soft tissue sarcoma

My boyfriends mother was recently diagnosed with soft tissue sarcoma.  She has six large tumors and they say she has stage IV.  The doctors have already started her on a high does of chemo to hopefully start killing the cancer cells and shrinking the tumors.  Does anyone have any information on this type of cancer? 

Thank you

 

On 2/26/2008 leeanner9 wrote:

My boyfriends mother was recently diagnosed with soft tissue sarcoma.  She has six large tumors and they say she has stage IV.  The doctors have already started her on a high does of chemo to hopefully start killing the cancer cells and shrinking the tumors.  Does anyone have any information on this type of cancer? 

Thank you

 

hello i had 3 tumors since 2005 and i had a large dose of chemo also..if you or she need a support buddy im here i have been doing this at crowford long for awhile...i had a grade 3 sarcoma on my left shoulder.3 times in 18 months..  --Message edited by CancerCompass staff. For personal protection, email address removed. Consider private reply. Please review CancerCompass Member Guidelines at http://www.cancercompass.com/common/guidelines.html-- & eric

 

On 2/26/2008 leeanner9 wrote:

My boyfriends mother was recently diagnosed with soft tissue sarcoma.  She has six large tumors and they say she has stage IV.  The doctors have already started her on a high does of chemo to hopefully start killing the cancer cells and shrinking the tumors.  Does anyone have any information on this type of cancer? 

Thank you

 

I found out in Jan 2002 that I had Sarcoma.  October 2003 they said I would live less than a year.  I have been very agressive with treatments for years.  I have gone for 2nd and 3rd opinions when needed.  I have been very positive throughout the whole process which is very important.  Feel free to ask me any questions you want.  I have been through almost everything good and bad.

 

 

Tracey

hello, and thank you for your message.  i was wondering what sort of treatments have you had.  my husband has angiosarcoma of the heart and i am hoping they (cleveland clinic) have more than one treatment plan in mind. 

i had radiation twice a day for six weeks with my first cancer then two weeks later i had surgery and that was it. 

Then a year later I found out it was in my lungs.  I started with Adriamicyne and that worked well but after i had my lifetime doseage and stopped it the cancer came back.  After that I had Ifosfamide and Mesna and I had an allergic reaction to it twice.  Then I had Doxorubicin, Taxotere, DTIC, and Gemzar.  All of them worked well for a while then it stopped working.  So after awhile I tried a procedure called PhotoDynamic Therapy that is amazing (only 4 places in the US do it though) and they were able to get 80% of the cancer but it really should have been followed by some chemo to kill the rest cause after the treatment again the cancer came back.  I have also done Radiation to my chest when I was having major pain and it helpped alot.

I am currently on Sutant and it seems to be working well.  The doctors are really excited about the way I have been feeling and lack of symptoms I am having and my lungs sound better than they have in years.  I will find out in a month when I have my scans again.  And the Sutant is great cause it is a pill I just take at home every day 28 days on and 14 days off.

I wish both of you luck and let me know if there is anything I can do to help you.

 

On 2/26/2008 leeanner9 wrote:

My boyfriends mother was recently diagnosed with soft tissue sarcoma.  She has six large tumors and they say she has stage IV.  The doctors have already started her on a high does of chemo to hopefully start killing the cancer cells and shrinking the tumors.  Does anyone have any information on this type of cancer? 

Thank you

 

 

How is your Boyfriend's Mother?  Did you find outinfo on the Sarcoma?

 

Tracey 

I was diagnosed in 2000 with a neurosacral sarcoma(soft tissue), I was  given no hope...the mass was (of course in my sacrum) was  on top of a nerve sjeath(covering) and also around the base of my spine and as you know nerves do not need to be cut, , so surgery was not an option as it would cause me not to be able not walk....the dr had to call around the country because no one wanted to touch it...finally at UAB Birmingham,  Alabama,  dr took my case only to tell me ......no hope.....they said the only thing that they would try was some really strong radiation....lots of prayer.....I was supposed to be bleeding, was supposed to spread to my lungs and brain....after those 36 treatments and lots of prayer.....its been 8 years......I believe that I am a living miracle........

Tracey.......I would love to know if you are still fighting this cancer, my husband has soft tissue sarcoma in his leg and a major artery runs right thru it and it has spread to his lungs, liver, hip bone.  My husband has decided to forego the chemo as they are not giving him any hope that it will slow it down.  I think he has resigned to die and it breaks my heart to see him give up.  If you have hope let me know how.

 

On 7/16/2008 missnurse wrote:

I was diagnosed in 2000 with a neurosacral sarcoma(soft tissue), I was  given no hope...the mass was (of course in my sacrum) was  on top of a nerve sjeath(covering) and also around the base of my spine and as you know nerves do not need to be cut, , so surgery was not an option as it would cause me not to be able not walk....the dr had to call around the country because no one wanted to touch it...finally at UAB Birmingham,  Alabama,  dr took my case only to tell me ......no hope.....they said the only thing that they would try was some really strong radiation....lots of prayer.....I was supposed to be bleeding, was supposed to spread to my lungs and brain....after those 36 treatments and lots of prayer.....its been 8 years......I believe that I am a living miracle........

My  husband has a soft tissue sarcoma which started in his leg, the leg had a tumor and it has a major artery running right thru it.  The drs said it was a stage 4, and basically they said no hope, but we could try something to slow it down.  The chemo made him so sick he said he didn't want to spend his last months sick in bed.....so he has basically given up.  The dr said since it had spread to his lungs, liver and hip bone that radiation wouldn't work since you have to hone in on one place.  Your story sounds like a ray of hope.