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Information About Revlimid And Etc.

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Subject: information about Revlimid and etc.
Date: 01/28/2008
Could someone that has taken the drug, Revlimid, tell me more about the cost of it.  My mother is 78 years old and has had MM for 2 years.  She has bee treated only with dex but now her protein levels are going up and they want her to add Revlimid to reduce the proteins. She was quoted  $9,600.00 for a month supply.  Is that correct?  My parents can not pay that much for the drug. Does anyone have any suggesions?  Please help!  I am not ready to let her go without giving all that we can give to fight MM.
Subject: RE: information about Revlimid and etc.
Date: 01/28/2008

I thankfully have good insurance.  But your amount is in the ballpark of what my ins. company is being charged.

 

 

Subject: RE: information about Revlimid and etc.
Date: 01/28/2008
Thanks for responding.  i was so surprised to learn from my mother that this medication was that high.  Is it worth taking it with side effects from it and the expense?  They are on a limited income since they have not sold their home. How much time will she receive from the use of this medication? These drug companies are making so much money!
Subject: RE: information about Revlimid and etc.
Date: 01/28/2008

Good Evening Beinva;

I got the info below from Bloomsburg.com

 Besides showing better effectiveness, Velcade should cost about $35,000 to $40,000 for a course of therapy, compared with $70,000 for Revlimid, he said.

I believe a normal course of therapy for Rev was 8 cycles. (This can be increased if the patient is showing little side effects.)

The advantage Velcade offers over Rev besides the cost is that their study was with patients with a higher average age. I believe the age was 75 y.o. This may be the route to persue for you

Take care;

Kevin

Subject: RE: information about Revlimid and etc.
Date: 01/28/2008

My father has a suplimentary insurance and it was covered except for a co-pay.  You should contact the office of the doctors social worker and see what they can do for you.  Maybe they can send you to a website or something that is offering help.  Or contact the Multiple Myeloma foudation and see what they can do to help you.

Anita

Subject: RE: information about Revlimid and etc.
Date: 01/29/2008
Hi Beinva ~~  I am presuming that you are in the United States.  Is this correct?  I am in Australia, and when my doctor approached Celegene about getting the drug for me he was able to get it on 'compassionate grounds', which means no cost to me.  I have been on it for 18 months and it has been my saviour.  Only 10mg per month - for 21 days - with no side effects, and I haven't felt this good since I was diagnosed.  I have heard that 15months is about the optimimum period for use, but so far it is still working. Perhaps you can try this through your doctor where you live.  Just a suggestion.  Best wishes, Cath
Subject: RE: information about Revlimid and etc.
Date: 01/29/2008

 

Thanks, Kevin.  I had no idea that medication would cost so much.  I will rely information to my mother.

Belinda in Virginia

Subject: RE: information about Revlimid and etc.
Date: 01/29/2008

Thanks, Anita, I will.   It is so scary when you have to pay out of pocket for these medications. 

Belinda

Subject: RE: information about Revlimid and etc.
Date: 01/29/2008

 

On 1/29/2008 beinva wrote:

 

Thanks, Kevin.  I had no idea that medication would cost so much.  I will rely information to my mother.

Belinda in Virginia

Good Evening Belinda;

Yes, they are expensive. But I don't know if it's the meds so much or the research involved that drives the cost upward.

I believe the other posters here have presented you with some viable options to offset the cost. I recall reading somewhere that there was a program, perhaps with Velcade, that if you couldn't afford it and you get your Dr. to sign a form agreeing to not charge you for their services they would donate the meds. I know this sounds to good to be true but I do recall seeing this somewhere. I will check around. But you might be able to GOOGLE this info.

Take Care;

Kevin

 

Subject: RE: information about Revlimid and etc.
Date: 01/31/2008

I went and contacted the mm foundation for you and they said to try and contact a place called the Patient Advocate Foundation.  The mm foundation spends all of their money on research.

Anita

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