I was diagnosed GBM in 9/07. 2 resections later, and after radio and temodal: doing fine with recent "clear" MRI. What am I doing about the GBM:
- Gliadel wafers inserted to tumour bed
- Ongoing Temodal but 20 days at `120mg then break, not 5 days of 400mg folowed by break.
- Acupuncture 3 times per week by serious practioner
- Meditation and positive imaging
- Kitogenic diet. Anybody else doing this? Very very hard to cook for and to eat. Similar to Atkins but for cancer. 1 unit carb/protein to 4 units fat (imagine steak sitting in reservoire of olive oil which all needs ot be drunk!). Principal being starve body ogglucose. Cancer cells die ans they cannot convert fat to energy...normal cells can and produce keytones which you can measure in urine. KD been around for years for diabetic kids, though no studies done for cancer despite god evidence it works....no money available. You have to be very dedicated to do this bit I thoroughly believeit works...any other out there who have any knowledge of it as am feeling a little lonely on it here in Singapore!