I was diagnosed with uterine cancer 9/05. Had radical hysterectomy, 6 weeks of radiation and then 6 sessions of chemotherapy. Lost lots of weight with radiation and felt nauseous all the time. Had some diarrhea, but it was manageable. Just a few weeks after chemo, I started to have horrible bloating and cramping. Finally went into the hospital and had a small bowel obstruction most probably due to scar tissue from surgery and radiation. Went on TPN for a month. Seemed better after that, but every time I ate food, I would get bloated and crampy. Would have severe vomiting about once a month. Went to an acupuncturist and seemed to have some improvement, but if I over did it with food or stress related activities, would have a set back and each time it was harder to get control. No one could tell me what to do. I finally went to see a holistic doctor who basically told me to cut out all foods except vegetables, good fats and chicken, turkey or fish. No deli meats though. I lost 10 lbs within 6 weeks. I was already losing a pound or two a week from cutting back on foods (lost taste for alcohol and if I was bloated couldn't eat anyway). I went from about 150lbs to 98 lbs. Was dehydrated, fatigued and depressed. Did I mention that I have 3 kids. I was a complete wreck. The holistic pushed more good fats and protein shakes. I would still bloat up. Finally, 2 years after my diagnosis, my oncologist brought me in the hospital for a port in my chest so I could do TPN. I received the nutrition 7 days a week. I've done that since September and now am down to 2 days a week, but having trouble maintaining weight. In September, the doctor also hooked me up with the gastroenterology team that finally put a name to my suffering - Radiation enteritis.
Within a few weeks, I had gained about 10 lbs back, but now had constant diarrhea. This was not a symptom prior to trying the holistic diet. I've had 2 major accidents with the diarrhea. Was mortified. Fortunately, I don't think anyone was around, but it was horrible for me. Now I'm told I should take immodium every day. I don't know why I have an issue with that, but now I guess it's what I have to do. I am currently considering anti-depressants as well. My clinical psychologist (part of the gastroenterology team) tells me people with radiation enteritis have had some success with anti-depressants. Some have also suggested the hyperbaric chamber to increase oxygen and blood flow to the radiated areas. Has anyone tried that? Has anyone had success with anti-depressants?
Now that I've written this book, has anyone had these same symptoms? I want to start living again and have energy for my kids. I'm constantly telling them I don't feel well, my stomach hurts or I'm afraid to go out because I might have an accident,
When is the medical profession going to figure out how to treat the side effects of cancer treatment so that we can lead somewhat normal lives? Don't get me wrong, I'm grateful to be alive, but I'm just having a hard time enjoying that life.
Even the slightest improvement would help.