Saw some info on the alternative treatment board. I read about this a year or so ago in the newspaper. They wanted to start clinicals in Canada on a small basis as it was accidentally found to shrink tumor growth in the lab. It's controversial because it has been used for many years to treat some rare metabolic disease, but has not been specifically studied for various cancers, which is the way things are proven to be safe in this country. No one wants to spend the millions on testing because it's already generic, so there's no money to be made in the huge cancer market. It becomes trickier with people with life threatening disease since they are already facing death and are less likely to care about side effects after withstanding the horrors of chemo. Believe research is being conducted at University of Alberta in Canada. Looks like it has neuropathy as a side effect by what people are saying that are using it. Also appears people are using it on their own without being part of studies because they feel it offers some hope. Don't actually know anyone using it, or how you might get it in the US.