Women who don't have BRCA mutations could have other high-risk genes that affect treatment choices
by ergun on Sat Feb 16, 2008 12:00 AM
by Fancy on Sat Feb 16, 2008 12:00 AM
by Chrisobrn on Sat Feb 16, 2008 12:00 AM
Unfortunately my mom has this also. It is also known as peritoneal carcinomatosis if you want to google it. The peritoneum is the layer surrounding the organs in your abdomen. It's very vascular which allows cancer to travel easily over it. My mom's onc said it's like someone throwing a handful of sand into your belly. Big tumors may not be there, but the "seeds" are there which can eventually become problems. The goal of chemo (and Avastin, etc) is to keep these "seeds" from growing and spreading. This isn't a curable cancer, but treatable.
My understanding is that chemo can keep it in check for a number of years and hopefully much longer! Some people undergo the intra-peritoneal heated chemotherapy because it is thought to be more effective. This is however a controversial thing..it is only done at a handful of hospitals in the U.S. and the results don't seem to be much different than using Avastin or another targeting drug for control.
My best to you Nancy-you certainly aren't alone.
by ergun on Sun Feb 17, 2008 12:00 AM
On 2/16/2008 Fancy wrote:hi nancy what i know is that the peritoneal cavity is basically your abdomen. i am dealing with this now my mother has stage 4 and it might have metastisized to her peritoneal cavity , i think with ovarian cancer it goes hand in hand with the peritoneal. usually with ovarian it will then spread to the peritoneal but unfortunately this does also come with colon cancer. did the chemo wash help? i wanted my mom to get the wash when then had her cut open. God bless you and i hope you get this cancer beat. francine
fancy, thanks for replying to my message, so pelvic and abdomen are one in the same with this cancer? One Dr. said I do not have this, and another said that I don't, the one wants me to get started as soon as possiple on avastin and the other says wait until something pops up, I am trying to get an appointment with Dr. Sugarbaker he's my only chance for survival. How does this happen from stage 3 to stage 4 so quickly, and the funny thing about it is why do I feel so fine the thought of going back on chemo scares me but if I have to I will.
by Fancy on Mon Feb 18, 2008 12:00 AM
by Fancy on Tue Feb 19, 2008 12:00 AM
On 2/18/2008 Fancy wrote:hi nancy
chris is really well versed on this subject. i looked up on the internet dr, sugarbaker he is the one doing this heated chemo, to the peritoneal cavity. is this what you are going to do with dr. sugarbaker? i think he came up with this procedure. i am also so interested in this and also immunotherapy with trifunctional antibodies. let me know what procedure dr. sugarbaker is going to do. thanks so much francine. p.s. i am glad you started the avastin thats the right step also.
by needhelpnj on Fri Apr 25, 2008 12:00 AM
Hi Nancy -
My mom is fighting the same thing, and I send you my prayers and best wishes.
Im curious what your take is on waiting to start avastin until something comes up vs startying now? What reasoning the the oncologists say?
We are also going to see Dr. Lawrence about the same surgery you are looking into, though mymom is Stage IV - not sure about the success rates there, though I have seen some online. She may be stage IIIc as well.
When you track a discussion, you will get notified by e-mail if anyone else posts a new message on this discussion. Are you sure you want to track this discussion?
If you stop tracking this discussion, you will no longer get notified by e-mail if anyone else posts a new message on this discussion. Are you sure you want to stop tracking this discussion?
We care about your feedback. Let us know how we can improve your CancerCompass experience.