One patient with glioblastoma still alive nine years later
by Robert98 on Sat May 28, 2005 12:00 AM
by Bluriderjm on Wed Jul 06, 2005 12:00 AM
by MaryJane_M on Wed Jul 13, 2005 12:00 AM
by Rose_123 on Wed Aug 03, 2005 12:00 AM
by Heart on Wed Sep 21, 2005 12:00 AM
by Rose_123 on Wed Oct 26, 2005 12:00 AM
by Sandy07 on Thu Jun 28, 2007 12:00 AM
On 5/28/2005 Robert98 wrote:This is new to me this message board. I have bladder cancer the bladder will be removed, Im told I will have a bag on the outside for the rest of my life. This is so hard for me to write. Has any one gone through this and what will I be expecting. Thanks to any one that will help.
I am sorry to hear that you had to have that done. My dad just found out that he also has to have that done. we are all really upset and he keeps saying if i knew i could live a normal life. we dont want him to give up and we thought if we could talk to someone who has it done and can tell us things like how you feel do you live a normal life can you do the same things you always did. or anything else you can tell us that will help i would be greatful thank you so much
by daja65 on Fri May 13, 2011 01:14 AM
On May 28, 2005 12:00 AM Robert98 wrote: This is new to me this message board. I have bladder cancer the bladder will be removed, Im told I will have a bag on the outside for the rest of my life. This is so hard for me to write. Has any one gone through this and what will I be expecting. Thanks to any one that will help.
On May 28, 2005 12:00 AM Robert98 wrote:
I see it has been 6 years since you mentioned you had bladder cancer. How are you doing and what procedure did they use?
by Betsygirl on Sat Sep 10, 2011 03:05 PM
I am a 72 year old woman. I neo-bladder surgery in 2005 and now into my 7th year of recovery. I have no real complaints, just getting used to the idea of having cancer is enough to hold in my heart and soul. I have a good care team and they help me. It is frustrating dealing with the medical care system, but many doctors' hands are tied as well. I am in a HMO now and it takes longer to get everything one may need. I just had an ultra sound, a ct scan and finally a cysto to check out a "mass" in the neo-bladder. As my doctor suspected it was some mucous that had collected in the neo-bladder (now is made up of intestinal material and it produces mucous). Part of the problem with this check-up was that the ultra sound doc didn't recognize what it was and so I became fearful that it was another malignant tumor. It was not but it tok 3 weeks to get to my urologist for the cysto. It's the waiting, waiting, waiting to hear about results, diagnosis...no way around it our lives are changed forever. However, I believe I made the right decision when getting the neo-bladder surgery. It was difficult but now I have few problems of significance. Good luck to all of you who are making decisions about your treatment options...take your time and get support. I have great friends and they stick with me through thick and thin times with my cancer. Best to you all.
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