Bladder Removed

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Bladder Removed

by Robert98 on Sat May 28, 2005 12:00 AM

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This is new to me this message board. I have bladder cancer the bladder will be removed, Im told I will have a bag on the outside for the rest of my life. This is so hard for me to write. Has any one gone through this and what will I be expecting. Thanks to any one that will help.

Bladder Cancer

by Bluriderjm on Wed Jul 06, 2005 12:00 AM

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Hi RobertF. I just noticed you e-mail re: your bladder being removed. I am a 4 yr. rare bladder cancer survivor. Only 10 people in the world, 6 in the U.S. had or have this cancer called mucinous adenocarcinoma sarcoma. My cancer was like a broccoli stalk with a mushroom on top. It was against the bladder back wall on the dome. I didn't know which way it was going to go so my surgeon asked if I wanted to have a bag or have a new bladder constructed. I of course wanted the new bladder made if need be. I was very lucky because I had a pie section taken out of my bladder making it smaller and have never had any problem whatsoever. I know of a person who had a bladder made and she also is doing fine except she has to void a little more frequently. How are you doing now? Has surgery been done yet? Jean M.

Bladder Removed and Ureter Removed

by MaryJane_M on Wed Jul 13, 2005 12:00 AM

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Hi, Just wanted you to know I had my bladder removed four years ago. I have a neo-bladder. Also, I had my left ureter removed five years ago and this cancer gives you very small survivor rate about 30% to 40% in a year's time. I am still here and I celebrate life every day. The key is to stay hopefull. Mary

Bladder Removal , Robert

by Rose_123 on Wed Aug 03, 2005 12:00 AM

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Hi, I hope this helps you too. We talked to a very good doctor and he suggested that we do the external bladder pouch system. It works. My husband is only 57. We go back Mon. for a check up. As of April he was cancer free. We hope he stays that way. This is not what we wanted and we searched to find a good/excetional surgon.

Help!

by Heart on Wed Sep 21, 2005 12:00 AM

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I read your message. my fahter was recommended to have his bladder out and have a neo bladder put in. he is 65 years old with a ti and possible cis cancer. his urnine citology is showing caner and abnormal chromosomes so they are recommending being agressive with a grade 3 tumor. the bcg seemed to fail. what is the recovery like for the remova and what are they telling you the olds of long term survival are? thanks, Deb

Bldder Removal

by Rose_123 on Wed Oct 26, 2005 12:00 AM

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Hi, We had this surgery Last April in Kandsa City Med center under Dr. thrasher. We chose the external bladder. He will ware a bag the rest of his life. he is 57 and alive. and healthy now. It is the fear we first saw that I see in your. Dr. Thrasher gave us such mental and emotional relief. We learened how to deal and it is not big thig now. I wish we could have kept it but not with cancer. Rose

RE: Bladder Removed

by Sandy07 on Thu Jun 28, 2007 12:00 AM

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On 5/28/2005 Robert98 wrote:

This is new to me this message board. I have bladder cancer the bladder will be removed, Im told I will have a bag on the outside for the rest of my life. This is so hard for me to write. Has any one gone through this and what will I be expecting. Thanks to any one that will help.

I am sorry to hear that you had to have that done. My dad just found out that he also has to have that done. we are all really upset and he keeps saying if i knew i could live a normal life. we dont want him to give up and we thought if we could talk to someone who has it done and can tell us things like how you feel do you live a normal life can you do the same things you always did. or anything else you can tell us that will help i would be greatful thank you so much

RE: Bladder Removed

by daja65 on Fri May 13, 2011 01:14 AM

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On May 28, 2005 12:00 AM Robert98 wrote:

This is new to me this message board. I have bladder cancer the bladder will be removed, Im told I will have a bag on the outside for the rest of my life. This is so hard for me to write. Has any one gone through this and what will I be expecting. Thanks to any one that will help.

I see it has been 6 years since you mentioned you had bladder cancer.  How are you doing and what procedure did they use?

Thanks d

RE: Bladder Removed

by daja65 on Fri May 13, 2011 01:14 AM

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On May 28, 2005 12:00 AM Robert98 wrote:

This is new to me this message board. I have bladder cancer the bladder will be removed, Im told I will have a bag on the outside for the rest of my life. This is so hard for me to write. Has any one gone through this and what will I be expecting. Thanks to any one that will help.

I see it has been 6 years since you mentioned you had bladder cancer.  How are you doing and what procedure did they use?

Thanks d

RE: Bladder Removed

by Betsygirl on Sat Sep 10, 2011 03:05 PM

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I am a 72 year old woman. I neo-bladder surgery in 2005 and now into my 7th year of recovery. I have no real complaints, just getting used to the idea of having cancer is enough to hold in my heart and soul. I have a good care team and they help me. It is frustrating dealing with the medical care system, but many doctors' hands are tied as well. I am in a HMO now and it takes longer to get everything one may need. I just had an ultra sound, a ct scan and finally a cysto to check out a "mass" in the neo-bladder. As my doctor suspected it was some mucous that had collected in the neo-bladder (now is made up of intestinal material and it produces mucous). Part of the problem with this check-up was that the ultra sound doc didn't recognize what it was and so I became fearful that it was another malignant tumor. It was not but it tok 3 weeks to get to my urologist for the cysto. It's the waiting, waiting, waiting to hear about results, diagnosis...no way around it our lives are changed forever. However, I believe I made the right decision when getting the neo-bladder surgery. It was difficult but now I have few problems of significance. Good luck to all of you who are making decisions about your treatment options...take your time and get support. I have great friends and they stick with me through thick and thin times with my cancer. Best to you all. 

Betsygirl

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