One patient with glioblastoma still alive nine years later
by bebe99 on Mon Feb 11, 2008 12:00 AM
by dr_Steve on Mon Feb 11, 2008 12:00 AM
Usually it takes years to go from absolutely normal to high gradedysplasia, but it can happen more quickly. The answers to a number ofthese questions will depend upon what the pathologist finds. If theygot all the way around it (something called clear margins) and thescraping above the cone is free of dysplasia, and there is nothingworse (no invasive cancer), then there is a good chance this will havetaken care of it. If not, it really depends on what is found..... The main thing to hope for is that they find no cancer.
Dysplasiacan recur, so this does not mean you don't need Paps or exams after a"clear" cone. Since you had this, the general recommendation is foryearly Paps for a while.
Bleeding can occur in the 10th-14thday range after a cone. If clots start passing, an examination might beprudent. The sutures start wearing out by then, but usually a visit tothe ER or the doctor and some cautery or medication to the area willstop bleeding. Infection is not common, but if there is increasingfoul discharge, fevers and pain, it means a visit and probably wouldneed antibiotics. Obviously nothing should be in the vagina while thisis healing, including intercourse.
IF the cone was nothuge (its a relative thing) then you should be able to have kids. Askyou doc about this. That is the person who will best be able to guideyou or who will refer you if there is something worse than dysplasia isfound.
Hope this helps..
I would stay away from much pelvic exercise which might increase the chances for bleeding. So,perhaps gentle exercise is the key word here...
As far as healing, no proven regimen to help healing per se...at least not in the traditional medicine sense. I would stay away from anything that is an antioxidant which can cause bleeding, like Vitamin E or Ginko. I have a little blurb on my site re: herbals and surgery which might help regarding what to avoid.
herbals-and-your-surgery-5.html (you might need to cut and paste in browser)
Dr Mercola suggests the following generically on his site, but with similar warnings:
1. Vitamin C: 500-1000 mg three times a day. Reduce the dose if you get abdominal pains or loose stools.
2. Vitamin E: 400 units daily and Lipoic Acid 100 mg three times a day. The vitamin E needs to be used cautiously and if you will be involved in a surgery where bleeding complications are an issue you might want to stop it two weeks before. So it is likely best to discuss this with your surgeon.
3. Vitamin A: 50,000 units daily (beta-carotene is not a substitute)
4. Zinc: 30 mg daily. If nauseous please decrease as this is a sign of zinc excess.
5. Citrus Bioflavonoids: 1000 mg three times a day with the vitamin C.
6. Enzymes are also recommended to reduce inflammation and tissue swelling at the surgical site. Digestive enzymes or bromelain (pineapple enzyme) also works. Take 2-3 capsules 10-30 minutes before each meal starting as soon as possible after surgery. If you have a prescription card you can use products like Ultrase MT 20 or Creon.
7. Probiotics. We use Flora Source in our office but tehre are many other good brands. Should be taken twice daily.
8. Amino Acid Supplements to Enhance Healing
As always, you should discuss anything you do or take with your physician. What you read on these boards may be helpful, but may not capture the whole story for any given patient. I recommend at least speaking with your physicians' nurse and preferably to the doctor.
by WantsKids on Sat Jun 06, 2009 12:00 AM
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