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Just Want To Tell My Story.

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Subject: Just want to tell my story.
Date: 02/16/2008
Dad dx'd in WI 7/07 with Lung CA and by accident with CAT scan found another primary distal pancreas CA.  Pancreas bx = adenocarcinoma. Did not do lung bx due to location, and past hx of extensive radiation for Hogkins in 1966.  (He survived it thanks to Mayo at a time that it was not survivable).  WI doc says palliative and Dad did chemo for 4 months.  Dad went back to FL where he lives 12/07 with prescription for Tarceva. Took it for 5 days and quit.  Dad began follow-up at Moffat Cancer Center in Tampa after Christmas.  Moffat did lung bx= squamous, and redid CT, and told Dad surgery was advised (distal pancreatectomy and splenectomy).  Dad and Moffat dissed WI hospital/clinic for not being aggressive enough. Two days before scheduled surgery (after 8 hours at Moffat speaking with anesthesiologist, surgeon etc)  and 1 day after a PET scan, Moffat says inoperable due to blood vessel involvement...  lets try chemo to give you a few more weeks.  Not happy with Moffat, Dad signed a research waiver the first day he was seen at Moffat.  WI doctor was right all along, Moffat Center had Dad traveling 2 hours one way 4-5 days a week for the past month for tests, procedures etc. and false hope.
Subject: RE: Just want to tell my story.
Date: 02/16/2008

I am so sorry.  Sometimes the treatment, or even the search for treatment, can be as bad as the cancer itself.  The ups and downs...give hope...take it away...hear of something else....more hope....wait for an appointment.....no hope....disappointment....stay up all night searching the internet....take off work and spend the day on the phone trying to find something else...is pure hell!

Mu heart goes out to you as my DH is in the hospital right now.  The hope, no hope, rollercoaster continues.

Subject: RE: Just want to tell my story.
Date: 02/16/2008

I am so sorry that your dad has gone through so much, 
Pancreatic
cancer is one of the toughest cancer to get.  You do have to be
very aggressive with this cancer you have to stay ahead of it. Once it spreads it is hard to control. I
wonder if radation was not an option.  You will need to give your
dad good qualty home care now and spend as much time with him that you
can.  Is Hospice involved?  I wish you and your dad the best
and you are im my prayers.

Take care,

Janice 

<>
Subject: RE: Just want to tell my story.
Date: 02/16/2008

 

On 2/16/2008 Infoquest wrote:

I am so sorry that your dad has gone through so much, 
Pancreatic
cancer is one of the toughest cancer to get.  You do have to be
very aggressive with this cancer you have to stay ahead of it. Once it spreads it is hard to control. I
wonder if radation was not an option.  You will need to give your
dad good qualty home care now and spend as much time with him that you
can.  Is Hospice involved?  I wish you and your dad the best
and you are im my prayers.

Take care,

Janice 

<>

Hospice not involved and maybe never will be.  Dad probably won't allow that.  Since I am 1700 miles away, looking into FMLA and will head to FL.  I am so angry....  How dare Mofitt tell Dad operable and then pull the rug out from under him several days later.

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