he won't eat his regular dinner we make him a whopping ice cream shake with an ensure thrown in there too (just so he's got something in him as he has lost about 10 pounds, which doesn't sound like much but he's 5'9" and pre-cancer only weighed about 150--skinny!!)
by mmsurvivor on Fri Jan 18, 2008 12:00 AM
I do not know if he is still receiving radiation but that is classic radiation poisioning symptoms. I had the same problem even water tasted that way...Something called iodoral helps. If he is on chemo same problem. If it is possible to give him a weeks rest of all meds do so. That will greatly help. I did that. I also would have his platelets and WBC count checked this is a good indication of what it happening. All the best on this as I know exactly how he tastes food. UGH NOTHING TASTED GOOD!!!
On 1/18/2008 RobinDee wrote:Hello,My Dad's appetite isn't so great but he's hungry and says he wants to eat but he says a lot of the food tastes bad (and this is stuff he's liked before, not that we've suddenly become terrible cooks). He has even said a few times the food tastes metallic. Any one know why this may be? And/or anyone know what might taste good? He likes his ensure's and if he won't eat his regular dinner we make him a whopping ice cream shake with an ensure thrown in there too (just so he's got something in him as he has lost about 10 pounds, which doesn't sound like much but he's 5'9" and pre-cancer only weighed about 150--skinny!!)-Robin
by tongrenhealer on Fri Jan 18, 2008 12:00 AM
by kc1102 on Fri Jan 18, 2008 12:00 AM
My father was experiencing that quite a bit. I have him on several natural supplements and he told me that when he drank green tea, it seemed to go away. he also said when he took his astragalus supplement, it went away as well. I never read anything about these supplements helping with that side effect but perhaps it does or it was mental ( which i believe can have a big effect on things) but it is worth a shot to see if your dad responds the same way. These supplements cant hurt as green tea has been shown to kill cancer cells and astragalus is commonly used in asian cancer treatment to keep white blood cell counts up and strengthen the immune system. I also read that pickles can counteract the taste. Also, a fellow patient at my father's oncologist suggested switching to plastic utensils and that seemed to help some as well.
by Be_Positive on Tue Jan 22, 2008 12:00 AM
I posted the exact same message about my dad a month ago and got some of the same responses.
Try hypnosis if nothing else seems to work.
My dad had thrush, tonge bacteria due to low immunity from RT. They prscribed a mouthwash called nystatin (or something like that).
Take him to the grocery store and let him pick foods that he thinks will tase good.
Show him lots of love.... most of all.
by jocall on Tue Jan 22, 2008 12:00 AM
I have found that when I get that metalic taste in my mouth and feel nauseous that if I chew on a little parsley out of the garden the strong flavour of the parsley overtakes the metalic taste in my mouth and helps with the feelings of nausea. I may chew on parsley several times a day and I do find it helps me. Sounds crazy but it works for me.
I have also heard if you use plastic utensils it makes a difference but are yet to do it.
All the best and trust you find a solution.
by poppycath on Tue Jan 22, 2008 12:00 AM
by Clairebear907 on Sun Nov 03, 2013 06:52 AM
On Jan 22, 2008 12:00 AM poppycath wrote: HI Robin ~ I agree with several of the others that his metallic taste has been caused by the drugs and that it will go away - eventually! However, it is really important to try to get him to regain the weight that he has lost and I'm sure that you've already found that the first thing that they do when you show up for an appointment is to weigh him, and if he's lost anything the alarm bells start!! The aim is to regain what has been lost - which is not easy - or at least maintain what you still have! My wonderful husband was magnificent for I not only couldn't eat, but the smell of food was enough to make me vomit. For two months he cooked his meals outside on the B-B-Q and ate it on the porch rather than make the house smell of food. He prepared anything I wanted to try and I made a supreme effort to eat at least a few bites - to please him and in thanks for all the effort he was making. Eventually I found that I could keep down tuna casserole, custard with blueberries, and fruit smoothies made out of frozen Sara Lee tropical fruits together with a scoop of vanilla ice cream and some whole cream milk. Bob was rather sneaky too, for he would make me the most lovely cups of coffee which I later learned were made from 1/2 a tsp of instant coffee, together with a cup of hot whole cream milk topped off with a large dollip of cream. They were lovely coffee's, but very fattening and something that I would never ever had made for myself. But not knowing I happily drank them, and slowly over the next 12 months I regained 20 of the 50kgs that I had initially lost. Now I no longer avoid 'fattening' foods and I do not look for lite, sugar free, low cal, whatever foods. I have regained some of my appitite and I gradually start to eat by 2:00pm each day. The most important thing is to DRINK at least 2 litres of water everyday - summer and winter - and not as coffee or tea, but just as water. It is so important to keep hydrated and have the kidney's functioning so that you don't end up on dialysis! Encourage your dad to try -- even a couple of bites and initially use a butter plate as a dinner plate so that he is not overwhelmed by quantity. I found that having a small plate with a variety of options such as: a slice of ham, a couple of slices of cheese, some slices of apple, 2-3 little Ritz biscuits with butter, a couple of snap peas or a couple of raw string beans, some thin carrot and cucumber rounds, a couple of small pickles, a couple of cherries -- just a gathering of the sweet and sour things you have in your fridge so that you fill the plate and serve them in a casual setting - beside his arm chair while he reads or watches TV, whatever. Then he can nibble on whatever he chooses. Also having some finger food handy at all times, ie: nuts, sultana's, fresh finger fruit like grapes, cherries, blueberries, etc, or chocolate covered sultana's. Don't worry if he doesn't eat immediately, but if its available he will gradually start nibbling and his appitite will grow. Make sure that water is always beside him and keep encouraging him to drink. Best of luck to you -- with your support I'm sure that he will regain what has been lost, and perhaps even more!! Best wishes to you both, Cath
On Jan 22, 2008 12:00 AM poppycath wrote:
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