Average Rating:Rating
Rate this Discussion: rate!

Whipple Surgery

Switch to Single View
Records 1-10 of 15
Pages: 1 2 Next
Caregiver
Caregiver
TexasTeresa
Recommend this Message
Subject: Whipple Surgery
Date: 02/27/2008
My brother was told today that he must have the whipple procedure.  He has had chronic pancreatitis for many years.  They have found lezions and cysts in the head of his pancreas.  The doctor told them that they look suspicious.  Regardless if they are cancer or not, they told him that he MUST have the surgery within the next month.  The little that I have read about the surgery stresses the importance of having the right surgeon and surgery center for the procedure.  It reduces the mortality rate to less than 5% compared to 20% with someone that does not have the proper experience.  My brother lives in Oklahoma and was told that there was only one surgeon in the whole state that could do the surgery.  Where can I go to find a list of surgeons who do the whipple procedure on a regular basis and have the best success rate? 
Subject: RE: Whipple Surgery
Date: 02/27/2008

 

On 2/27/2008 TexasTeresa wrote:

My brother was told today that he must have the whipple procedure.  He has had chronic pancreatitis for many years.  They have found lezions and cysts in the head of his pancreas.  The doctor told them that they look suspicious.  Regardless if they are cancer or not, they told him that he MUST have the surgery within the next month.  The little that I have read about the surgery stresses the importance of having the right surgeon and surgery center for the procedure.  It reduces the mortality rate to less than 5% compared to 20% with someone that does not have the proper experience.  My brother lives in Oklahoma and was told that there was only one surgeon in the whole state that could do the surgery.  Where can I go to find a list of surgeons who do the whipple procedure on a regular basis and have the best success rate? 

My wife just had the surgery on 2/11/08 my oldest sons 20th B-day she is doing good but she is having problems eating without feeling sick. The doctor's say it's still really early give it time but you now how it is when your feeling like crap!!!! Just want to feel better. Anyway her doctor is here in Baltimore at Mercy Medical Center, he is the head of oncology there and is very good at his craft. He Helped her 8 years ago when she had a tumor in her right leg. Her surgery lasted about 61/2 to 7 hrs. they removed part of the stomach, part of the pancreas, part of her Duodenim and her gall bladder. If you want to get the best around and have the means to get to Baltimore the doctors name is Armando Sardi. Mercy's web address is www.mdmercy.com hope your brother does well where ever he has it done.

Caregiver
Caregiver
ilikepurple
Recommend this Message
Subject: RE: Whipple Surgery
Date: 02/28/2008
If it were regarding my loved one and it was, I'd contact Johns Hopkins immediately.  They are essentially the Whipple Center of the US.  They do more Whipples than any other provider.  I'm certain that there are other good surgeons etc., but this is a very serious operation and Hopkins has a concentration of the most experienced Whipple surgeons.  
Subject: RE: Whipple Surgery
Date: 02/28/2008

You might consider University of Maryland Medical Center.   Dr H Richard Alexander is there and was at National Institutes of Health for a long time before that.  He has performed many Whipple procedures and is well versed in pancreatic disease.   They have great and experienced medical and radiological doctors there as well should chemo or radiation be necessary.   Dr Alexander is not only a skilled surgeon.. he also has an indescribably great bedside manner which is equally as important to one's recovery.   Do yourself a favor and check this out.

I can give a full vote of confidence to the care provided by Dr Alexander and the Univ of Md Med Center.

Long time nurse and cancer survivor.

Diana

Caregiver
Caregiver
deaconson
Recommend this Message
Subject: RE: Whipple Surgery
Date: 02/28/2008

 

On 2/28/2008 dcnbama wrote:

You might consider University of Maryland Medical Center.   Dr H Richard Alexander is there and was at National Institutes of Health for a long time before that.  He has performed many Whipple procedures and is well versed in pancreatic disease.   They have great and experienced medical and radiological doctors there as well should chemo or radiation be necessary.   Dr Alexander is not only a skilled surgeon.. he also has an indescribably great bedside manner which is equally as important to one's recovery.   Do yourself a favor and check this out.

I can give a full vote of confidence to the care provided by Dr Alexander and the Univ of Md Med Center.

Long time nurse and cancer survivor.

Diana


Mr father has bile duct cancer (lower bile duct) that was detected in August of 2007.  Had the Whipple Procedure done at Johns Hopkins with Dr. Cameron doing the surgery.  He has done followup radiation & chemo which he tolerated until the last week of therapy.  White count went dangerously low.  Appetite is non-existant -- he doesn't want to eat.  This situation is requiring a lengthy hospital stay.  Any recommendations on how to help him with eating?

Survivor
Survivor
Updacountry
Recommend this Message
Subject: RE: Whipple Surgery
Date: 02/28/2008

I had my Whipple done at Columbia Presbyterian in NYC by Dr. Allendorf. I am 44 years old and I had it done 9 months ago. My only problems are eating and digestion which they hope will some day go away. I loved Dr. Allendorf he came highly recommend. any questions feel free to email me.

Jill

Caregiver
Caregiver
ilikepurple
Recommend this Message
Subject: RE: Whipple Surgery
Date: 02/28/2008

My wife had PC and found it difficult to eat also.  Had a G-J bypass and for some time was unable to eat.  We experimented. We found a local apple cider which had protein and vitemins added that worked as a supplement.  Puddings, fruit salad, soft fruit bars, even peanut butter cups, some of the relatively bland small microwavable soups worked, baby food, tomato soup, chicken noodle soup, gravy and mashed potatoes, some cereals, Ensure or Boost. Many will not understand this, but for the ill persons good, the caregiver must be unrelenting regarding encouraging the ill person to eat. To be honest this all brings back bad memories, but I sure hope some of these help.  It's just the most miserable experience to have to watch your loved one go through.

Subject: RE: Whipple Surgery
Date: 02/28/2008
I know there is an excellent cancer treatment center at Anderson Medical Center in Texas. I'm sure they have experienced Whipple surgeons there. Also, go on Pancan's website and either search there for a surgeon in your area or call them for a recommendation. A good surgeon makes a difference. My husband had a Whipple at University of Pennsylvania by Jeffrey Drebbin (trained at Johns Hopkins). He had few complications and enjoyed an excellent quality of life for 10 months after that. But, first, check out Pancan. Your brother may prefer to be closer to home and they may be able to suggest someone.
Caregiver
Caregiver
gibby1550
Recommend this Message
Subject: RE: Whipple Surgery
Date: 02/28/2008
My partner had the whipple done January 30th at Atriam Medical Center in Middletown, Ohio.  The doctor that did the surgery was Dr. Cobb out of Middletown, Ohio.  The surgery took about 7 hours and she came through it fine.  The one thing I can say is that so many people who have this problem the tumor's are wrapped around the arteries and the surgery can't be done, however her's was and he was able to cut it and repair it while he was in there. He is a vascular surgon and comes highly recommended.  She was in intensive care for 3 days and out of hospital in 6 days.  She does have some digestive problems and having difficulty with BM's but has healed very good from the surgery itself.  The staff at the medical center was astounded at how well she did after such a major surgery.  I wish you all the best.
Subject: RE: Whipple Surgery
Date: 02/28/2008

My boyfriend, age 63,  had his Whipple surgery on 7 Sept at M D
Anderson Cancer Center in Houston TX, part of the Univ. of Texas group
of hospitals.    They are the top rated cancer hospital in the U S from
U S News and World Reports Cancer treatment study.  Everything there is
state of the art,from the radiation equipment, right through having
Cyberknife capability if it's needed.  They do lots and lots of
Whipples there, a reassuring fact with an operation this complicated.

He
saw Dr. Gauri Varadachary initially and his surgeon was Dr. Jeffrey E.
Lee.  We couldn't have wanted better doctors, staff, or hospital for
this. Everyone we dealt with had a marvelous can-do attitude that never
sounded like giving up.  

He was diagnosed with adenocarcinoma on
the head of the pancreas in May 2007.   He had 5 weeks of chemo and
radiation, then a little over a month to recover, then the Whipple. 
The recovery was difficult, almost 2 weeks in the hospital and 2 months
of packing an open incision with retention sutures. He was a difficult
and often uncooperative patient.  Had been incredibly healthy and
running 5 miles a day, taking no meds at all , when diagnosed.   I had
some advice early on from a friend's wife who is helping her husband
deal with multiple cancers thought to be from Agent Orange exposure
during the Vietnam War. His wife told me to that my boyfriend would
feel lousy and wouldn't want to eat and that my "job" was to nag, push,
pull, coerce, and do anything I had to do to get him to eat. I took her
at her word.  Along the way, I yelled, cried, begged, threatened,
walked out, came back and started again, but we got through it.   I can
tell you it was hard on both of us, but he is doing well now, eats
normally ...with digestive enzymes...and has minimal problems.  Enjoys
his beer again and has started to enjoy salads and tomatoes again.


I made heavy use of unflavored high protein whey powder. I used it in
scrambled eggs, made french toast, pancakes, and waffles with it added
to the batter, and protein shakes and smoothies, etc.  He refused to
drink Ensure or Instant Breakfast (as I said, a difficult patient).  It
was necessary to use the protein poweder because the things that were
high protein were not things that he felt like eating, so I made them
high in protein with the powder when I could. You can buy this at most
health food stores.   There are flavored varieties also, but I found
the unflavored most useful. I found the following site very helpful in
finding out how much nutrition/protein, fat, etc was in foods: 
http://www.calorieking.com.  You don't have to join to look up foods
and I used it all the time.  They even have the food content for
restaurants and fast food places, like Subway and McDonalds.  The
Whipple is a big incision and the body needs lots of protein to build
the tissue to fill in that missing tissue and heal the incision.  The
nutritionist told us that our body prioritizes where it uses the
protein first and the first thing it uses it for is to keep your organs
and brain and heart operating.  If it has protein left over it uses it
to build the tissue to fill in the incision...so you need lots of
protein to give it the extra it needs.  They wanted him to try for at
least 80 protein grams a day and I aimed for 100-120. Some days I made
it, some days I didn't.  I also recommend a food scale to weigh the
portions...makes it much easier to assess how much protein you are
getting into them.  

Good luck to you.  My thoughts are with you in this difficult time.

Donna in FL 

 

Records 1-10 of 15
Pages: 1 2 Next
Switch to Single View
close




Sending...
Required Fields All fields are required.
close
User is No longer Ignored
Show messages from this user
close
Report Abuse
Anonymous Note to Administrator:

Reporting
Latest Messages Show More
TG101348 Posted by Terrilynn on 07/23 04:31:58 PM
RE: I dont know what to d Posted by liz111 on 07/23 04:30:08 PM
RE: Temodar & Zofran - do Posted by TaylorsMoms on 07/23 04:21:36 PM
RE: So Scared. Posted by WhatToDo? on 07/23 04:16:27 PM
For those of you having d Posted by skylog on 07/23 04:15:37 PM
RE: `Medicare not coverin Posted by Geri28 on 07/23 04:15:15 PM
RE: psa levels Posted by Skittlebug on 07/23 04:04:07 PM
RE: Tumors Shrinking Posted by CurlyQ on 07/23 03:45:03 PM
Insurance coverage for HI Posted by rsfly on 07/23 03:33:57 PM
RE: TCC Posted by Sue in SD on 07/23 03:29:04 PM
RE: Thyrogen Shots Posted by prncessem on 07/23 03:28:09 PM
Bladder Cancer - 3D Medical Animation