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One Year Out - Hiccups And The Gorilla

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Subject: One year out - hiccups and the gorilla
Date: 02/16/2008

Hi everyone

 This past week I had hiccups, now normally having hiccups isn't anything to take notice of. But to a cancer patient / survivor and their loved ones, every pain, burp, ache and normal body signal can take on other meanings. These things used to be of no concern, but this changes once the 800 lb gorilla with the big "C" on his chest takes up residence in the corner. We ignore him, (yeah right) joke about him, feed him bananas (great for potassium) but the reality is we all know he's there and going to always be with us. Getting used to him and the space he takes up in whatever corner of our life we choose to let him hang around is the challenge we all face. Some of us place him in the center of the room, finding strength in the idea it is better to face a fear than not. Others try their best to push him away, relegated to a dark corner, out of sight and for brief moments out of mind. Yet caring friends and family always pull him out with those words " How are YOU doing". Face it, we will always be one word away from remembering and revisiting the reality of being someone who has been affected by Cancer. Once touched by Cancer our outlook upon this world we live in and share is forever altered, as it is for those close to us.

Our reality is, even the strongest of us have fears & concerns about what our future holds. And that reality is never more clear than the days leading up to the start of treatment, and each and every milestone we face after treatment ends. One of those milestones, the one year anniversary of my end of treatment I just crossed. After having 35 RAD treatments and three courses of Chemo for a T3-N1 tonsil cancer I wasn't sure this day would come.  How fast a year goes by, How slow a week leading to the "one year PET/CT  scan results goes by. Leading up to this week, my wife and I separately and sometimes together had fears of the reality of "what if". My wife was concerned with hiccups, I had them and wasn't concerned  ......until she googled the possible causes and hinted to me of her concerns. Well, thankfully they were just that a hiccup, in my esophagus... nothing more, nothing less and the only way I really knew this was getting the results of my one year PET/CT scan back. The scans came back clean, so for another few months I can relax a little bit, knowing and now remembering that sometimes a hiccup is just that, a hiccup. And our life is meant to be spent living and loving. Not worrying about the gorilla in the corner. I have never got used to the gorilla in the corner, but I had to smile when I swore I heard him hiccup ; )

I want to thank everyone here for the support, prayers and guidance for helping me get to where I am today.

Matt 

 

Caregiver
Caregiver
tongrenhealer
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Subject: RE: One year out - hiccups and the gorilla
Date: 02/16/2008
What a delightful post-congratulations on your clean PET and the next few months when you can breathe easy. Keep that sense of humor-it's so necessary in this game. Many blessings!
Subject: RE: One year out - hiccups and the gorilla
Date: 02/16/2008
Great post.
Subject: RE: One year out - hiccups and the gorilla
Date: 02/16/2008

Well said Matt. I have 6 radiation treatments to go. Then what will be the longest month of my life will begin as I wait for the ct-scan and checkups to make sure it is all gone. I have already started thinking about how there will never be a day that the "C" word doesn't enter my mind, even for a second. Thank God for boards like these where we all can stay in touch, cheer the good stories, be a cyber shoulder for the sad ones.

Just remember what my dr. told me. There are more people living with cancer, then dieing from it.

God bless those that go through it (patient and families), and God bless those that have chosen to dedicate their lives to treating it. We have all seen those patients that are much worse off then us. How the professionals deal with that every day, especially seeing the truly innocent children suffering is remarkable.

Rick

 

Subject: RE: One year out - hiccups and the gorilla
Date: 02/16/2008

p.s. Not that I need another thing to worry about. But I have not hear the connection between hiccups and cancer. What is the connection that one needs to be worried about?

Thanks,

Rick

Caregiver
Caregiver
Amynmiami
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Subject: RE: One year out - hiccups and the gorilla
Date: 02/16/2008
Hiccups that last for a few days can be a sign of esophageal cancer.
Subject: RE: One year out - hiccups and the gorilla
Date: 02/16/2008
I can relate to your gorilla via my husband who finished his treatment for cancer of the pyriform sinus and neck node almost a year ago.
Every time he has any symptom occur his first thought is that it's cancer. I know that he will never be the same, we will never be the same, but in some strange way you learn to live with it.
On my hubbies last day of radiation treatment, the machine broke down, of course, so we sat in the waiting room for a couple hours determined to not have to come back and extend the treatment until the next week.  My hubbie was so sick from the culmination of all the treatments - chemo and 39 radiation plus a horrible rxn to amiphositne, but he just wanted it to be the last treatment so we waited.
During the entire duration of his treatment, we always sat silently in the waiting rooms - oncology unit and radiation - never spoke to the others who were waiting for their treatment, almost like we were still in denial that we were there b/c he has cancer. During the wait for his last treatment, this woman came into the waiting room and sat down across from us. She was one of those people you see that looks bring, like she knows something about life - she was radiant. She started talking to us and we shared with her that we'd been waiting for the imrt machine, and that it was the last treatment, etc. I'm sure we looked desperate, as we were. She shared with us that she'd had treatment for cancer of the throat 30 years prior and that she's survived this long - she was in her 60's with no reoccurrence. She was back to be treated for another type of unrelated cancer.
I asked her how she had survived all these years. The one thing that she said to us that really stuck was that we should walk out that day and move forward, never look back.  Don't think of yourself as someone with cancer, don't look back - move into the  future.
I took that to heart b/c I had spent all the months in treatment focused on the right now, the what if it comes back, etc. It was almost like getting permission to think about the future again with my husband a part of it.
Anyway, after almost a yr of remission my husband has a suspicious node in his neck, so he's going to have his second pet scan in 6 wks to check for reoccurrence. Of course, he thinks it's back and we're worried. But again, I think we have to assume that like everything else, it's possible that this too could be nothing - scar tissue or benign.
Subject: RE: One year out - hiccups and the gorilla
Date: 02/17/2008
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