One patient with glioblastoma still alive nine years later
by faith11 on Sat Feb 16, 2008 12:00 AM
by Sam38 on Sat Feb 16, 2008 12:00 AM
On 2/16/2008 faith11 wrote:Can anyone give some experiences or information about the effects of a tumor on the right temporal lobe? Confusion, short term memory loss, vision loss, less side numbness, cognitive deficits. Any experiences would be great.
There are 2 or 3 books online about this if you would like I can email them to you to your own email address. All of the symptoms you are asking about is basically all of the brain tumor locations it is not more prevalent to one side of the lobe vs the other lobe. The cognitive deficits is called Aphasia where the thoughts are there but can't be said it misses the signal from the brain to the mouth (speech). Has your person already had the surgery or is this before? If on chemo they call it chemo fog and it never goes away some days are better than other days. Please know if you need anything.
by nancya on Sun Feb 17, 2008 12:00 AM
by Jan42006 on Sun Feb 17, 2008 12:00 AM
I found a web site that describes the effects of a traumatic brain injury on certain parts of the brain. It is useful in understanding the function of different parts of the brain.
Remember though, not everyone has the changes associated with the tumor in a lobe. It depends on where the tumor is located within the lobe- front portion, back portion etc. It is used as a guide to understand the symptoms you are seeing.
by Mylin on Sat Mar 08, 2008 12:00 AM
I was dx with GBM on 11-20-07. Had a resection with follow up radiation and chemo(temodar).
My symptoms were headache that I had for 3 months and could not get rid of. Cognitive thinking was in and out. Number memory that I had had all my life was no longer working. I ran my truck into our retaining wall at the house we have lived in for 23 years. Never done this before. I took care of our company bills for 15 years. All of a sudden I was forgetting to write checks and amounts down. I would forget where I filed the bills. My children also said my emotions were flat. My husband insisted something was wrong and took me to emergency room. Thank goodness for the doctor there. He recognized the symptoms and called for a CAT scan. A mass on the right frontal lobe was discovered. The next morning I went to MD Anderson. (My sister lives in Houston). That was on the 18th and on the 20th they did surgery because they could not tell on the MRI if it was infection or tumor. They discovered a large cyst in front of the tumor when they did surgery. They said this was good because there were not many cancer cells in the fluid of the cyst.
Don't know if this helps because symptoms are different with different people.
by bryceg on Sat May 03, 2008 12:00 AM
I had a tumor removed that was benign (not cancerous), but growing against the base of my right temporal lobe. I don't want to scare anyone, because as others have said, every experience is different. I experienced severe emotional difficulties and even schizophrenia-like symptoms. The tumor was found and removed. Within less than a year these symptoms went away and have been completely gone without medication for 13 years. I have achieved a master's degree, gotten married and have had a fulfilling career and family life since then.
The only other relatively minor thing that I have always experienced that I wonder if it is related to the tumor is sometimes a person can say a very simple phrase or sentence to me and I can repeat it several times out loud verbatim before I actually understand what the phrase means. If I focus I can get it within 10 seconds or so. Fortunately none of these things, even my more severe difficulties close to the time of the surgery, has kept me from living a full and meaningful life. Hope and support are very important to recovery from these things.
There is minor laziness in my right eye. I was told that if I did not have surgery, I might eventually lose eyesight, hearing or facial movement/feeling on one side. Of course there again the tumor was actually eroding structures along my auditory canal due to the position and putting pressure on my carotid artery, so not to be a broken record, but specific position can make a difference and every experience is unique, so anything one can do to not assume what has happened to others will happen to them is emotionally helpful.
Science has shown that hope is integral to an individual's recovery.
Hope this helps...
by claira on Sat Jan 10, 2009 12:00 AM
I had a tumor on the right temporal lobe, before the surgery i had very bad headaches , lots of deja vu,strange music confused with a scary laughter in the background of my mind, short memory for new names and faces,
after my surgery, i still have a short but a better memory on names and faces , headaches with a swinging mood but a bigger faith in GOD,
by topazgirl55 on Thu Apr 30, 2009 12:00 AM
On 2/17/2008 nancya wrote:My husband's tumor was right temporal lobe. DX 8/07. Before surgery he had bad headaches, left side (mostly leg) weakness/dragging, slurred speech at times, then there was a slight drooping in in his face on the left side. None of the symptoms were there all the time, seemed to come and go. When he almost fell in a hotel lobby we went to the ER, I thought he was having a stroke. Turned out, it was a tumor, GBM. Since the surgery, no headaches, no slurred speech, no left side weakness, and no face drooping. The only noticeable effect is that he's lost weight, he's not as strong, his appetite is not as good, his taste buds are a bit out of whack, and sometimes it seems to take just a bit longer for this brain to make connections, but that could be me reading more into things than necessary since I'm watching him like a hawk to see if I notice any little change. He calls me Nurse Cratchet sometimes. After surgery he did 35 radiation treatments with concurrent Temodar, now he's on the 5/23 Temodar protocal and all is going well -- last MRI showed no tumor activity, no progression, and no swelling. Feeling blessed. What is your loved one experiencing? Best wishes to all on these boards, you are wonderful and a great source of information and support.
Last week my husband had a GBM (the size of a large grape?) removed from his right temporal lobe. He had three severe migraines in one year, before he was diagnosed. He is 53 years old, had the surgery on Tuesday and was released on Saturday. Other than sleeping every 3 or 4 hours I see no change in him. He is scheduled to se see a new neuro-oncologist at MD Anderson, the number one rated facility in the country. The doctor in the hospital where the surgery was performed said patient's survival rate was at least a year.
I just finished reading several posts and web sites on survival rates for patients like him and my heart sunk. I will not tell my husband this information because he has faith in God and is very optimistic. I've been telling him that his out his survival rate depends on God and his positive attitude. Howvever, I don't know what his reaction will be when the doctors give us the numbers and facts. I still believe God, though.
Thanks for your post. I have hope.
by krazyw63 on Tue Jun 23, 2009 12:00 AM
my husband was diagnosed almost 5 years ago. we were also told the prognosis, but i refused to read the statistics.. he was fine for 4 years after the first tumor then it came back. he was fine for 6 mos after that, and now its back again. but have faith! every case is different, and there are new treatments coming out all the time. surgery, chemo, radiation, avastin... just keep investigating new treatments and trials.
by skRiders on Fri Oct 30, 2009 03:39 AM
My name is Chris Orr from Regina, sk, Canada. I had a benign tumour in my right temporal lobe in 98, which later came back in 05. My symptoms were seziurs (at 1st grand maul, then after my first surgery petite maul) primarily. i am now 18 and the aftermath effects that i have found myself are that i have a short term memory loss, bad long term memory, and I found that I had some language problems. I was a very talkitive guy until these surgeries and now not so much. If you would like to talk about it just let me know and i'd be happy to help you in any way possible.
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