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ca-125

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Subject: RE: ca-125
Date: 02/17/2008

 

On 2/15/2008 freeatlast wrote:

hang tight , keep your spirts up, think possitive,and good luck ,i hear boston is a great hospital too. i went to dartmouth when i found out i had ovarian cancer mine was at stage 2 i had adult granulosa cell tumor cancer, i had my surgery 6 months ago i will soon be going bk for my check up in a few weeks,i know its scarey ,its a rough road but u can do it. this is a wonderful site to get info from and tlk to others that have gone threw the same thing as ur about to go threw.did  they say  wht kind ur was as  i think there are diffrent kinds of ovarian cancer, they reomved both of my overies my flopian tubes my appendix, and  another spot of cancer htat was on my intestines,  i had cancer in both overiesbut i am doing great now ,i am on arimdex now  for 2 yrs i think and it will help me from getting breast cancer we hope as ovarian and breast cancer are related  and my sister had breast cancer 3 months before  i was told i had ovarian , good luck and  my thoughts are with you

To answer your question, I don't know what "type" of ovarian cancer I have.  Oncologist said it was advanced based on MRI's, etc. but doesn't know the true extent until he does an exploratory laparotomy.  He will definitely do a complete histerectomy plus take out part of my intestine.  There is something going on with the bowels as well, but, again, it's vague until the exploratory.  Can't wait to see another specialist at Dana-Farber on thursday.  Does anyone out there go to support groups?  Thanks for your words of encouragement.  I hope to do the same for others once I get a little experience under my belt (so to speak).

Subject: RE: ca-125
Date: 02/17/2008

 

On 2/12/2008 pauldancer wrote:

Thank God I found this discussion board.  I was just diagnosed with ovarian cancer a couple of days ago and have an appointment with a gynocological oncologist tomorrow.  Because of the experience you all have had with this disease and I am a newbie can you tell me if an extraordinarily high ca-125 is indicative of a more advanced cancer?  I need the truth, please, as you know it.  Thanks.

A high CA-125 may or may not be indicative of a more advanced cancer. It is not uncommon to have a false positive reading on a CA-125. Your doctor will order additional tests and probably surgery to determine the stage of your cancer and the best course of treatment. Don't take the results of any one test as indicative of your condition. Rather, look at all of the results to get the best picture. Good luck.

Subject: RE: ca-125
Date: 02/28/2008

Hi Paula,

Probably by this time you know alot more about whats happenning with you.  I did want to tell you that a Ca-125 test is not indicative of the amount of cancer inside.  I know of a gal with a ca-125 of 4000, and it turned out to be a stage 1c.  My own personal ca-125 was 204 at surgery, and I also had colon cancer as well, and came out with a colostomy.I'm a stage 3c.  Hope all goes well for you and I'll keep you in prayer....~~~Joanne

Subject: RE: ca-125
Date: 03/01/2008

 

On 2/28/2008 Jlock wrote:

Hi Paula,

Probably by this time you know alot more about whats happenning with you.  I did want to tell you that a Ca-125 test is not indicative of the amount of cancer inside.  I know of a gal with a ca-125 of 4000, and it turned out to be a stage 1c.  My own personal ca-125 was 204 at surgery, and I also had colon cancer as well, and came out with a colostomy.I'm a stage 3c.  Hope all goes well for you and I'll keep you in prayer....~~~Joanne


 

Joanne- can you tell me what treatments you had (type of chemo) & length of time, specific surgery, etc. and colostomy info.  My oncologist just touched on this latter possibility, however, won't know until they debulk.  Scary!  I've opted to go with chemo first and then debulking as was recommended by Dana-Farber which is a top cancer treatment center in Boston, Ma.  Where do you stand now, Joanne?  Are you in remission?  I wish you good blessings.  Paulette
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