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Rexin G & Ca-19

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matthogan
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Subject: Rexin G & CA-19
Date: 02/05/2008

Hello,  My father was diagnosed with PC on October 13 2007.  He has 2 small spots on the liver so they bypassed surgery and went with gemzar/cisplatin + tarceva.  To date (Feb.5th 2008) his CA-19 levels have decreased from 760 originally to 315. He has 8 treatments under his belt.   I am not sure what is a good CA-19 number vs a normal CA-19 number  versus what is a lethal CA-19 number?  Anyone have any ideas??  Plus, I am trying to be proactive while he still feels good (he eats fine, works almost everyday (minus a fews days after chemo), and has not lost any weight)  I would like to get him in a Rexin G treatment/trial if/when his levels begin to elevate (like Manilla or Santa Monica).  From what I understand there is basically no chance of him becoming operable so I wonder what is the second best??  I am completly lost.  Thanks for any help - and bless all PC fighters out there and your families.  M.H. 

Subject: RE: Rexin G & CA-19
Date: 02/05/2008

I just want to point out Dr. Chawla is still recruiting PC patients for Rexin-G. Many people use the period during chemo recovery to do the paperwork, visit the Dr. and facility. By that time 30-45 days have passed, at least.

Mark in Bakersfield

started rexin 10/2007 sarcoma

Caregiver
Caregiver
DaddysGrl
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Subject: RE: Rexin G & CA-19
Date: 02/17/2008
I too was searching for any information regarding the CA-19.  FOr some reason it was not easy getting information regarding this blood test.  I see your number has decreased from 700 to 300s.  That's great news! This means that treatment is showing progress and progress is a miracle with this type of cancer.  My father too has pancreatic cancer and reason I became interested in this CA-19 number was a few doctors visits ago my father was conteplating the idea of stopping his chemo when the doctor encouraged him to continue due to the sucess that the treatment posed changing his CA-19 number from 3160 to 1600.  Not understanding what a normal number for this test was, this difference in number to me seemed to be a miracle and landed our doctor hero of the day for convincing my father to continue and stay on the program.  After a wonderful visit and hopeful few days, I eventually found out normal numbers for this test and quickly came down from the clouds.  I chose not to tell my father and continued rallying around this wonderful number decrease and progress.  Every bit of hope helps and this little bit goes a long way making each morning a little easier and and gentler.  I hope to see your numbers continue to decrease..and my fathers number to reach your starting point and maybe even lower.  You never know.. miracles happen every day! and I believe that it can happen to any one of us!  Just keep praying, keep positive, and keep living for My dad is still right here in front of me!  I can touch him and he is warm , talk to him and he talks back to me, I can hug him and feel his love and hear his breath.  Every breath he takes is a miracle to me and The greatest gift!  Remember to celebrate having our loved ones here with us and please remember to Live! God Bless and take care of yourself during this time, I will pray for You!.
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