Stage 3C Cancer-Mmt Ovarian Cancer

I was diagnosed with MMT Ovarian cancer, stage 3c, in August 2006.  I had a TAH with debalking to the areas where the cancer had spread.  I also received chemotherapy, 6 cycles of taxol and cisplatin.  My ca 125 level was never above 4 even when initially diagnosed. The cancer never appeared in the lymph nodes.  The cat scans still are negative.  MMT ovarin cancer is very rare.  According to my gyn oncologist it is less than 5% of the ovarian cancer population.  I was wondering if there is anyone currently cancer free after treatment and what kind of treatment had they received?  Also I would like to know if there is any clinical trials that are being done with MMT ovarian cancer?  Thank you for any information you will provide.

Hi,

My mom was diagnosed with a stage 3C ovarian carcinosarcoma in June of 2007.  She went through 6 rounds of ifosfomide and cisplatin and finished her chemo in November of 2007.  She has been doing well until just recently - bladder symptoms which appeared to be an infection, but now we are looking at a possible recurrence.  I HIGHLY recommend you take a look at the MMMT/carcinosarcoma yahoo list which is for both ovarian and uterine carcinosarcoma.  It will put you in touch with a lot of women who are battling this disease as well as their family members.  You can get feedback on therapies as well as doctors.  You are not alone and you will find a community of folks going through the same thing.

 

All the best,

 

Christiane in OR 

My mom was diagnosed with Stage IIC ovarian carcinosarcoma in July 2007.  She was initially treated with radiation, and now she has finished up 6 rounds of chemotherapy.  She describes it as "the strongest there is", but I do not know the exact combination of drugs.  We have heard over and over that the survival rate is around 3-5 years for Stage II.  However, her doctors told her she was about as close to Stage III as she could be (whatever that means).  Anyway, my husband and I are trying to make the very tough decision whether to move nearly 900 miles across the country to be with my mother.  Of course, she says she is going to fight and survive so we dont need to move.  I feel otherwise and my husband is on the fence.  They have recently discovered 4 more spots they are concerned about, but will not test them for three more weeks.  I guess I am just looking for the possibility of her surviving this.  It seems that almost everyone with it dies within 5-6 years whether initial treatments worked or not.  Any longer survivors out there?  I would like to go be with her as long as I can.