Npc Experts

Hi all,

I'm from Italy and my father has Naso pharynx crcinoma since 2000. The cancer has showned for the third time this years. I'm writing you as I'm not convinced that the doctors that are taking care of my father are doing the all the right things and I'd like to come to the U.S.A. to have a discussion with an expert.

I'd like someone of you can tell me who to ask please. Is there in U.S.A. (I'm sure it's so)  a center to contact or an expert?

 Thank you for your help 

If it were me, I'd bring hime to M.D. Anderson in Houston, Texas

When I was there I saw many people from outside the USA.

www.mdanderson.org

Good luck

Thanks for the reply. Please if you can I need the name of a doctor to contact (firstly via mail) then we can came to U.S.A.

If anyone can help me please suggest me some names.

Thank you 

with the state of the art nowadays, you can search thru the web the desease name and it will bring you up thousand of websites in which you can select by yourself. or go to american cancer society piull ou the list of doctors specialising such desease.

Hello:

Nasopharyngeal carcinoma occurs in less than 1 percent of all known cancers.  To further complicate this, it occurs more predominantly in southeast asian mailes.  Thus, they either do not have the resources or the knowledge base to manage the disease properly etc. 

How do I know this?  I unfortunately have a husband with stage four NPC tumor growth A.  His primary is NPC which spread to his two neck lymph glands.  Even in the USA, we have limited knowledge about this particular cancer.  However, Johns Hopkins Otolaryngology dept has done considerable research.  They have guest houses/appt for those participating in clinical trials and even for those receiving protocol.  Dr. Koch is the director of Otolaryngology. hopkinsmedicine.org/otolaryngology - located in Baltimore Maryland

Another good group is the National Cancer Institute in Bethesda Maryland or the Mayo Clinic in Ohio.  I've heard great things about MD Andersen groups but have not heard them recommended for NPC.  That would be something you should research.  I do know the MD Andersen in Atlanta has treated NPC previously.

For your information - my husband receives chemoradiography protocol issued from Hopkins to our local cancer center.  He receives IMRT daily for six weeks and three doses of chemo/cisplatin 170 mg, three weeks apart.  He is doing remarkably well but it a very young strong willed man.  I strongly encourage you to get your father on glutamine powder (10 mg 3 times a day.)  This was recommended by another survivor to us and has been a godsend.  You may purchase it online via GNC (stateside company.)

Please email me if I can help you in any way.

God speed to you.

If you plan to bring him to MD Anderson in Houston. You do not need a dr's name there. You just call them, explain the situation and they'll take it from there. He'll see all kinds of dr's. They'll lay out a schedule for him. You just put it in their hands.

They have their own hotel on the campus called the Rotary House, or there is a Holiday Inn on Main St. 3 blocks away that has a shuttle bus. 713 528 7744. MD Anderson has a travel dept. that can help you with all your travel plans. Just call them to get the ball rolling 713 745 5146

If I can help w/ any other questions, let me know.

Thank you all for your help and support!!

I'll keep you update on the situation.

Hello Giodari:

Any news?  I do have another person I can put you in contact with at Johns Hopkins. 

Please let me know.

Kara 

Hi Kara,

   thank you for your interest!

news? Yes, my father is doing chemiotherapy (mostly with a drug called Taxotere) because after 3 radiotherapies it is not possible to do anything else. We have listen the 2 most experts here in Italy and they say that chemiotherapy protocols are the same here in Italy as all over the world.

We have decided to finish this cycle of chemio and then decide what to do. It is possibl that in april we can come to the U.S.A. to consult an expert and I would be glad to have a contact with someone at Johns Hopkins.

So thank you very much and be sure I will contact you if we need.

 Dario

Hello again Dario:

What stage is dad and does he have neck tumors too?  The protocol in the states for NPC, as of now, is:  36 radiation treatments (IMRT or tomo) with three chemo of Cisplatin (170mg) set at three weeks apart but during radiation treatment program. They have had great success with some other heat based clinicals but I'm not familiar with them.  I have recently been in contact with the division coordinator for Head and Neck cancer at JH.  Contact information is as follows, please let me know if they cross it out:

Erin J. Blume, RHIA

Clinical Coordinator

Multidisciplinary Head & Neck Cancer Program Johns Hopkins Outpatient Center

601 N. Caroline St, 6th Floor

Baltimore, MD  21287-0910

410-955-2309 (office)

410-955-0035 (fax)

eblume1@jhmi.edu