Pancreas Cancer/ From Diagnosis to Death

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Cancer

by Whatiscancer on Mon Aug 08, 2005 12:00 AM

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Hi, today I spoke to my Mom, she said that she feels better today, but some other times, we would find her in bed all day long. My Mom will be going to MD Anderson within 3 weeks for more testing. As of the latest test of the pancreas, it came out negative only finding of mass... The next test is colostomy. I think.... at the moment, she is weak, still losing weight very fast...her skin color is much better now, no more yellowish.... however, I did notice that underneath her eyes there are some black spot like bruises...she said he bowel is hard and it is hard to go to the restroom... at the present time, her stent is still in her to help her with the waste releases...it working for far, that is why her skin turn healthier now. Very weak, and moody... Thank you for your email, please keep in touch with me about your husband...and you also help me in what to expect in this sort of health issues. Thank you again.

Pancreatic Cancer

by Tabertha on Fri Sep 23, 2005 12:00 AM

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I cant believe the amount of people in this world experiencing what my family has recently, I lost my father to Pancreatic cancer on the 10th May 2005 and he was diaognosed with it only 8 months earlier. I thought it only happened in other families but I tried to take it on positively. I had never seen death so close. My dad was a totally awesome guy who just lived life day by day with no complaints and didnt want for anything but the company of his family. He was a hard working, funny, popular handy man who never said no to anyone. Dads health had been an issue for sometime, he had dentures put in which his body rejected and he had a stomache infection that was wrongly medicated so he had felt unwell for about a year, also he was a diabetic for 2 years before his cancer but we all thought he was a champion for following the doctors orders and loosing weight, but as we discoverd later it was the cancer. I was angry at the doctors because i couldnt understand how being a diabetic and the pancreas producing insulin, how could they not have picked up on cancer the size of a lemon in there. He was suffering abdominal pain and after tests was told it was non operable he had big hope and didnt want to go, dad had every treatment available, he would often tell me that he was fighting a war of cancer and in that war came battles and every few months there was a new battle like beating the cancer in his liver and then his kidney and then his bones. Dad went into a real depression with his illness but would sometimes make jokes and tell us everything was going to be ok. He even organised his funeral cause he didnt want us all having to worry about any stress afterwards, I hated helping him pick out his coffin when he asked. My father was not religious (although catholic) he did call for a priest close to his passing. I do believe that his ancestors were waiting because he too would see them and talk to them and two nights before he died the dog went crazy trying to get inside. Dad was sedated most of the time and with the blue care he had found giving them a pain rate of 1-10 helped with his pain management to try to give him some relief. He lost all his independance and towards the end my mum was very emotionally and physically exhuasted as dad wanted to die at home and not in pallitive care at a hospital, between myself and my two brothers we all tried to care for him as best as we could, he loved having us all there again. I suppose i have just gone on and on but late at night when my kids are asleep and I am alone I think about him and my heart aches, I know god is looking after him now and hes with me but i wish i could just say hi and he would answer me or reach out and grab me like i miss so much. I dont have any comforting words for those that are going through this except i know my dad loved that i was with him almost every day of his illness smiling...my mum says going through cancer and all that pain was dads purgetry, and my husband says that death must be good cause nobody ever comes back, its an unknown that makes us afraid we just have to take in every moment here in life while our loved ones are with us! my thoughts are with you all. Xx

to Jodemus

by Xtina on Wed Sep 28, 2005 12:00 AM

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Hi, I have just read your message and I am so horrified to hear what you and you mother had to go through. I am 27 and the only daughter of my parents, my mam was my best friend, we did everything together. She was diagnosed with Pancreatic cancer at the end of July this year and her doctor started her on chemo(Gemcitabine), However it did not work and only caused her to get even more ill. We were told on monday the 12th of Sept that there was nothing else they could do for her as it was very aggressive and had spread to her liver, it was devastating news. But my mam being my mam kept on smiling and laughing and trying to make everyone else around her feel less sad. Sadly she passed away 2 days later on wednesday/thurs the 15th at 12.15 midnight, she was 57 years old. I am so thankful that I got to spend time with my mam without having to see her always in pain and struggling for breath, and she kept her positive and strong outlook to the end, I cant begin to tell you how proud of her I am.As it is only less than 2 weeks since she passed away the grief is still very raw but. It all happened so very quickly but I think it was best for my mam as she did not suffer a long drawn out death that was inevitably going to happen anyway as the survival rate with Pancreatic cancer is so extremely low. The day she died she was still sitting up and talking and sleeping on and off and I am so thankful that I had that, and she passed away suddenly but peacefully and with a smile on her face. I can only say that I am so sorry that you went through such a horrific time with your mother. If you would like to contact me to talk you are more than welcome. This is such a horrific desease and we can only hope that they find a cure for it one day, although it will be too little to late for our mothers at least future generations might not have to go through it. You are in my thoughts. Take care & God bless.

What to Expect: End Stage Pancreatic Cancer

by Sadncypress on Wed Sep 28, 2005 12:00 AM

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I read your posting and I sit here crying. I just found this site tonight and really could use some support. I wanted to tell you how sorry I am that you lost your mother. I have included a copy of my posting. I would appreciate any insight. Thank you so much. I would like to be prepared for what we may experience as my mother goes through the end stages of Pacreatic Cancer. My story is somewhat lengthy but if anyone has time to read this and give me some information in order to prepare myself and my family, I would really appreciate it. Here we go: My mom is 57 years old and was diagnosed in July 2005 with Stage 3/4 pancreatic cancer. In January of this year, she had started complaining of pain in her stomach and was incorrectly treated for ulcers and other gastro-type illnesses. Finally in June, the pain was unbearable. She went to the ER where a cat scan was performed and a tumor was found on her pancreas. Cancer was confirmed in late July. The doctors did not give her much hope. They said the cancer is terminal/inoperable and that chemo might help with the symptoms but would not "heal" her. We were prepared to start chemo the following week. A few days before chemo, my mom visited an Alternative Health Specialist who really seemed to think she could help my mom. She gave her hope. We decided to not do the chemo and pursue the alternative treatment. The way I looked at it was the "medical" route was "hopeless" and the "alternative" route was "hopeful". If indeed she only had months to live, I would prefer she lived with some hope. She immediately started vitamins/supplements and a 3x a week procedure known as Colonics Hydrotherapy. It has been approx 2 months and I hate to say it, but she has lost more weight and the "fluid in her stomach" has not gone down. She literally looks like a pregnant anorexic woman. I want to remain hopeful, however, I consider myself a realist and would prefer to be prepared for what may come. She is on 120mg of morphine every day plus vicadin as needed. She hardly eats and has been vomiting more often. She has not given up and believes she will get better. I am just really confused. I am a 36 year old mother of three young kids (9,7 and 3). My mother lives almost an hour away so I don't get to see her that often. This is just really difficult for me to deal with. I know this is long but would welcome any encouragement, insight or advice. Thank you for your time and concern.

End Stage Pancreatic Cancer

by Xtina on Thu Sep 29, 2005 12:00 AM

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Hi There, Im not sure if your reply was directed at me but I would like to offer any support or advice I can give. My name is Christina (Tina for short) and I would be more than happy to help you with any questions you have. I am sorry if my posting upset you and I hope you know that each individual case is different and as they say "Were theres life, theres hope". I have just read your story and it seems that your mom was diagnosed around the same time as mine. My mams cancer was extremely advanced when they diagnosed but the docs never mentioned the words "Terminal" and always gave us plenty of hope. Every corner my mam came to she was hit by a brick wall, but she still continued her usuall positive and strong attitude throughout it all. I beleive you have made the right decision in going with alternative medicine, you must always have hope, its the only thing that will get you through this horrible time. I beleive that the chemo made my mam worse instead of helping her to get better, even though she only got to have 2 sessions as her blood counts were too low.Before diagnosis as she was severly jaundiced, they put in a stent in her bile duct to try to releive the blockage however the tumour was so big it was also blocking the stent, therefor the jaundice never went away. My mams appetite was also pretty poor but she forced herself to eat little meals throughout each day. Her favourite was cupa soup as it was warm and went down easy and gave her nutrients. They told us it was terminal only 2 days before she passed away. They had done a scan and found it had spread to her liver also, thankfully my mam remained posisitve and strong to the end. The day before she passed away she was in pain so they put her on morphine but she was still her usuall lovely self (My mam) and I am so grateful that I was able to talk to her as we always did. We thought we would at least have one more christmas together but it was not to be. They say that a pancreatic cancer patient can live up to 1 year after diagnosis without treatment, so never give up hope. To be honest as it has only been 2 weeks since my mam passed away I am still in severe shock and denial so I am pretty scared as to what is ahead for me. Myself and my boyfriend were planning on getting engaged this year and hopefully married next year and I am so sad to think that my mam will not be with me to help with all the pre wedding prep...pickin out the gown etc.... and will never get to meet her future grand children.I have lost my best friend. You must stay positve always and think of all the blessing you have. I hope your mom is doing well and staying positive, as I beleive that strength and positivity is half the battle. My thoughts and prayers are with you, your mom and family. Im not sure if I have helped in any way but if you have any direct question I would be more than happy to try to help. Take care & stay strong. Tina

Sad-pancreatic Cancer

by Susiemissmom on Thu Sep 29, 2005 12:00 AM

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Dear Sadncypress,I'm so sorry to hear about your mom being ill. My mom lost her battle on May 9,2005. The Dr.'s don't address the symptoms as serious. They always say acid reflux. I have it and it's nothing like pancreatic symptoms. The best advice I have for you is to spend EVERY minute you can with your mom.Hope is important for your mom-but you may have less time than you think. It pains me to be so realistic with you. My mom and I only had 2 1/2 weeks from the original diagnosis.(msg. #4,6. ) Hospice was a blessing to us;even if only for 1 week. Can you move your mom to your home? God is always with us even in our darkest hours. God bless,Susiemissmom.

my Advanced Pancreatic Cancer

by Rayski on Sat Oct 22, 2005 12:00 AM

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Hello my name is Ray, I was diagnosed with Pancreatic cancer 5 weeks ago. It has spread to my liver. I have had 2 sessions of chemo so far but in the meantime been searching for an alternative approach. I have spent over 100 hours trying to find out the best alternatives and to decide weather to allow the chemo go on and destroy everything good in me or let my own immune system fight it. I have found a lot of good stuff out their and confirmed its "credibility" as best I can. So far the cheapest and most effective seems to be one of the following; Dr Budwig's flax oil (linseed) system; or Chlorella. The Chlorella can be bought from any health shop. The flaxseed can also be purchased from a health shop but it needs to be mixed with cottage cheese (sounds a bit silly I know but has been proven very effective in late stage cancers) There are others that are more expensive I have been using the Chlorella (a green alge) for three weeks and appears to be boosting my immune system (more energy, increasing my weight etc. If any one wants further details on anything please email me at --- Message edited by CancerCompass staff: for personal protection, email address removed. Please review CancerCompass Member Guidelines at http://www.cancercompass.com/common/guidelines.html --- and I will forward on all the websites and other details. Lets try fight this with our "inside doctor"

RE: Cancer of The Pancreatic

by JuJu123 on Thu Jun 19, 2008 12:00 AM

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On 7/12/2005 Whatiscancer wrote:

Hi, Just last Friday my Mom was diagnosed with cancer of the pancreas. We are all still in shock. She was very healthy...suddently, her skin turned yellow, her urine turned darker, and as for now stage her eyes colors turn yellowish. Dr. put a stent in her on Friday to help with release the fluid in her stomach. I am in shock...and need any advise how to deal with this deadly disease, and if anyone out there would know of their love ones going thru this and passing away, how much time do they have to live? I really want to know, I want to prepare myself...thanks.

 

I am so sorry to hear about your mom. My father was just diagnosed with pancratic cancer last Monday. I am just as in shock! We are still waiitng for his biposy to come back. I am in the need for as much info. as you are and I would be happy to share anything I learn about this cancer with you!

RE: Cancer of The Pancreatic

by melba63 on Mon Oct 13, 2008 12:00 AM

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MY father pancress cancer was found in April 2008. We were in shock too. He worked hard all his life and still hols a job.He went through test, He just thouht he had a Virus and never would go to the Dr, Untill his urine got dark.Several test and our ght mare was reveled. He had pancress cancer and was a large tumor in bile duct. Sugery was no option. He went through several rounds of radation and a scan that showed it was still contained to pancress. Now the long Journey of strong kemo is over and this week back to Dr, and another scan to see what kemo has or has not done. He dont eat much stays sick and lost a lot of wait.I am his only child and it is so hrd to sit and watch and not be able to do any thing.I hope he will feel better after kemo is out of his system, seems he so tired now and hasnt bounced back as good.They gave him 6-12 months but only God knows.I try to keep the faith. Why is our medical feild so far behind on pancress trasplants????. My world seems numb most days. I try to stay strong and postive in front of him but he want talk to me about it or death . He has been remarried 4 years and she lost her first husband to cancer. Can someone tell me what to expect. Heis on all the pills morphine patch  will be next. my father never stayed in bed little along miss work.Is it the chemo or cancer.It is the fast kind ,How long do they last and have to suffer ,we the family suffer to.Why is it the worst and most painful thata what they say.  How do I cheer him up???

RE: Cancer of The Pancreatic

by elenajean on Wed Jan 14, 2009 12:00 AM

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Hi, my name is Elena, I have read everyones stories here and am so sorry for everyones losses. I also am in the process of losing another family member. However this one is different as the others were all sudden. My mum has pancreatic cancer so we know in advance that she is going to die, but we just don't know when yet. She was diagnosed July 2007 after a couple of months of feeling sick and her urine and stools changing colour.She had the Whipple procedure done. All went well and was told all cancer removed but still possibility of recurring whithin 2 years. Mum had chemo and radiation for a while, but was so sick with it she refused as she wanted quality time with her grandchildren and great grandchildren. She started to put weight back on and got energetic, gardening (which she loves) and back to her old normal self. It was great, we thought she was cured. For the last couple of months she has been feeling nauseas and lethargic and had stomach pains, so yesterday she just found out it has returned. The doctor said it was inoperable. We don't have any more information yet.She just turned 69 a month ago and she says it is time for her to go, her only regrets is leaving the little ones. She doesn't want to know when her time will be up, however I do, (I need to know). I now know a little of what to expect after reading your stories. I don't know what to do to help as mum is very independent and would joke by saying "I don't need you to do that for me, I'm not an invalid I'm only dying" I don't know if any more chemo or other treatments would help, but I know she would refuse them. I don't know if I will be allowed to get all that info from her doc but I will try, as I really need to know what to do. I am heart broken, but she told me not to get upset as we knew it was inevitable. I thank you in advance for any encouraging words.
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