Metaplastic Breast Cancer w/Spindle Cells

My name is Terri and I just found this website.  I was diagnosed in April 05, with one tumor, and a Mastectomy and was told that chemo wouldn't be effective  with this type of cancer. I WAS with M.D. Anderson in Houston.  Two and a half years later, I found a lemon size tumor in my buttocks, and when they scanned me, they found one in my lung and one in my neck.  I did chemo (FAC) from September, and December 26th was my last one.  I got scanned a week later where nothing showed up.  I pray that it doesn't return and have been doing the cancer diet since September (lots of mushrooms, berries, and greens, and of course NO SUGAR).  I am now with Baylor, Dr. Kent Osborne, an amazing doctor for anyone looking for one.  If you google his name with Baylor after it, you can read a hundred of his websites,  He knows a lot about Triple Negative Cancer, which I have; I don't know if all of us with Metaplastic have Triple Negative. 

 Is Taxol recommended afterwards?  I have an appointment January 31 and I guess I'll find out the gameplan then, but at this point the plan is to keep monitoring me every two to three months. I am 45 with 5 kids and a great, supportive husband.

Please e-mail me if anyone has any other info on this.

Thanks!

Terri -

On 1/24/2008 terrib wrote:

My name is Terri and I just found this website.  I was diagnosed in April 05, with one tumor, and a Mastectomy and was told that chemo wouldn't be effective  with this type of cancer. I WAS with M.D. Anderson in Houston.  Two and a half years later, I found a lemon size tumor in my buttocks, and when they scanned me, they found one in my lung and one in my neck.  I did chemo (FAC) from September, and December 26th was my last one.  I got scanned a week later where nothing showed up.  I pray that it doesn't return and have been doing the cancer diet since September (lots of mushrooms, berries, and greens, and of course NO SUGAR).  I am now with Baylor, Dr. Kent Osborne, an amazing doctor for anyone looking for one.  If you google his name with Baylor after it, you can read a hundred of his websites,  He knows a lot about Triple Negative Cancer, which I have; I don't know if all of us with Metaplastic have Triple Negative. 

 Is Taxol recommended afterwards?  I have an appointment January 31 and I guess I'll find out the gameplan then, but at this point the plan is to keep monitoring me every two to three months. I am 45 with 5 kids and a great, supportive husband.

Please e-mail me if anyone has any other info on this.

Thanks!

Terri -

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I was diagnosed with metaplasic breast cancer in Oct 2007. I had a lumpectomy 11/27/07. In Dec I started Chemo

adriamycin &cytoxan every other week to be followed by

taxiol chemo for 4 weeks and then radiation (4) treatments.

I have not met or talked to anyone with our diagnosis HER/2  or HER/3. Medical Science does not seem to know what exactly to do with us : )  I am 58 yrs old with 2 adult children and a husband  i have known since the age of 12yrs old. I would like to be around to see grandchildren. I wish you luck. If there are more  (METAPLASTIC BREAST CANCER) LADIES I WOULD LOVE TO HEAR YOUR STORIES SINCE OUR CONDITION IS SO RARE!!!