Results Day

Hi everyone,

Today I got the results of my bloods and bone marrow biopsy. Lets
just say the news was not good.

My IGG is 4480 (44.8 UK)
My bone marrow is 25% plasma cells and a small amount of myeloma
cells have been seen in the marrow
My Electrophoresis light chain M component is 25g/l
My albumin is 34
MY B2 microglobulin has not been measured but is being done today, I
dont know when I will get the results.

basically my haemo has scheduled an MRI scan for Tueday 4th March and
is having a video conference with another specialist cancer unit in
our area on Thursday morning 6th March and I have to go back to the
clinic at 4.10 British time on Thursday to find out if Chemo
treatment needs to be started. My Haemo is 80% sure that I need
treatment and said that if its not smoldering myeloma then its full
blown Multiple Myeloma, but until she has had the video conference
and discussed my case with the oter specialists, she can't give me a
100% diagnosis. She has said that I definately no longer have MGUS
and that I have progressed. A full skeletal survey is being done
after the MRI as soon as my aemo can get an appointment for me at the
x-ray department.

I will keep up my healthy eating and my supplements and keep
positive, life dont stop because you get a bit of bad news, and I am
sure as he*! I am not going to be miserable. I dont yet think its
sunk in yet though as I feel numb, but oh well never mind.

Love to you all and I will update you all again on thursday
Best wishes
Love Jane x

Hi Jane!  Sorry to hear your news, but it was probably what you expected, wasn't it?  Your positive attitude is admirable, for being angry, depressed or upset will not help at all!  The skeletal survey - I've had half a dozen - is not painful, unless you have problems with your spine - then it is hard to lie flat on the table for the x-ray, but it can be done slowly.  You are lucky to have such a large multidisciplinary team working for you, for it gives you the top minds looking at you scans and blood work before decisions are made!  Hang in there Jane -- there is a long journey ahead with many 'novel' drugs now being added to the usual group of medications which have been used in the past giving patients a much longer life probablility.  We'll be here for you -- best wishes always, Cath

How long did you have MGUS before you got these lab results?  The reason I am asking is because I was diagnosed with MGUS in Dec. 2007 and I am 60 years old and also have myasthenia gravis.  I would like to wish you the best in your journey and keep up your spirits no matter what.

Sharon T 

Dear Jane: We can only pray for something good to come for you and you get the treatment you need. It is devasting when one is told.  Look at all the natural things you can to help yourslef. Take care MMS

On 2/28/2008 JaneMGUSuk wrote:

Hi everyone,

Today I got the results of my bloods and bone marrow biopsy. Lets
just say the news was not good.

My IGG is 4480 (44.8 UK)
My bone marrow is 25% plasma cells and a small amount of myeloma
cells have been seen in the marrow
My Electrophoresis light chain M component is 25g/l
My albumin is 34
MY B2 microglobulin has not been measured but is being done today, I
dont know when I will get the results.

basically my haemo has scheduled an MRI scan for Tueday 4th March and
is having a video conference with another specialist cancer unit in
our area on Thursday morning 6th March and I have to go back to the
clinic at 4.10 British time on Thursday to find out if Chemo
treatment needs to be started. My Haemo is 80% sure that I need
treatment and said that if its not smoldering myeloma then its full
blown Multiple Myeloma, but until she has had the video conference
and discussed my case with the oter specialists, she can't give me a
100% diagnosis. She has said that I definately no longer have MGUS
and that I have progressed. A full skeletal survey is being done
after the MRI as soon as my aemo can get an appointment for me at the
x-ray department.

I will keep up my healthy eating and my supplements and keep
positive, life dont stop because you get a bit of bad news, and I am
sure as he*! I am not going to be miserable. I dont yet think its
sunk in yet though as I feel numb, but oh well never mind.

Love to you all and I will update you all again on thursday
Best wishes
Love Jane x